Category Archives: cannabis poets

Familial Mediterranean Fever ~ a Rare genetic disease

I do not look like I have a single drop of Mediterranean blood in me, so why do i care about this rare genetic disorder? Because the color of skin is only skin deep. Because despite the pale appearance of my exterior,  I have the genetic ancestor from that part of the world who handed me this recessive trait. Because I have this disease and have to live with it…

Breezy Kiefair struggling to gain weight post flare

Breezy Kiefair struggling to gain weight post flare

I care because I need to repost the links as many times as possible in hopes that those related to me by blood will heed my warning and look for signs of the disorder in the kids…. I have made no secret of the fact that I am far estranged from my biological family, so I turn to electronic means to spread the word.

There is no cure, but the treatment does help….. There is no cure, but knowledge that there is indeed something wrong and that I am not a hypochondriac is soothing to the mind…. There is no cure, but it sure as hell does explain a lot about both myself and my blood relatives… BOTH my parents had to have the recessive gene in order for me to have this disorder. Both my parent’s sets of siblings may also be carriers of these recessive traits….  ALL of my blood siblings (half or full blooded) are POTENTIAL carriers of the defect…. Therefore, ALL of my blood nieces and nephews are potential victims of the disease as well as their children. It is my hope that those in my family will stumble upon this post and then value the family’s future generations enough to spread this information to where it may be of use (i emailed it directly to those whose email addresses I possess in my bloodline)
the below information was retrieved from: http://ghr.nlm.nih.gov/condition/familial-mediterranean-fever

What is familial Mediterranean fever?

Familial Mediterranean fever is an inherited condition characterized by recurrent episodes of painful inflammation in the abdomen, chest, or joints. These episodes are often accompanied by fever and sometimes a rash. The first episode usually occurs in childhood or the teenage years, but in some cases, the initial attack occurs much later in life. Typically, episodes last 12 to 72 hours and can vary in severity. The length of time between attacks is also variable. Without treatment to help prevent attacks and complications, a buildup of certain protein deposits (amyloidosis) in the body’s organs and tissues may occur, which can lead to kidney failure.

How common is familial Mediterranean fever?

Familial Mediterranean fever primarily affects populations originating in the Mediterranean region, particularly people of Armenian, Arabic, Turkish, and Jewish ancestry. The disorder affects from 1 in 250 people to 1 in 1,000 people in these populations. It is less common in other populations.

What genes are related to familial Mediterranean fever?

Mutations in the MEFV gene cause familial Mediterranean fever. The MEFV gene provides instructions for making a protein called pyrin (also known as marenostrin), which is found in white blood cells. This protein is involved in the immune system, helping to regulate the process of inflammation. Inflammation occurs when the immune system sends signaling molecules and white blood cells to a site of injury or disease to fight microbial invaders and facilitate tissue repair. When this has been accomplished, the body stops the inflammatory response to prevent damage to its own cells and tissues.

Mutations in the MEFV gene reduce the activity of the pyrin protein, which disrupts control of the inflammation process. An inappropriate or prolonged inflammatory response can result, usually accompanied by fever and pain in the abdomen, chest, or joints.

Normal variations in the SAA1 gene may modify the course of familial Mediterranean fever. Some evidence suggests that a particular version of the SAA1 gene (called the alpha variant) may increase the risk of amyloidosis among people with familial Mediterranean fever.

Read more about the MEFV and SAA1 genes.

How do people inherit familial Mediterranean fever?

Familial Mediterranean fever is almost always inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.

In rare cases, this condition appears to be inherited in an autosomal dominant pattern, in which one copy of the altered gene in each cell is sufficient to cause the disorder and affected individuals often inherit the mutation from one affected parent. However, there are other possible explanations of this apparent pattern. A gene mutation that occurs frequently in a population may result in a disorder with autosomal recessive inheritance appearing in multiple generations in a family, a pattern that mimics autosomal dominant inheritance. If one parent has familial Mediterranean fever (with two mutations in the MEFV gene) and the other parent is an unaffected carrier (with one mutation in the MEFV gene), it may appear as if the affected child inherited the disorder only from the affected parent. This appearance of autosomal dominant inheritance when the pattern is actually autosomal recessive is called pseudodominance.

Where can I find information about diagnosis or management of familial Mediterranean fever?

These resources address the diagnosis or management of familial Mediterranean fever and may include treatment providers.

You might also find information on the diagnosis or management of familial Mediterranean fever inEducational resources and Patient support.

To locate a healthcare provider, see How can I find a genetics professional in my area? in the Handbook.

Where can I find additional information about familial Mediterranean fever?

You may find the following resources about familial Mediterranean fever helpful. These materials are written for the general public.

You may also be interested in these resources, which are designed for healthcare professionals and researchers.

What other names do people use for familial Mediterranean fever?

  • Benign paroxysmal peritonitis
  • Familial paroxysmal polyserositis
  • FMF
  • Hereditary Periodic Fever Syndromes
  • Mediterranean Fever, Familial
  • MEF
  • Periodic Disease
  • Periodic peritonitis
  • Recurrent polyserositis
  • Reimann periodic disease
  • Siegal-Cattan-Mamou disease
  • Wolff Periodic Disease

For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.

What if I still have specific questions about familial Mediterranean fever?

Where can I find general information about genetic conditions?

What glossary definitions help with understanding familial Mediterranean fever?

amyloidosis ; autosomal ; autosomal dominant ; autosomal recessive ; benign ; carrier ; cell ; complication ;familial ; fever ; gene ; immune system ; inflammation ; inheritance ; injury ; joint ; kidney ; molecule ;mutation ; population ; protein ; pseudodominance ; recessive ; sign ; symptom ; syndrome ; teenage ;tissue ; white blood cells

You may find definitions for these and many other terms in the Genetics Home Reference Glossary.

See also Understanding Medical Terminology.

References (13 links)

The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. See How can I find a genetics professional in my area? in the Handbook.

Reviewed: September 2008
Published: October 23, 2012

please also read: 

http://emedicine.medscape.com/article/330284-overview#showall

 
and here is some more information retrieved from: http://en.wikipedia.org/wiki/Familial_Mediterranean_fever

Familial Mediterranean fever

From Wikipedia, the free encyclopedia

Familial Mediterranean fever (FMF) is a hereditary inflammatory disorder[1]:149. FMF is an autoinflammatory disease caused by mutations in MEFV, a gene which encodes a 781–amino acid protein denoted pyrin.[2]

The disorder has been given various names including familial paroxysmal polyserositis, periodic peritonitis, recurrent polyserositis, benign paroxysmal peritonitis, periodic disease or periodic fever, Reimann periodic disease or Reimann’s syndrome, Siegal-Cattan-Mamou disease, and Wolff periodic disease.[3][4][5] Note that “periodic fever” can also refer to any of thePeriodic fever syndromes.

Epidemiology

FMF affects groups of people originating from around the Mediterranean Sea (hence its name). It is prominently present in the Armenian people, Sephardi Jews (and, to a much lesser extent, Ashkenazi Jews), CypriotsTurks and Arabs.[6]

[edit]Signs and symptoms

[edit]Attacks

There are seven types of attacks. Ninety percent of all patients have their first attacks before they are 18 years old. All develop over 2–4 hours and last anywhere from 6 hours to 4 days. Most attacks involve fever.[6]

  1. Abdominal attacks, featuring abdominal pain, affect the whole abdomen with all signs of peritonitis (inflammation of abdominal lining), and acute abdominal pain likeappendicitis. They occur in 95% of all patients and may lead to unnecessary laparotomy. Incomplete attacks, with local tenderness and normal blood tests, have been reported.
  2. Joint attacks mainly occur in large joints, especially in the legs. Usually, only one joint is affected. Seventy-five percent of all FMF patients experience joint attacks.
  3. Chest attacks include pleuritis (inflammation of the pleura) and pericarditis (inflammation of the pericardium). Pleuritis occurs in 40% of patients, and makes it difficult to breathe or lie flat, but pericarditis is rare.
  4. Scrotal attacks due to inflammation of the tunica vaginalis occurs in up to 5% and may be mistaken for acute scrotum (i.e. testicular torsion).
  5. Myalgia (rare in isolation)
  6. Erysipeloid (a skin reaction on the legs, rare in isolation)
  7. Fever without any of the other symptoms listed above (25%)

[edit]Complications

AA-amyloidosis with renal failure is a complication and may develop without overt crises. AA amyloid protein is produced in very large quantities during attacks, and at a low rate between them, and accumulates mainly in the kidney, as well as the heartspleengastrointestinal tract and thyroid.[6]

There appears to be an increase in the risk for developing particular vasculitis-related diseases (e.g. Henoch-Schönlein purpura), spondylarthropathy, prolonged arthritis of certain joints and protracted myalgia.[6]

[edit]Diagnosis

The diagnosis is clinically made on the basis of the history of typical attacks, especially in patients from the ethnic groups in which FMF is more highly prevalent. An acute phase response is present during attacks, with high C-reactive protein levels, an elevated white blood cell count and other markers of inflammation. In patients with a long history of attacks, monitoring the renal function is of importance in predicting chronic renal failure.[6]

A genetic test is also available to detect mutations in the MEFV gene. Sequencing of exons 2, 3, 5, and 10 of this gene detects an estimated 97% of all known mutations.[6]

A specific and highly sensitive test for FMF is the “Metaraminol Provocative Test (MPT),” whereby a single 10 mg infusion of Metaraminol is administered to the patient. A positive diagnosis is made if the patient presents with a typical, albeit milder, FMF attack within 48 hours. As MPT is more sensitive than specific, it does not identify all cases of FMF. Although a positive MPT can be very useful.[7][8]

[edit]Pathophysiology

Virtually all cases are due to a mutation in the MEFV gene on the sixteenth chromosome, which codes for a protein called pyrin or marenostrin. Various mutations of this gene lead to FMF, although some mutations cause a more severe picture than others. Mutations occur mainly in exons 2, 3, 5 and 10.[6]

The function of pyrin has not been completely elucidated, but it appears to be a suppressor of the activation of caspase 1, the enzyme that stimulates production of interleukin 1β, a cytokine central to the process of inflammation. In other words an ineffective pyrin doesn’t inhibit inflammation normally, resulting in inflammatory episodes of membranes at differing sites. It is not conclusively known what exactly sets off the attacks, and why overproduction of IL-1 would lead to particular symptoms in particular organs (e.g. joints or the peritoneal cavity).[6]

[edit]Genetics

Familial Mediterranean fever has an autosomal recessive pattern of inheritance.

The MEFV gene is located on the short arm of chromosome 16 (16p13). The disorder inherits in an autosomal recessive fashion. Therefore, two asymptomatic carrier parents have a 25% chance of a child with the disorder, a 50% chance of a child who is an asymptomatic carrier and a 25% chance of a child who does not carry the disorder. FMF patients who have children with a carrier or another FMF patient have a 50% and 100% chance, respectively, of having a child with FMF.[9][10]

There is one known case of an affected patient with only one parent who is a carrier. This is caused by a unique mutation on thesixteenth chromosome.

[edit]Treatment

Attacks are self-limiting, and require analgesia and NSAIDs (such as diclofenac).[6]

Colchicine, a drug otherwise mainly used in gout, decreases attack frequency in FMF patients. The exact way in which colchicine suppresses attacks is unclear. While this agent is not without side effects (such as abdominal pain and muscle pains), it may markedly improve quality of life in patients. The dosage is typically 1–2 mg a day. Development of amyloidosis is delayed with colchicine treatment. Interferon is being studied as a therapeutic modality.[6] Some advise discontinuation of colchicine before and during pregnancy, but the data are inconsistent, and others feel it is safe to take colchicine during pregnancy.[11]

Approximately 5-10% of FMF cases are resistant to colchicine therapy alone. In these cases, adding anakinra to the daily colchicine regimen has been successful.[12]

[edit]History

New York allergist, Dr Sheppard Siegal, first described the attacks of peritonitis in 1945; he termed this “benign paroxysmal peritonitis”, as the disease course was essentially benign.[13] Dr Hobart Reimann, working in the American University in Beirut, described a more complete picture which he termed “periodic disease”.[14][15]

In 1972, colchicine was discovered to prevent attacks.[16]

The link to the MEFV gene was discovered in 1997 by two different groups, each working independently – the French FMF Consortium,[9] and the International FMF Consortium.[10]

[edit]See also

[edit]References

  1. ^ James, William; Berger, Timothy; Elston, Dirk (2005). Andrews’ Diseases of the Skin: Clinical Dermatology. (10th ed.). Saunders. ISBN 0-7216-2921-0.
  2. ^ Chae JJ, Wood G, Richard K et al. (September 2008). “The familial Mediterranean fever protein, pyrin, is cleaved by caspase-1 and activates NF-kappaB through its N-terminal fragment”Blood 112 (5): 1794–1803. doi:10.1182/blood-2008-01-134932PMC 2518886PMID 18577712.
  3. ^ Dugdale III, David C; Jatin Vyas (2010-09-15). “Familial Mediterranean fever – PubMed Health”PubMed Health. National Centre for Biotechnology Information. Retrieved 2011-04-24.
  4. ^ Enersen, Ole Daniel. “Whonamedit – Siegal-Cattan-Mamou syndrome”Whonamedit? A dictionary of medical eponyms. Archived from the original on 2001-04-24. Retrieved 2011-04-24.
  5. ^ “Familial Mediterranean fever – Genetics Home Reference”Genetics Home Reference. U.S. National Library of Medicine. 2011-04-14. Archived from the original on 2011-04-24. Retrieved 2011-04-24.
  6. a b c d e f g h i j Livneh A, Langevitz P (2000). “Diagnostic and treatment concerns in familial Mediterranean fever”. Baillieres Best Pract Res Clin Rheumatol 14 (3): 477–498.doi:10.1053/berh.2000.0089PMID 10985982.
  7. ^ Barakat MH, El-Khawad AO, Gumaa KA, El-Sobki NI, Fenech FF (1984). “Metaraminol provocative test: a specific diagnostic test for familial Mediterranean fever”. Lancet 1(8378): 656–7. PMID 6142351.
  8. ^ Huppertz HI, Michels H (1988). “[The metaraminol provocation test in the diagnosis of familial Mediterranean fever]”. Monatsschr Kinderheilkd 136 (5): 243–5. PMID 3405225.
  9. a b The French FMF Consortium (1997). “A candidate gene for familial Mediterranean fever”. Nat. Genet. 17 (1): 25–31. doi:10.1038/ng0997-25PMID 9288094.
  10. a b The International FMF Consortium (1997). “Ancient missense mutations in a new member of the RoRet gene family are likely to cause familial Mediterranean fever”. Cell 90(4): 797–807. doi:10.1016/S0092-8674(00)80539-5PMID 9288758.
  11. ^ Michael O, Goldman RD, Koren G (August 2003). “Safety of colchicine therapy during pregnancy”Can Fam Physician 49: 967–9. PMC 2214270PMID 12943352.
  12. ^ Calligaris L, Marchetti F, Tommasini A, Ventura A (2008). “The efficacy of anakinra in an adolescent with colchicine-resistant familial Mediterranean fever”European Journal of Pediatrics 167 (6): 695–696. doi:10.1007/s00431-007-0547-3PMC 2292480PMID 17588171.
  13. ^ Siegal S (1945). “Benign paroxysmal peritonitis”. Ann Intern Med 23 (2): 234–47. PMID 18124924.
  14. ^ Reiman HA (1948). “Periodic disease. Probable syndrome including periodic fever, benign paroxysmal peritonitis, cyclic neutropenia and intermittent arthralgia”. J Am Med Assoc 136 (4): 239–44. PMID 18920089.
  15. ^ synd/2503 at Who Named It?
  16. ^ Goldfinger, S.E. (1972-12-21). “Colchicine for familial Mediterranean fever”. New England Journal of Medicine 287 (25): 1302. doi:10.1056/NEJM197212212872514.PMID 4636899.

[edit]External links

Breezy Says:

The treatment for any persons afflicted with the disease is a gout medication called colchicine. You can read up on the medication here:
In addition to the Colchicine, I recommend a regimen of ingesting Phoenix Tears Oil (hash oil made from the cannabis plant) by mouth in concert with smoking the plant to treat pain and juicing the fan leaves to decrease intestinal symptoms and increase appetite.

–Auto signature below–
Respectfully,
Breedheen O’Rilley Keefer
AKA Breezy Kiefair

links about breezy
blog

the more in depth, needs editing, 31 page version to help you understand why i sit at my machine fighting the machine day in and day out.
~ Do all that you can to cultivate peace within yourself, that it might
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~

Parody: Everybody was Kung Fu Fighting

Aye, yah! everybody was gettin in my face fighting, i explain my points as fast as lightning…. in fact I can be a little bit frightening… But I type with expert timing.

They were funky Canna men from funky Cannatown
hey were Marking them buds up and they were chopping them grows down
It’s an ancient Medicinal art and everybody knew their part
From a seed into a smoke, and toking from the bowl

everybody was gettin in my face fighting, i explain my points as fast as lightning…. in fact I can be a little bit frightening… But I type with expert timing.

There was wayward walkin Billy and big Tommy Chong
He said here comes the big boss, lets get it on
We took a bow and made a stand, started swinging with the hand
The sudden motion made me skip now we’re into a brand knew trip

everybody was gettin in my face fighting, i explain my points as fast as lightning…. in fact I can be a little bit frightening… But I type with expert timing.

everybody was gettin in my face fighting, i explain my points as fast as lightning…. in fact I can be a little bit frightening… But I type with expert timing.

“America” by Allen Ginsberg updated for the Occupation (with Ballad of the skeletons)

America” and “Howl” by Allen Ginsberg updated for the Occupation and “Ballad of the Skeletons” as he wrote it”

October 28, 2011

America

Breezy Kiefair

America I’ve given you all and now I’m nothing.
America seventeen dollars and forty two cents October 28, 2011.
I can’t stand my own mind.
America when will we end the human war?

go fuck yourself with your atom bomb, homeland security and martial law.
Go fuck yourself with your patriot act oppressing true patriots.
I don’t feel good don’t bother me.
I won’t write my poem till my muse gives me the words.
America when will you return and be angelic? This world I live in is like a twilight zone episode of America’s greatness of yore
When will you take the wool off of your eyes?
When will you look at yourself through the grave?

When will you open your eyes to the sick and dying? When will you see that we have value too? When will you correct the stress that kills disabled and working class alike?
When will you be worthy of your 99%
America why are your libraries full of tears?
America when will you transform your spending from defense of oil to your peoples survival?
I’m sick of your insane demands.
When can I go into the dispensaries and get the effective medication I chose over narcotic poison with the same money Uncle Sam is happy to spend on things that make me more ill & could kill me?
America after all it is you and I who are perfect not the next world.
Your machinery is too much for me.

Your human histories made me want to be a saint.
There must be some other way to settle this argument.
My husband has gone underground I don’t think he’ll come back it’s sinister.
Are you being sinister or is this some form of practical joke?
I’m trying to come to the point.
I refuse to give up my obsession.
America stop pushing I know what I’m doing.
America the wild horses let me in their circle, seems horses understand me better than people.
I haven’t read the newspapers for months, I can’t afford the subscriptions and everyday somebody goes on trial for murder. It just reminds me of my murdered kid and justice miscarried..
America I feel sentimental about wildlife and national parks.
America I used to be an nerd when I was a kid and I’m not sorry.
I smoke marijuana every chance I get.
I sit in my house for days on end and stare at the roses in the closet. While reading the free library that is the internet and sharing it with the world.
When I go to town I get supplies and never get laid.
My mind is made up there’s going to be trouble.
You should have seen me eating libraries.
My psychoanalyst thought my logic is perfectly sound and advised me to trust it.
I WILL say whatever prayer I feel like wherever I feel like saying it. Cannabis IS a religious sacrament and a valid use of my first amendment freedom of speech and religion America the constitution is beautiful with a built in process of beautiful change.
I have mystical visions and cosmic vibrations. I am not ashamed.
America I still haven’t told you what you did to Grandpa John after he came home from ‘Nam

I’m addressing you.
Are you going to let our emotional life be run by the mainstream media?
I’m obsessed by the mainstream media.
I read it every day.
Its pages stare at me every time I open my computer to get some human connection.
I read it in the homeless shelters, in the basement of the Tattered Cover Bookstore,

in the basement of the NYC Greyhound station,

in social clubs for the insane in Maine,

In the greyhound station of Cleveland,

in Michigan Libraries

and on back to Denver,

to Union Station.

And I read it still out here in the wild.

Surrounded by nature at the roof of the world where I feel a bit more safe..
It’s always telling me about responsibility. Bankers are serious. Businessmen are serious. Lobbyists are serious. Movie producers are serious. Comedians are serious. Everybody’s serious but me.
It occurs to me that I am America.
I am talking to myself again.

My country is rising against me.
I haven’t got a unemployed person’s chance.
I’d better consider my national resources.
My national resources consist of two joints of marijuana millions of minds
an unpublishable private literature that goes 1400 miles and hour and
99%’ers occupying my the ground.
I say nothing about my prisons nor the millions of underprivileged who live in
my flowerpots under the light of five hundred suns.
I have abolished the medicines that don’t work for me, and the GMO foods are next to go..
My ambition is to contribute to society despite the doctors saying I’m too sick for anything..

America how can I write a holy litany in your silly mood?
I will continue like Henry Ford my thoughts are as individual as his
automobiles more so if we planted hemp and made hemp oil returning to his original engine design we could stop worrying about oil.
America I will sell you all that I have just to survive.
America free Marc Emery
America save the Medical Marijuana Community & legalize
America we execute innocent too often they must not die.
America I am the 99%.
America you don’t really want to go to war.
America it’s them bad terrorists
Them terrorists them terrorists and them North Koreans. And them Terrorists.
The al Queda wants to eat us alive. The Al Queda‘s power mad. They wants to take
our cars from out our garages.

Oh my precious oil, must protect the precious oil…

when we can grow an oil far better on the land that is ours & should be so free.

They wants to squash Denver. They needs a edu-ma-cation. Ther wants our
auto plants to go to Siberia. Him big bureaucracy running our fillingstations.
That no good. Ugh.. Uncle Sam need big strong workmen at a wage guaranteed to make you weak..
Hah. Them make us all work massive overtime with no overtime pay as I watched my friend get laid off today. Help.
America this is quite serious.
America this is the impression I get from looking at the net and social media posts of your people.
America is this correct?
I’d better get right down to the job.
It’s true I don’t want to join the Army or turn lathes in precision parts in factories,

I tried factory work already, I’m nearsighted,chronically ill and psychologically unstable anyway.
America I’m putting my bisexual artists research obsessed shoulder to the wheel.

America

Allen Ginsberg

America I’ve given you all and now I’m nothing.
America two dollars and twenty-seven cents January 17, 1956.
I can’t stand my own mind.
America when will we end the human war?
Go fuck yourself with your atom bomb
I don’t feel good don’t bother me.
I won’t write my poem till I’m in my right mind.
America when will you be angelic?
When will you take off your clothes?
When will you look at yourself through the grave?
When will you be worthy of your million Trotskyites?
America why are your libraries full of tears?
America when will you send your eggs to India?
I’m sick of your insane demands.
When can I go into the supermarket and buy what I need with my good looks?
America after all it is you and I who are perfect not the next world.
Your machinery is too much for me.
You made me want to be a saint.
There must be some other way to settle this argument.
Burroughs is in Tangiers I don’t think he’ll come back it’s sinister.
Are you being sinister or is this some form of practical joke?
I’m trying to come to the point.
I refuse to give up my obsession.
America stop pushing I know what I’m doing.
America the plum blossoms are falling.
I haven’t read the newspapers for months, everyday somebody goes on trial for
murder.
America I feel sentimental about the Wobblies.
America I used to be a communist when I was a kid and I’m not sorry.
I smoke marijuana every chance I get.
I sit in my house for days on end and stare at the roses in the closet.
When I go to Chinatown I get drunk and never get laid.
My mind is made up there’s going to be trouble.
You should have seen me reading Marx.
My psychoanalyst thinks I’m perfectly right.
I won’t say the Lord’s Prayer.
I have mystical visions and cosmic vibrations.
America I still haven’t told you what you did to Uncle Max after he came over
from Russia.

I’m addressing you.
Are you going to let our emotional life be run by Time Magazine?
I’m obsessed by Time Magazine.
I read it every week.
Its cover stares at me every time I slink past the corner candystore.
I read it in the basement of the Berkeley Public Library.
It’s always telling me about responsibility. Businessmen are serious. Movie
producers are serious. Everybody’s serious but me.
It occurs to me that I am America.
I am talking to myself again.

Asia is rising against me.
I haven’t got a chinaman’s chance.
I’d better consider my national resources.
My national resources consist of two joints of marijuana millions of genitals
an unpublishable private literature that goes 1400 miles and hour and
twentyfivethousand mental institutions.
I say nothing about my prisons nor the millions of underpriviliged who live in
my flowerpots under the light of five hundred suns.
I have abolished the whorehouses of France, Tangiers is the next to go.
My ambition is to be President despite the fact that I’m a Catholic.

America how can I write a holy litany in your silly mood?
I will continue like Henry Ford my strophes are as individual as his
automobiles more so they’re all different sexes
America I will sell you strophes $2500 apiece $500 down on your old strophe
America free Tom Mooney
America save the Spanish Loyalists
America Sacco & Vanzetti must not die
America I am the Scottsboro boys.
America when I was seven momma took me to Communist Cell meetings they
sold us garbanzos a handful per ticket a ticket costs a nickel and the
speeches were free everybody was angelic and sentimental about the
workers it was all so sincere you have no idea what a good thing the party
was in 1835 Scott Nearing was a grand old man a real mensch Mother
Bloor made me cry I once saw Israel Amter plain. Everybody must have
been a spy.
America you don’re really want to go to war.
America it’s them bad Russians.
Them Russians them Russians and them Chinamen. And them Russians.
The Russia wants to eat us alive. The Russia’s power mad. She wants to take
our cars from out our garages.
Her wants to grab Chicago. Her needs a Red Reader’s Digest. her wants our
auto plants in Siberia. Him big bureaucracy running our fillingstations.
That no good. Ugh. Him makes Indians learn read. Him need big black niggers.
Hah. Her make us all work sixteen hours a day. Help.
America this is quite serious.
America this is the impression I get from looking in the television set.
America is this correct?
I’d better get right down to the job.
It’s true I don’t want to join the Army or turn lathes in precision parts
factories, I’m nearsighted and psychopathic anyway.
America I’m putting my queer shoulder to the wheel.


Ballad Of The Skeletons Lyrics by: Allen Ginsberg

Said the Presidential Skeleton 

I won’t sign the bill 

Said the Speaker skeleton 

Yes you will 

Said the Representative Skeleton 

I object 

Said the Supreme Court skeleton 

Whaddya expect 

Said the Miltary skeleton 

Buy Star Bombs 

Said the Upperclass Skeleton 

Starve unmarried moms 

Said the Yahoo Skeleton 

Stop dirty art 

Said the Right Wing skeleton 

Forget about yr heart 

Said the Gnostic Skeleton 

The Human Form’s divine 

Said the Moral Majority skeleton 

No it’s not it’s mine 

Said the Buddha Skeleton 

Compassion is wealth 

Said the Corporate skeleton 

It’s bad for your health 

Said the Old Christ skeleton 

Care for the Poor 

Said the Son of God skeleton 

AIDS needs cure 

Said the Homophobe skeleton 

Gay folk suck 

Said the Heritage Policy skeleton 

Blacks’re outa luck 

Said the Macho skeleton 

Women in their place 

Said the Fundamentalist skeleton 

Increase human race 

Said the Right-to-Life skeleton 

Foetus has a soul 

Said Pro Choice skeleton 

Shove it up your hole 

Said the Downsized skeleton 

Robots got my job 

Said the Tough-on-Crime skeleton 

Tear gas the mob 

Said the Governor skeleton 

Cut school lunch 

Said the Mayor skeleton 

Eat the budget crunch 

Said the Neo Conservative skeleton 

Homeless off the street! 

Said the Free Market skeleton 

Use ’em up for meat 

Said the Think Tank skeleton 

Free Market’s the way 

Said the Saving & Loan skeleton 

Make the State pay 

Said the Chrysler skeleton 

Pay for you & me 

Said the Nuke Power skeleton 

& me & me & me 

Said the Ecologic skeleton 

Keep Skies blue 

Said the Multinational skeleton 

What’s it worth to you? 

Said the NAFTA skeleton 

Get rich, Free Trade, 

Said the Maquiladora skeleton 

Sweat shops, low paid 

Said the rich GATT skeleton 

One world, high tech 

Said the Underclass skeleton 

Get it in the neck 

Said the World Bank skeleton 

Cut down your trees 

Said the I.M.F. skeleton 

Buy American cheese 

Said the Underdeveloped skeleton 

We want rice 

Said Developed Nations’ skeleton 

Sell your bones for dice 

Said the Ayatollah skeleton 

Die writer die 

Said Joe Stalin’s skeleton 

That’s no lie 

Said the Middle Kingdom skeleton 

We swallowed Tibet 

Said the Dalai Lama skeleton 

Indigestion’s whatcha get 

Said the World Chorus skeleton 

That’s their fate 

Said the U.S.A. skeleton 

Gotta save Kuwait 

Said the Petrochemical skeleton 

Roar Bombers roar! 

Said the Psychedelic skeleton 

Smoke a dinosaur 

Said Nancy’s skeleton 

Just say No 

Said the Rasta skeleton 

Blow Nancy Blow 

Said Demagogue skeleton 

Don’t smoke Pot 

Said Alcoholic skeleton 

Let your liver rot 

Said the Junkie skeleton 

Can’t we get a fix? 

Said the Big Brother skeleton 

Jail the dirty pricks 

Said the Mirror skeleton 

Hey good looking 

Said the Electric Chair skeleton 

Hey what’s cooking? 

Said the Talkshow skeleton 

Fuck you in the face 

Said the Family Values skeleton 

My family values mace 

Said the NY Times skeleton 

That’s not fit to print 

Said the CIA skeleton 

Cantcha take a hint? 

Said the Network skeleton 

Believe my lies 

Said the Advertising skeleton 

Don’t get wise! 

Said the Media skeleton 

Believe you me 

Said the Couch-potato skeleton 

What me worry? 

Said the TV skeleton 

Eat sound bites 

Said the Newscast skeleton 

That’s all Goodnight

 

Who We are, How We Came to Be, Why we Give back

Article I wrote that was published in Cannabis Health news Magazine February 2010

need proof that it was published (i know many of you do…http://cannabishealthnewsmagazine.com/PDF/CHNM_Feb2010_small.pdf )

The below piece is to be published in the next issue of Cannabis Health News Magazine whose editor is Jason Lauve. Jason was acquitted of all charges by a jury on August 6, 2009. He has been a tireless advocate for Medical Marijuana patients in Colorado before this date and since.
Kiefair Keepsakes…. How we came to be, Why we give back

Copyrighted material All Rights Reserved see message at the bottom of essay

I tell you this story, not for myself, but for those in similar situations without the strength or ability to speak.

The government of the United States and the State of Colorado (as well as other states) are all saving a ton of money due to the growth in the medical marijuana industry and so are the dispensaries and caregivers. As a patient caught in the middle, I decided that I may have a unique perspective on this issue and have decided to throw my two cents in on the topic.

If you listen to the news, it seems to be the government officials vs. the dispensary owners. here in Colorado. This should not be the case. The patients needs should be at the heart of this discussion, particularly the needs of low income medical marijuana patients on Social Security Disability and Social Security Income (SSD/SSI)

I posted much of the content you will read here all over the internet in an effort to help myself and others in my position. I sat in the online forums begging:

“Is there someone, anyone out there who hears my plea and wants to help me actually do something other than sit in online forums and complaining about the problem and hope someone does something”

I was heartbroken to find little positive response and a lot of negative/cruel responses by persons who clearly are recreational users and not medical users. The treatment of women in some of these cannabis forum rooms was often appalling. I finally decided to stop beating a dead horse and set up a store front to help me get the funds I need for my own medicine, food and other needs and to donate 10% of our profits to provide medical marijuana for free to low income patients in need. Currently we have only one dispensary signed on with us, GreenBelly Co-op LLC in Eldorado Springs, Co.

We encourage other dispensaries and caregivers to join with us in this effort. The funds to be donated will be held in trust and dispensed when/where they are needed according to the needs and location of the patient in question. A patient from your area would contact me, then I would contact you to confirm you have the stock necessary for the patient and to confirm availability of time, I would then deposit money for their medication into a paypal account owned by your dispensary. The patient could then come in and pick up their necessary medicine. I require no investment on your part. Patients would report on the quality of your medicine and I would then write their reviews and forward their recommendations (no names attached) on the net. Everybody wins. People who wish to provide money for the trust can purchase anything in my online gift-store or my personal catalog. 10% of my profits go to this fund. Hopefully a larger and larger percentage of profits will got to the trust when my personal finances allow me.

When I began to write the essay that I posted in the online forums, I decided that my joining the Medical Marijuana Registry was my Christmas Present to the American Taxpayer for the year 2009. And posted the title as “My Personal Christmas Gift to the American Taxpayer.”

Now, you may imagine me as the stereotype of a “stoner” that has been created by the media. Let me correct you
First of all, I am a female over 25 and under 40 with severe and debilitating Fibromyalgia, the kind that forces doctors to shake their heads and prescribe one ineffective man made medicine on top of another while I waste away and my quality of life diminishes. The onset of my symptoms began almost instantly after my birth in Canon City, CO and I have been fragile ever since. I’ve even been told by a doctor or two that may well have one of the worst Fibromyalgia cases on record. I was a ward of the State of Colorado until I ran away when I was 16 due to horrid abusive conditions within the state foster care program and completed my high school in another state.

My sole health insurance is provided to me is under medicare/medicaid. This is because I am completely disabled and the doctors do not allow me to work, or even to attend school. I assure you that this is only for the time being… I am getting stronger all the time!

In 1994, I was awarded Ginsberg Scholarship up at Naropa during the 20th anniversary festival. I dreamed for years of attending, but my health prevented it. I finally got stubborn and bullied my doctors into letting me go. I was accepted into and attended Naropa University for two semesters in 2007-2008 school year in an effort to get a degree that would give me access to jobs more suited to my bodies abilities, and was pulled out by my doctors both times. Naropa wanted me there, I wanted to be there, but government programs required I be enrolled a certain amount of credit hours (beyond the abilities of my body) in order to keep my funding. I attempted a semester at Grand Canyon University online in Fall 2008 to the same effect. Now I have many thousands of dollars in student loans I can’t pay because I attempted to get a degree so I could get a job my body could handle.

I was forced to be on government programs like Social Security Disability and Social Security Income (SSD/SSI) at a young age. I was in middle school when I was put on SSD/SSI for the first time while I was a ward of the State of Colorado.

Let me clarify, the first time I was put on disability, I was a minor and the State decided as my sole legal guardian to place me on disability. The state “adopted me” in a sense.My name was changed legally and my parents rights to me as a child were formally, legally and permanently terminated. None of it was not my choice (except the name change after years of foster care), it was not discussed with me, I was a child. My medical care as a child was much as it is now, with the exception of the fact that kids get a bit more coverage. Being on the program at a young age, I did not accumulate much in the way of work money in my SSI account, although I did attempt to work several times. Unfortunately every time, an employer or doctor would get tired of me being sick and put a stop to it one way or another. That is why my monthly amounts from SSI/SSD are so low, not because I am disabled, but because I couldn’t work to pay into the system like the people who receive these benefits only when they reach retirement after a full life of paying in. Also did you know the government actually Penalized people for getting married if you are both on disability? They treat you as one person and give you one person’s pay! For love, and for spiritual reasons I decided that was a risk I would just have take. So, I married my love who happened to be on disability also anyway.

Now I ask the members of the Government of the Great State of Colorado, if you had an adult child who was sick and suffering would you leave them to languish in pain and poverty just because it was no longer your legal responsibility? Of course you wouldn’t. You would do whatever was in your power to make your child as comfortable as possible.

As an adult child, I now boldly but humbly step up to my adopted parent, the Government of the State of Colorado, and ask, “Guardian Colorado, do you it intend to focus on the dispensaries who are the money in this discussion, or do you intend to focus on your citizens whose LIVES are being saved by this plant? You discuss care giving so much in this debate, but the treatment of patients on the part of many in this debate has proven differently. I know you have hearts, please use them as you consider these policies. This shouldn’t be a partisan issue. This should be a people issue.

Before I was placed on the Colorado Medical Marijuana Registry in June 2009, I would have to visit a doctors office several times a month, sometimes several times a week, sometimes with several appointments booked the same day with specialists and tests, painful and difficult physical therapy that seemed to harm more than hurt, etc., and there were to many trips to the emergency room to count.

I went to the ER out of sheer desperation, I went just so I could get comfortable enough to have a bit of sleep after a week or more of lingering in a painful place that seemed to be located in deep within the realm of a narcotic distorted pain haze, a no-where-land that seemed to be somewhere between life and death. The doctors in the emergency room and elsewhere often treated me as though I was an addict, and not a pain patient, AND I WAS MISERABLE!

Since I was approved for the medical marijuana registry I haven’t needed near the amount of services from the medicaid/medicare program. In fact, I’ve had to see a doctor twice since June 3, 2009 when the doctor signed my forms.

Once to have 14 teeth pulled, a little bit of dental work made necessary by a combination of years of no dental benefits unless my teeth couldn’t be saved and needed to be pulled, being on narcotics for almost a decade, and dealing with severe nausea/vomiting/malnutrition.

The other doctor visit (and medications that followed) were for a bad cold that I caught at the dentists office. I haven’t seen a doctor at all otherwise, although I do call my family doctor to check in and let her know I am doing well.

Before I was on the MMJ registry, I was on so many medications (20 plus medications taken at various intervals though the day) that I felt like I was taking a pill every 2 minutes…. Number of traditional prescriptions I take daily now – ZERO.

Now the government was paying for all those medications I was on before through medicare/medicaid, plus all the doctor visits to get, maintain, and change dosing on those prescriptions right? Some of those medications by themselves cost the government thousands of dollars a month! Many could not have refills on them by law and required a doctor visit every time I needed more.

I always felt guilty about my personal burden on the American Taxpayers. But now I don’t have to feel guilty cause I have given a present to the American Taxpayer. I got on the MMJ registry. Now I do not go to the mainstream doctor unless I need antibiotics. I am off all prescriptions. I had tobacco quit (been trying for 20 years to quit) until I was without medicine too long and got stressed out, but I plan to quit again.

I and am well enough to manage a website as well as volunteer and be an advocate for others in need. I have regularly traded my services in clerical/computer work either from home or in the GreenBelly Coop LLC office for medications when I am strapped for cash. All of these things would have been impossible for me nine short months ago when I was all but bedridden and and in so much pain I had to keep myself from overdosing.

The government is saving many thousands of dollars a month on me alone, and yet I have to struggle to obtain this money saver for the American taxpayer. That much cut in government spending on the part of an individual… I should get a medal or something. Now think how many individuals are saving the government this money in the State of Colorado alone…. Let alone the other 13 states and the District of Columbia! We all need medals or medicine at the very least!

How many others are there like me? Meanwhile, the price of my medicine increases as the MMJ movement grows. My family and I have been stuck having to make really hard decisions like, do we pawn our wedding and engagement rings to get my medicine? Or do we pawn them and buy some food? Or do we keep the rings for sentimental reasons, lay here and just starve and have seizures from pain and lack of medicine/food.

I ended up pawning all the rings, having already sold else of value to the pawn store and bought both medicine and food. The money I received for my treasured bands did not buy nearly enough of either medicine or food. We promised ourselves we would get them back, but I ended up crying my eyes out when I realized I just can’t afford to get them out of hock. The deadline to get them back passed weeks ago. I live in a Winnebago and have been in real danger of starving to death at times. Now don’t get me wrong, my life has been profoundly changed by this medicine, and any hardship I may have to endure is truly worth the benefits of this plant. I will not compromise and go back to the narcotics and other prescriptions just because I can get them paid for or for any other reason. I would rather be in pain when I am without my medical marijuana than take a morphine and get sicker.

Sometimes family members and the community can make it very hard to be a low income medical marijuana patient too. I have heard many stories of people not living with family/friends any longer because they are shunned for their medicinal use. I’ve experienced this shunning first hand myself. The stereotype of the “typical” marijuana user is further damaging these people with no where else to turn!

This herb is profoundly changing lives! It is healing people, body, mind, and soul. Yet its legal users get treated as if they are using it for recreation. I believe recreational use is a VALID use of the plant, further I feel it be legalized and would be an important source of revenue for America if it were to be legal once again. However, that is not why I personally NEED this plant.

This plant allows me to eat, to sleep, to get out of my bed, to manage my pain enough to have a job, to be involved with life instead of living in a nightmare world just praying for the end to come soon. If you happen to be a Fibromyalgia patient praying for the end, you can be praying for a long time as this is not a terminal disease.

The Mayo clinic website (see footnote 1) describes symptoms of Fibromyalgia as including

Signs and symptoms of fibromyalgia can vary, depending on the weather, stress, physical activity or even the time of day.
Widespread pain and tender points
The pain associated with fibromyalgia is described as a constant dull ache, typically arising from muscles. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
Fibromyalgia is characterized by additional pain when firm pressure is applied to specific areas of your body, called tender points. Tender point locations include:

Back of the head, Between shoulder blades, Top of shoulders, Front sides of neck, Upper chest,Outer elbows, Upper hips, Sides of hips, Inner knees

Fatigue and sleep disturbances
People with fibromyalgia often awaken tired, even though they seem to get plenty of sleep. Experts believe that these people rarely reach the deep restorative stage of sleep. Sleep disorders that have been linked to fibromyalgia include restless legs syndrome and sleep apnea.
Co-existing conditions
Many people who have fibromyalgia also may have:

Chronic fatigue syndrome
Depression
Endometriosis
Headaches
Irritable bowel syndrome (IBS)
Lupus
Osteoarthritis
Post-traumatic stress disorder
Restless legs syndrome
Rheumatoid arthritis

And a whole host of other conditions not on the Mayo clinic list.

Moder Western medicine can’t even agree on the causes/mechanisms of this disease because they don’t understand it.

It has been suggested that this is a psychological disease only, a psychosis created when a hypocondriac hears about fibromyalgia. The advocates of this theory say that the symptoms of this diesease are all in the patient’s head. I do not personally believe in this theory, but even if this disease is all in my head, the medical marijuana still helps.

Other sources on Fibromyalgia suspect that this disease has been around for all time, a genetic disease with a trigger, and its symptoms are found even in individuals of remote tribes of Africa and the Amazon who have no contact with the west. So why should I use new untested man-made medicine created by people who don’t understand my disease and possibly believe it doesn’t exist? Especially when that disease has been treated with herbs known to posses pain relieving qualities for many generations of humans?

Personally, my last completely “pain free” moment was around 3:30 PM on August 21, 2002. I know because I keep a detailed pain/medication journal in an effort to regulate my condition. I am confident that If I had the proper medicine, I would have pain free moments again. This herb doesn’t just treat pain sensations, it helps correct causes. Perhaps with the right regimen, daily pain could be a thing of the past for me.

This disease itself may not kill you, but it can certainly make you wish for death. There are near epidemic levels of Fibromyalgia patients and pain patients in general who are hurting so bad they are suicidal, or worse succeed in taking their own life. I have a brother who died as a result of a doctor who wasn’t paying enough attention with his pen and prescription pad. After years of pain and suffering following a head injury, my brother died of a drug interaction prescribed by his doctor.

Dispensaries are necessary, but not without a social conscience
Now the other side of the coin. It is no secret that the people who own dispensaries are making money on patients like me too.

We need these dispensaries for a variety of reasons.
1)What would a patient do if their caregiver had a bad crop and was without medicine? If that paitent was restricted from seeing other caregivers they would have no where to get their medicine but the street.
2) Our caregivers are restricted to a number of plants they can grow for you, thus if you become tolerant to the genetics of one strain of medicine quickly and need to change the genetics of you medication often, it may be difficult for your caregiver to have/maintain the variety you need.
3) Competition strengthens customer service and prevents patients from being in a form of bondage by their caregiver. If we restrict patients from going to other dispensaries, how are they to know if the medicine they are receiving is the best quality available for them. If we restrict the number of persons a dispensary can serve to a tiny number and prevent patients from seeing other medical marijuana providers, and in addition the number of times a year they can change their caregiver, then patients must settle for whatever medicine a particular caregiver is giving them whether it is effective or not.

We need a program to help low income patients get their medicine!
If you are low income and can’t afford your “mainstream pharmacy” medicine, you can go to various organizations and they will help you to buy your medicine, sometimes even on a regular basis if they are necessary and not covered by insurance, but that doesn’t include medical marijuana.

If you are brave enough to speak up and ask for help getting your medicine at these organizations, you will probably find the door closed firmly in your face. You may also find that other services from the organization become difficult or impossible to obtain as well. This is out and out discrimination in my opinion. If your medicine is MMJ no one is willing to help you unless you happen to be lucky enough to find a care giver who actually gives a care if you have medicine or not! I just put my medical costs on a new food stamp application mailed 1/13/09 to Boulder County. We shall see what happens.

“So what,” you say? Well let’s look at this… The high price can force a person in my position to go back to buying their medicine off the street where it is less expensive, but also less potent, less safe.

1)You never know what has been added to you herb to increase the genetically weak herbs potency artificially with other street drugs or various substances to make it seem as though there is more weight to the medicine.

2)It is much more dangerous to obtain, and the process of obtaining it can be a risk to your health in many ways. Long periods in the cold and encounters with strange germs can put a person right back in their sick bed or the hospital.

3) The money spent on street grade medication often goes back to fund gang and criminal activity. This is something that most medical marijuana patients do not want to support and got on the registry to stop supporting. I personally counted avoiding purchasing on the street as one of the largest pluses to getting on the registry, and yet I see people like me being forced back there.

4) The price of cannabis on the street directly influences the costs of Medical Grade in the Dispensaries. In this respect, Cannabis is a commodity like any other, and as such is subject to price fluctuation when artificially influenced. It doesn’t really have anything to do with how much it costs to grow it and transport it to the patient. It has to do with how much it costs on the street.

What is to be done if you have no medicine? Where can you go?

There are few funds or organizations willing to help people like me get my medicine when I can’t afford it, and you have to really dig in your need to find them. When I did find them, they could only help once or not at all due to the demand. Many patients do not have the strength for this search when they are lacking appropriate medication. It took me months of daily web crawling to dig any up organizations up. Now people who wish to help provide medicine to people in this position can buy something for themselves or someone else, something they may have bought anyway and someone gets medicine.

If someone who has medicine/money wants to help a person in my position, likewise there is no way for a person who wants to help to donate money to people in a position similar to mine. Right now low income persons only relief seems to be individuals/churches/caregivers being kind. So I created this gift company, and here we are.

One church I know of is greenfaith ministry. The Reverend of greenfaith ministry is also known as the 420 Reverend. I have had contact with Reverend Brandon Baker from this organization who is a great man. He drove over 50 miles to get me some medicine for free. Unfortunately he is one man and the demand is high. Rev. B Baker is quoted as saying, “Tell the (Denver City my edit) counsel a majority amount of local churches support un-regulated access for all needy mmj patients, give them my name and number if they say they want to meet with any of the spiritual mmj community church leaders!”

Meds for free? What about Caregivers and Growers needs?
Now, I have no problem with the idea of paying for my medications… The person who grows it provides a service that a dollar amount really can’t be placed on and should be compensated, and so should everyone involved in getting the medicine to me. That is only fair. But I want know the money I spend helps others like me or at very least the movement in general. I also don’t need to be paying 50+% of my income to stay barely comfortable. I’d like to be able to pay a reasonable percentage of my income and have all the medicine my body requires. I know that may seem a little unrealistic, but a girl in pain can dream. lol

Here in Colorado it is the wild wild west right now. If I happen to have to go somewhere other than my primary caregiver, my $ will probably end up in a growing bank account of some green gold rush eyed caregiver who could really care less if I have effective medication or not. In fact, it seems like the only green anyone cares about is dollar bill green and the green of greed. Yet the right to visit a dispensary other than your caregiver is a necessary one. What happens if your caregiver loses a grow? What do you do if you need a different strain of medicine than what is available that day? What if they are out of the product that helps the most? Would you refuse to let me go to W@(m@rt if W@lgr33ns was out of my prescription?

So the government ignores the money it saves, and many (not all) of the dispensaries in the area seem to have little social conscience about the price a person like me can pay to have their medicine.

A Big social Problem, and Yet We aren’t the Issue, money is.
When your total family income is at or below poverty levels, you can absolutely be forced back on the streets to get your medicine. My medical condition requires a minimum of 1/8 oz of smoke-able every 2 days to just to keep me off narcotics and other prescriptions that do more harm than good, not crying, not having seizures caused by pain, and not be stuck in bed.

This dosing by no means keeps me comfortable it is important to note.
I have NEVER had the pleasure of having enough medicine on hand to decide on what a good “comfortable” dosing schedule would be, even though I do have a compassionate caregiver. I just don’t want to put my poor caregiver out of business taking care of my needs.

What I am trying to say is that there is something fundamentally very wrong with the fact that there are so many people who are to poor to even know what the appropriate dosage of medication for their amount of pain, yet the government is saving a bunch of cash and the Medical Marijuana industry is getting the “lion’s share” of the rest of their income.
It is frustrating to feel like you and others are falling through the cracks even further. Many in my position were barely hanging on before the economic downturn, and now see no light at the end of the tunnel. SSI/SSD keeps you far below the poverty line if you have been unable to work enough many living on $1000 a month or less for their whole family.

It is frustrating to see others get wealthy off of you and others while your tier of society starves. Sometimes I feel invisible, and I know for a fact I am not the only one out there feeling this.
Why do the out of state interests get a louder voice than ours?
I was born in the State of Colorado. My family has lived in this state for 4 generations (or more.) My grandmother owned and operated the Historic Stirrup Ranch near Canon City, Co. for many years. I love Colorado, but I live in an RV and am so desperate to be in a place where I can have food and medicine that I am willing to move to any state with a registry because the climate here is so difficult for patients right now.
I have a plan so that if I were able to obtain some land, I could be self sufficient (NO MORE SSI/SSD and I could actually contribute to charities instead of needing help from them!) and never have to worry about being hungry or without my necessary medicine. In time, many others could be helped with food and medicine grown on the land. I could be fulfilling needs rather than begging to have my needs filled.

Kiefair Keepsakes, stepping stone to a dream

My dream is to be able to get some land and set up an initial grow op in earth ships (a growing movement of building practices with an all environmentally friendly building/management philosophy.) This initial grow op would end up growing into a Nonprofit Medical Marijuana retreat/community/caregiver for patients like me to be able to get their medicine and/or live in a more affordable and kind setting, using their personal talents and abilities to benefit the community. I want to focus on what a “disabled person” can do, not their limitations. I want to create a place where it is safe to be sick on a daily basis with no fear of hunger, lack of medication, or fear of the loss of a job/home due to illness.

While I have the heart and the ability to do this work (given time and medication), I unfortunately have no capital for such a venture and am praying the universe will see fit to make it happen.
I have researched many aspects of this and it is very feasible, however getting investment in such a venture is not my forte. This kind of setting would be great tool for a “for profit” dispensary to use. It would be publicity, demonstrate social conscience, and you could also offer my nonprofit medications cheap to their own low income patients. inquire further at kiefair.keepsakes@gmail.com

I just wanna say Thanks to all the people out there helping to make it possible for people who need this medicine to have it. Whatever you celebrate this or any season, may it be meaningful and may Blessings come to you all!

footnote 1 Retrieved from the Mayo clinic website 1/12/2009
http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=symptoms

Copyright 2009,2o10 by Breezy Keefer, owner Kiefair Keepsakes All Rights Reserved
Please copy and redistribute with attribution of source!

hey, vote me up on miss high times please!!! 10 is high, 1 is low

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