Category Archives: broken pelvis

Familial Mediterranean Fever ~ a Rare genetic disease

I do not look like I have a single drop of Mediterranean blood in me, so why do i care about this rare genetic disorder? Because the color of skin is only skin deep. Because despite the pale appearance of my exterior,  I have the genetic ancestor from that part of the world who handed me this recessive trait. Because I have this disease and have to live with it…

Breezy Kiefair struggling to gain weight post flare

Breezy Kiefair struggling to gain weight post flare

I care because I need to repost the links as many times as possible in hopes that those related to me by blood will heed my warning and look for signs of the disorder in the kids…. I have made no secret of the fact that I am far estranged from my biological family, so I turn to electronic means to spread the word.

There is no cure, but the treatment does help….. There is no cure, but knowledge that there is indeed something wrong and that I am not a hypochondriac is soothing to the mind…. There is no cure, but it sure as hell does explain a lot about both myself and my blood relatives… BOTH my parents had to have the recessive gene in order for me to have this disorder. Both my parent’s sets of siblings may also be carriers of these recessive traits….  ALL of my blood siblings (half or full blooded) are POTENTIAL carriers of the defect…. Therefore, ALL of my blood nieces and nephews are potential victims of the disease as well as their children. It is my hope that those in my family will stumble upon this post and then value the family’s future generations enough to spread this information to where it may be of use (i emailed it directly to those whose email addresses I possess in my bloodline)
the below information was retrieved from:

What is familial Mediterranean fever?

Familial Mediterranean fever is an inherited condition characterized by recurrent episodes of painful inflammation in the abdomen, chest, or joints. These episodes are often accompanied by fever and sometimes a rash. The first episode usually occurs in childhood or the teenage years, but in some cases, the initial attack occurs much later in life. Typically, episodes last 12 to 72 hours and can vary in severity. The length of time between attacks is also variable. Without treatment to help prevent attacks and complications, a buildup of certain protein deposits (amyloidosis) in the body’s organs and tissues may occur, which can lead to kidney failure.

How common is familial Mediterranean fever?

Familial Mediterranean fever primarily affects populations originating in the Mediterranean region, particularly people of Armenian, Arabic, Turkish, and Jewish ancestry. The disorder affects from 1 in 250 people to 1 in 1,000 people in these populations. It is less common in other populations.

What genes are related to familial Mediterranean fever?

Mutations in the MEFV gene cause familial Mediterranean fever. The MEFV gene provides instructions for making a protein called pyrin (also known as marenostrin), which is found in white blood cells. This protein is involved in the immune system, helping to regulate the process of inflammation. Inflammation occurs when the immune system sends signaling molecules and white blood cells to a site of injury or disease to fight microbial invaders and facilitate tissue repair. When this has been accomplished, the body stops the inflammatory response to prevent damage to its own cells and tissues.

Mutations in the MEFV gene reduce the activity of the pyrin protein, which disrupts control of the inflammation process. An inappropriate or prolonged inflammatory response can result, usually accompanied by fever and pain in the abdomen, chest, or joints.

Normal variations in the SAA1 gene may modify the course of familial Mediterranean fever. Some evidence suggests that a particular version of the SAA1 gene (called the alpha variant) may increase the risk of amyloidosis among people with familial Mediterranean fever.

Read more about the MEFV and SAA1 genes.

How do people inherit familial Mediterranean fever?

Familial Mediterranean fever is almost always inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.

In rare cases, this condition appears to be inherited in an autosomal dominant pattern, in which one copy of the altered gene in each cell is sufficient to cause the disorder and affected individuals often inherit the mutation from one affected parent. However, there are other possible explanations of this apparent pattern. A gene mutation that occurs frequently in a population may result in a disorder with autosomal recessive inheritance appearing in multiple generations in a family, a pattern that mimics autosomal dominant inheritance. If one parent has familial Mediterranean fever (with two mutations in the MEFV gene) and the other parent is an unaffected carrier (with one mutation in the MEFV gene), it may appear as if the affected child inherited the disorder only from the affected parent. This appearance of autosomal dominant inheritance when the pattern is actually autosomal recessive is called pseudodominance.

Where can I find information about diagnosis or management of familial Mediterranean fever?

These resources address the diagnosis or management of familial Mediterranean fever and may include treatment providers.

You might also find information on the diagnosis or management of familial Mediterranean fever inEducational resources and Patient support.

To locate a healthcare provider, see How can I find a genetics professional in my area? in the Handbook.

Where can I find additional information about familial Mediterranean fever?

You may find the following resources about familial Mediterranean fever helpful. These materials are written for the general public.

You may also be interested in these resources, which are designed for healthcare professionals and researchers.

What other names do people use for familial Mediterranean fever?

  • Benign paroxysmal peritonitis
  • Familial paroxysmal polyserositis
  • FMF
  • Hereditary Periodic Fever Syndromes
  • Mediterranean Fever, Familial
  • MEF
  • Periodic Disease
  • Periodic peritonitis
  • Recurrent polyserositis
  • Reimann periodic disease
  • Siegal-Cattan-Mamou disease
  • Wolff Periodic Disease

For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.

What if I still have specific questions about familial Mediterranean fever?

Where can I find general information about genetic conditions?

What glossary definitions help with understanding familial Mediterranean fever?

amyloidosis ; autosomal ; autosomal dominant ; autosomal recessive ; benign ; carrier ; cell ; complication ;familial ; fever ; gene ; immune system ; inflammation ; inheritance ; injury ; joint ; kidney ; molecule ;mutation ; population ; protein ; pseudodominance ; recessive ; sign ; symptom ; syndrome ; teenage ;tissue ; white blood cells

You may find definitions for these and many other terms in the Genetics Home Reference Glossary.

See also Understanding Medical Terminology.

References (13 links)

The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. See How can I find a genetics professional in my area? in the Handbook.

Reviewed: September 2008
Published: October 23, 2012

please also read:

and here is some more information retrieved from:

Familial Mediterranean fever

From Wikipedia, the free encyclopedia

Familial Mediterranean fever (FMF) is a hereditary inflammatory disorder[1]:149. FMF is an autoinflammatory disease caused by mutations in MEFV, a gene which encodes a 781–amino acid protein denoted pyrin.[2]

The disorder has been given various names including familial paroxysmal polyserositis, periodic peritonitis, recurrent polyserositis, benign paroxysmal peritonitis, periodic disease or periodic fever, Reimann periodic disease or Reimann’s syndrome, Siegal-Cattan-Mamou disease, and Wolff periodic disease.[3][4][5] Note that “periodic fever” can also refer to any of thePeriodic fever syndromes.


FMF affects groups of people originating from around the Mediterranean Sea (hence its name). It is prominently present in the Armenian people, Sephardi Jews (and, to a much lesser extent, Ashkenazi Jews), CypriotsTurks and Arabs.[6]

[edit]Signs and symptoms


There are seven types of attacks. Ninety percent of all patients have their first attacks before they are 18 years old. All develop over 2–4 hours and last anywhere from 6 hours to 4 days. Most attacks involve fever.[6]

  1. Abdominal attacks, featuring abdominal pain, affect the whole abdomen with all signs of peritonitis (inflammation of abdominal lining), and acute abdominal pain likeappendicitis. They occur in 95% of all patients and may lead to unnecessary laparotomy. Incomplete attacks, with local tenderness and normal blood tests, have been reported.
  2. Joint attacks mainly occur in large joints, especially in the legs. Usually, only one joint is affected. Seventy-five percent of all FMF patients experience joint attacks.
  3. Chest attacks include pleuritis (inflammation of the pleura) and pericarditis (inflammation of the pericardium). Pleuritis occurs in 40% of patients, and makes it difficult to breathe or lie flat, but pericarditis is rare.
  4. Scrotal attacks due to inflammation of the tunica vaginalis occurs in up to 5% and may be mistaken for acute scrotum (i.e. testicular torsion).
  5. Myalgia (rare in isolation)
  6. Erysipeloid (a skin reaction on the legs, rare in isolation)
  7. Fever without any of the other symptoms listed above (25%)


AA-amyloidosis with renal failure is a complication and may develop without overt crises. AA amyloid protein is produced in very large quantities during attacks, and at a low rate between them, and accumulates mainly in the kidney, as well as the heartspleengastrointestinal tract and thyroid.[6]

There appears to be an increase in the risk for developing particular vasculitis-related diseases (e.g. Henoch-Schönlein purpura), spondylarthropathy, prolonged arthritis of certain joints and protracted myalgia.[6]


The diagnosis is clinically made on the basis of the history of typical attacks, especially in patients from the ethnic groups in which FMF is more highly prevalent. An acute phase response is present during attacks, with high C-reactive protein levels, an elevated white blood cell count and other markers of inflammation. In patients with a long history of attacks, monitoring the renal function is of importance in predicting chronic renal failure.[6]

A genetic test is also available to detect mutations in the MEFV gene. Sequencing of exons 2, 3, 5, and 10 of this gene detects an estimated 97% of all known mutations.[6]

A specific and highly sensitive test for FMF is the “Metaraminol Provocative Test (MPT),” whereby a single 10 mg infusion of Metaraminol is administered to the patient. A positive diagnosis is made if the patient presents with a typical, albeit milder, FMF attack within 48 hours. As MPT is more sensitive than specific, it does not identify all cases of FMF. Although a positive MPT can be very useful.[7][8]


Virtually all cases are due to a mutation in the MEFV gene on the sixteenth chromosome, which codes for a protein called pyrin or marenostrin. Various mutations of this gene lead to FMF, although some mutations cause a more severe picture than others. Mutations occur mainly in exons 2, 3, 5 and 10.[6]

The function of pyrin has not been completely elucidated, but it appears to be a suppressor of the activation of caspase 1, the enzyme that stimulates production of interleukin 1β, a cytokine central to the process of inflammation. In other words an ineffective pyrin doesn’t inhibit inflammation normally, resulting in inflammatory episodes of membranes at differing sites. It is not conclusively known what exactly sets off the attacks, and why overproduction of IL-1 would lead to particular symptoms in particular organs (e.g. joints or the peritoneal cavity).[6]


Familial Mediterranean fever has an autosomal recessive pattern of inheritance.

The MEFV gene is located on the short arm of chromosome 16 (16p13). The disorder inherits in an autosomal recessive fashion. Therefore, two asymptomatic carrier parents have a 25% chance of a child with the disorder, a 50% chance of a child who is an asymptomatic carrier and a 25% chance of a child who does not carry the disorder. FMF patients who have children with a carrier or another FMF patient have a 50% and 100% chance, respectively, of having a child with FMF.[9][10]

There is one known case of an affected patient with only one parent who is a carrier. This is caused by a unique mutation on thesixteenth chromosome.


Attacks are self-limiting, and require analgesia and NSAIDs (such as diclofenac).[6]

Colchicine, a drug otherwise mainly used in gout, decreases attack frequency in FMF patients. The exact way in which colchicine suppresses attacks is unclear. While this agent is not without side effects (such as abdominal pain and muscle pains), it may markedly improve quality of life in patients. The dosage is typically 1–2 mg a day. Development of amyloidosis is delayed with colchicine treatment. Interferon is being studied as a therapeutic modality.[6] Some advise discontinuation of colchicine before and during pregnancy, but the data are inconsistent, and others feel it is safe to take colchicine during pregnancy.[11]

Approximately 5-10% of FMF cases are resistant to colchicine therapy alone. In these cases, adding anakinra to the daily colchicine regimen has been successful.[12]


New York allergist, Dr Sheppard Siegal, first described the attacks of peritonitis in 1945; he termed this “benign paroxysmal peritonitis”, as the disease course was essentially benign.[13] Dr Hobart Reimann, working in the American University in Beirut, described a more complete picture which he termed “periodic disease”.[14][15]

In 1972, colchicine was discovered to prevent attacks.[16]

The link to the MEFV gene was discovered in 1997 by two different groups, each working independently – the French FMF Consortium,[9] and the International FMF Consortium.[10]

[edit]See also


  1. ^ James, William; Berger, Timothy; Elston, Dirk (2005). Andrews’ Diseases of the Skin: Clinical Dermatology. (10th ed.). Saunders. ISBN 0-7216-2921-0.
  2. ^ Chae JJ, Wood G, Richard K et al. (September 2008). “The familial Mediterranean fever protein, pyrin, is cleaved by caspase-1 and activates NF-kappaB through its N-terminal fragment”Blood 112 (5): 1794–1803. doi:10.1182/blood-2008-01-134932PMC 2518886PMID 18577712.
  3. ^ Dugdale III, David C; Jatin Vyas (2010-09-15). “Familial Mediterranean fever – PubMed Health”PubMed Health. National Centre for Biotechnology Information. Retrieved 2011-04-24.
  4. ^ Enersen, Ole Daniel. “Whonamedit – Siegal-Cattan-Mamou syndrome”Whonamedit? A dictionary of medical eponyms. Archived from the original on 2001-04-24. Retrieved 2011-04-24.
  5. ^ “Familial Mediterranean fever – Genetics Home Reference”Genetics Home Reference. U.S. National Library of Medicine. 2011-04-14. Archived from the original on 2011-04-24. Retrieved 2011-04-24.
  6. a b c d e f g h i j Livneh A, Langevitz P (2000). “Diagnostic and treatment concerns in familial Mediterranean fever”. Baillieres Best Pract Res Clin Rheumatol 14 (3): 477–498.doi:10.1053/berh.2000.0089PMID 10985982.
  7. ^ Barakat MH, El-Khawad AO, Gumaa KA, El-Sobki NI, Fenech FF (1984). “Metaraminol provocative test: a specific diagnostic test for familial Mediterranean fever”. Lancet 1(8378): 656–7. PMID 6142351.
  8. ^ Huppertz HI, Michels H (1988). “[The metaraminol provocation test in the diagnosis of familial Mediterranean fever]”. Monatsschr Kinderheilkd 136 (5): 243–5. PMID 3405225.
  9. a b The French FMF Consortium (1997). “A candidate gene for familial Mediterranean fever”. Nat. Genet. 17 (1): 25–31. doi:10.1038/ng0997-25PMID 9288094.
  10. a b The International FMF Consortium (1997). “Ancient missense mutations in a new member of the RoRet gene family are likely to cause familial Mediterranean fever”. Cell 90(4): 797–807. doi:10.1016/S0092-8674(00)80539-5PMID 9288758.
  11. ^ Michael O, Goldman RD, Koren G (August 2003). “Safety of colchicine therapy during pregnancy”Can Fam Physician 49: 967–9. PMC 2214270PMID 12943352.
  12. ^ Calligaris L, Marchetti F, Tommasini A, Ventura A (2008). “The efficacy of anakinra in an adolescent with colchicine-resistant familial Mediterranean fever”European Journal of Pediatrics 167 (6): 695–696. doi:10.1007/s00431-007-0547-3PMC 2292480PMID 17588171.
  13. ^ Siegal S (1945). “Benign paroxysmal peritonitis”. Ann Intern Med 23 (2): 234–47. PMID 18124924.
  14. ^ Reiman HA (1948). “Periodic disease. Probable syndrome including periodic fever, benign paroxysmal peritonitis, cyclic neutropenia and intermittent arthralgia”. J Am Med Assoc 136 (4): 239–44. PMID 18920089.
  15. ^ synd/2503 at Who Named It?
  16. ^ Goldfinger, S.E. (1972-12-21). “Colchicine for familial Mediterranean fever”. New England Journal of Medicine 287 (25): 1302. doi:10.1056/NEJM197212212872514.PMID 4636899.

[edit]External links

Breezy Says:

The treatment for any persons afflicted with the disease is a gout medication called colchicine. You can read up on the medication here:
In addition to the Colchicine, I recommend a regimen of ingesting Phoenix Tears Oil (hash oil made from the cannabis plant) by mouth in concert with smoking the plant to treat pain and juicing the fan leaves to decrease intestinal symptoms and increase appetite.

–Auto signature below–
Breedheen O’Rilley Keefer
AKA Breezy Kiefair

links about breezy

the more in depth, needs editing, 31 page version to help you understand why i sit at my machine fighting the machine day in and day out.
~ Do all that you can to cultivate peace within yourself, that it might
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~

Breezy’s Broken Butt Bone… Need some things to heal

I’ve been walking around on a broken pelvis for at least 7-10 days trying to get a ride to the hospital. On April 9, 2012 the pain became so extreme that I finally told a little white lie that i fell in the tub and called an ambulance. I told another little white lie to avoid discussing the cannabis issue with a “luck of the draw doctor”…. I whitewashed the fact that I am chronically ill and said I am on no medications (cannabis is a food wink wink). That made my life a lot easier.

Usually I am 100% honest when I go to see a doctor. I felt bad being deceptive, but I just didn’t have it in me to debate with the doctor, and I was terrified I would be refused pain medication or treatment if I dared to mention the herb that I use as a religious sacrament. I say that it made my life easier to “sweep the cannabis issue under the rug” but morally, I was (and am) conflicted about it. So often I speak about how we should show our pot pride, but the sad truth is, this time I didn’t have any fight in me. This time, the pain was too bad to educate along the way. I’m not proud of my choice to not share the whole truth with that er doctor last night at the Hospital, but I am sharing the truth of how it made me feel to minimize the treatment that works for my ongoing health issues.

When they finally released me from the hospital, I paid for a cab home with money I didn’t really have. I borrowed it from one of my roommates who couldn’t really spare it either but was tired of watching me suffer. We dunno when the injury really happened, but most likely I hurt it trying to be superwoman in the move and then the break grew and grew over the month of March until I could no longer bear the pain. We moved because of stalkers. No need to get into details.

The thing is, I MINIMIZED this injury in the beginning thinking it was just a part of my normal every day pain…. And so did everyone else I was imploring for help… Have I become a bit jaded, well sure I have. Am I fighting that impulse? yes I am. Thanks for the love guys, I need it.

People have been asking what they can do to help me heal…

1. Due to stalkers, I need to be able to set up a post office box to be able to receive packages.  It is not that I do not trust my friends, it is that I am trying to protect myself from the stalkers that caused the move. The move caused the injury. My stubbornness made that injury more severe. A post office box will run $32 for 6 months. I retrieved this information from the USPS site

2. I currently sleep on a futon mattress on the floor. I don’t really care what kind of bed i end up with, but I do need a bed that is more comfortable than what I have. Bedrest and pain control is about all that can be done until the fracture heals of its own accord. Pillows are also a welcome blessing as I struggle to find comfort.

3. I have phoenix Tears oil aka edible hash oil for sale or trade to Colorado Medical Marijuana Patients. I personally have become tolerant to the strains we made the oil from. This batch was made from medical grade trim and sweetleaf. In return, I need flowers or concentrates to smoke, cannabis infused foods (medibles) to munch, or salves to massage into the pain in my ass. For more information on the edible/topical hash oil I make, please visit this post and watch a diabetic ulcer disappear! I will do product reviews BY REQUEST of any medication I receive

4. Financial support to pay for cab rides to follow up doctor visits, vitamins to help the bone knit back together,  purchase medication and provide food. Cannabis is an expensive medication not covered by any insurance. While I do grow my own, I am no where near harvest and will be needing medication to mitigate the pain. My food stamp benefits were recently terminated as well.

Low priority needs include:

5. Grow lights, nutrients and assorted growing supplies

6. Meditation aids such as incense, classical or relaxing music, or anything else you think might enhance my calm and help me heal faster.

I feel guilty for asking. Those who have been following my posts know that there are others out there that need help badly. One long time activist needs a vaporizer now that she is home from the hospital for a collapsed lung. Meanwhile, on the other side of the country, a family struggles to stay together and provide shelter, food, medications, etc for themselves and their infant son. The good news is, my friend with the collapsed lung is out of the hospital, and the family was given a donation that provided them a few nights in a hotel.

You can read more about the past chronic pain journey here. It needs to be edited, but I just have so many projects and not enough time.

I will keep this post updated as my needs change. I thank you in advance even if all you can do is hope/wish/pray/send energy towards my speedy recovery.

If you can help out financially, please click here to visit the wepay site that has been set up to accept monetary support. You can also email me at if you would like to send something or trade.

Have a Blessed day!

Update Friday, April 13, 2012

I find myself unable to sleep more than an hour or so at a time.  I feel guilty asking for anything for myself, especially when there is so much wrong in the world! There are daddies worried about their daughters cause they just found out someone touched them wrong. Homeless parents wondering how long their precious child will have to sit in a dirty diaper. Severe pain patients going through opiate withdrawals because they tested positive for using cannabis to control the pain and are now cut off from their pain doctor…. don’t pain doctors realize they can kill someone like that? “Recovered” addicts are off to the races with their old flames and oh so much more that I dare not even go any further listing…. wow… I’m hoping the creator helps out  a lot of people today.

As for me, I am grateful that I DO HAVE medication today. We desperately need a liquid diet to assist in weight gain. I cannot seem to process solid food right now.  My biggest need is a bed.  My discharge instructions dictate bedrest and pain control. Well, if I must be on bedrest in order to heal, then i gotta have a bed I am capable of sleeping in… playing princess and the pea with a futon on the floor every night is not conducive to sleep in this amount of pain.  If my pelvis were not broken, the futon would be fine….

I remain very frustrated with mainstream medicine. The night I went to the er, i ended up with bruises on my arms from the way that stupid emt handled me while strapping me to the backboard. I screamed nearly the whole way to the hospital the other night… Sheesh… why bother asking me what position is most comfortable/uncomfortable if you are just gonna put me in the position I told you was least comfortable any way…. ofcourse, it could be argued that I got the bruises struggling against the restraints on the backboard, but why was I struggling? cause he made sure I was uncomfortable. I understand they were worried I had a broken spine, but logic dictates that if the patient is calm and polite, then a change of position makes it worse and causes her to become irate and scream, them perhaps you shouldn’t put her in that position!

He is the only one who grabbed me by the arm. Man do I wish I had the camera rolling. I just wasnt up for that in my condition.

My discharge instructions say that pain control and bed rest are all that can be done for me. Well, if they want me on bedrest, i gotta have a bed I am capable of  resting in… playing princess and the pea with a futon on the floor every night is not conducive to sleep in this amount of pain. If my pelvis were not broken, the futon mattress lying on the floor would be fine. Not ideal for a fibromyalgia patient, but it was ok before. My Fibromyalgia pressure points make it very difficult to stay still when I am in pain. After a seizure last night (too much pain) I began to worry if perhaps I should have been placed in a device to prevent me from moving my pelvis.  I Have NOT made a follow up doctor’s appointment cause I dunno how i would get there…. the doc they referred me too is way far away

I’ve had an extraordinarily emotional week. In addition to trying to deal with anxiety responses due to severe pain, I had a visit from my estranged biological mother who is anti cannabis and my biological sister whom I love, but always causes enough stress to escalate my illness. I said it best when they were about to arrive in a facebook status message.

I’m about to offer hospitality for the night to my estranged mother… what a strange experience…She REALLY HATES WEED still… There is a hell of a thunderstorm out there and then you get a call and hear that mom and sister need a room for the night and a meal… you think I’m gonna turn her away? heck no…. porch light is on bio mama & sis… my fridge is yours..

My poor mother’s cousin who was more like a brother to her had passed away. She had just picked my sister up from jail (charges were dismissed thank the creator!) and was in a bad place emotionally. I guess seeing me for the first time since she threw me out of her house for my weed was just too much stimuli for her. She began to threaten suicide. I did what I could to ease her suffering. The last thing I said to her was, “Please don’t kill yourself mom. I love you.”

There have been many other emotional disruptions this week ranging from stalker stimuli to good friends alienated because they didnt understand how to deal with me in this much pain, and I tend to be angry and communicate poorly when I am in pain I cannot treat.

I’d like to remind everyone that physical pain can make an individual look, feel, and behave like a person consumed with negative emotions or energy. It helps if the individual can understand that what they are feeling is an effect of their pain/illness…. this can help prevent getting lost in negative emotion land. Sometimes people like this lash out at people who care about them for little or no reason and then feel bad about it…. This is frustrating for all involved. Persons with negativity due to pain may also turn their “negativity” inward in an effort to prevent the negative emotion/energy from spreading. this can cause a”self negativity loop” that tends to feed into the underlying problem of pain by lowering the patient’s self esteem. Friends/Family members should do all they can to help the patient feel loved and valued to help diffuse this cycle. Positive reinforcement and love can combat negativity no matter the source.

I’ve also been frustrated this week with the number of people seeking free oil… No one should EVER have to beg for their medicine… it doesn’t matter if you can afford your medication or not. You still need it. It doesn’t matter what your “tolerance” (read what dosage you medically need.) It is really, really sick that so many either have to beg for compassion or do without their MEDICINE.. I take my turns being without like most all other fiercely dedicated activists. Most won’t tell you when they are out of medicine. I hear from my friends/audience all the time about how they suffer without medication. It breaks my heart. What is worse is when people have need of free oil because they have been victimized by someone who was supposed to help them in exchange for their money. When these people get their bank accounts emptied and their illnesses remain untreated due mostly to ineptitude and greed, its just wrong on a very deep level. I am happy to help these people out as my own finances allow. It is still frustrating to hear they have been taken advantage of by the folks at the link before they got to me.

I’m frustrated with bureaucratic nonsense in the cannabis as a treatment option in general. My “Colorado Red Card’s” time is running out quickly and I cannot afford to renew. My current medicinal cannabis license came out before they started printing “home-bound patient” on the cards so I can’t even get a delivery from my caregiver due to state red tape. It does not matter to the state that I have been clinically “home bound” since long before I got on the registry.  I am not upset at my caregiver, just frustrated that those in power think someone with a broken pelvis should be able to walk in and buy their meds a day after they are diagnosed. The emergency room doctor sent me home with just 24 percocet. I cannot get to a follow up appointment with another doctor due to lack of transportation. I guess they expect me to just lay in bed in agony for 4-6 weeks or until I have to call the ambulance again? I am honestly wondering why I even made the first emergency room trip at this point. Still, the knowledge gained that there is a real injury instead of assuming it was just an escalation of my every day pain is valuable.

Despite all the frustrations, there were some rays of hope this week.

I’ve done a lot of complaining in this post. I’d like to leave you on a positive note. Here are some cool things that happened this week.

1. On Wednesday, We changed Fat Freddy’s the bandage in the morning. Lo and behold, all the scaling has gone! We are now continuing treatment only as scar reduction! It has been so amazing to watch this horrible wound heal up and begin to disappear. Latest pics are at the bottom of the link we’ve all been sharing.

2. I wrote a little parody to “Where have all the flowers gone” as it applies to cannabis prohibition.

3. My friend with the collapsed lung was able to  get a vaporizer donated to her! She is now home from the hospital and awaiting delivery of her vaporizer!

4. Even the homeless family I have been blogging about got a donation for a few nights in a hotel room. They are still in dire need.  I pray you pray with me and help them out.

5. I used my convalescence to do some new pieces of artwork. The one that most applies to this situation is below. You can view the other pieces on my facebook like page.

6. I was able to ease suffering of others with oil

How can endocannabinoids be illegal when every human body makes them?

I will keep this post updated as my needs change. I thank you in advance even if all you can do is hope/wish/pray/send energy towards my speedy recovery.

If you can help out financially, please click here to visit the wepay site that has been set up to accept monetary support. You can also email me at if you would like to send something or trade.

Have a Blessed day!

UPDATE April, 24, 2011

I am overwhelmed with the response to this post. One of my friends went to their local charity and dollar store and made me up a healing box that weighed 1/4 of what I do! A religious studies major from my Alma Mater, Naropa University, made a cash donation of $10. We were able to find a bed on craigslist for free…. the man even delivered the bed to me and helped set it up. I couldn’t have asked for a nicer bed to heal in! Shortly after that, another cannabis activist mailed me a benjamin and told me to get medication and to sleep…… Others are still sending things. I really am ok to heal now. My biggest worry right now is finding trim to make my next batch of mercy for others… If anything is sent that I cannot use, be it money or goods, I will redistribute it to those needing it. THANK YOU ONE AND ALL!

Meanwhile, I am doing all I can to get phoenix tears oil into the hands of those who need it the most while my bone heals.

Have a blessed day!

UPDATE 5/5/2012

my fracture is healed… thanks for the help from the hemp eazenow on to me bruises from the rent a cops at the hospital! they said they could see the fracture clearly and that it had knitted together well! I put the hemp eaze on my hip every night along with soaks and nutritional supplements… nearly zero pharmacological intervention (other than the diagnosis and initial pain control) for this broken bone! Thanks to Darcy and Bill of Hemp Eaze  and everyone else for answering the call!

here is information on the products i used:



Click To Enlarge
  • Item #: 333
  • Manufacturer: Tierra Sol Farm
Hemp-EaZe™ THERAPY CREAM Hemp Root Therapy is a 9 medicinal herb formula. 100% Organic. Hemp-EaZe is formulated to relieve muscular and bone aches, reduce swelling and ease pain. Our triple-strength proprietary blend includes; Hemp Root, Comfrey, Burdock, Lavender, Lobelia, Hyssop, Feverfew, Myrrh Gum, Sage, and California Bay. Hemp-EaZe rejuvenates circulation, promotes cellular growth, and encourages deep tissue healing. It’s a 2 oz. jar but, A little goes a long way. Our therapy cream spreads nice and thin, so it’s very economical. Great for Arthritis, sprains, joint pain, as well as, breaking down bruising, mending wounds, and relieving the discomfort of skin ailments, such as eczema and psoriasis. * The natural bees wax in the cream will begin to softened if exposed to direct sunlight or heat. If this occurs, set jar in cool place or refrigerate until solidifies again. Softening will not harm product. We use raw bees wax for it’s antiseptic qualities. We get our bees wax locally, from bees who no doubt pollinated our own herbs that we grow for our formula. Tierra Sol Farm is a GREEN company. We grow organically, buy locally, and we’re reusing. We reuse boxes for shipping to help reduce waste. * Results May Vary

Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter

Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter

Click To Enlarge
  • Item #: 400
  • Manufacturer: Tierra Sol Farm
Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter Introduced at the 20th Anniversary of The Seattle Hempfest! Hemp ROOT has been proven to be successful in reducing swelling and easing pain. Now recent studies have shown that components in the root have been successful at killing Staph. infection! The Deep Healing Body Butter is 100% Organic SOY-FREE treatment for; bruising, sore muscles, skin irritations, burns, scrapes, and cuts. With A touch of honey, enhances this cream as a double antiseptic, preventing infection, promoting tissue growth, rejuvenating the circulation and easing swelling. * We use raw honey for it’s antiseptic qualities. We get our honey locally, from bees who no doubt pollinated our own herbs that we grow for our formula. Tierra Sol Farm is a GREEN company. We grow organically, buy locally, and we’re reusing. We reuse boxes for shipping to help reduce waste. * Results May Vary

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