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Category Archives: Compassionate Moms
It Kills Cancer | Greenfaith Ministry
It Kills Cancer | Greenfaith Ministry
http://greenfaithministry.com/blog/cannabis-kills-cancer/
It Kills Cancer
[MUST BE ADULT TO USE SITE]
FREE PDF BOOK about CANNABIS AND CANCER.
Breezy Keifair is a patron and has as much experience with Cannabis Oil as the Rev. She has given us permission to embed her tutorial works here if interested in healing on your own. In addition to being an oil expert, Breezy is a longtime cannabis activist, artist, and writer. Show some love by heading over to her blog and leaving some thanks for her work!
First, for beginners, here’s a FAQ:
https://kiefair.com/2012/10/29/faqs-about-phoenix-tears-therapy-for-the-beginner/
An In-Depth Look at Making Cannabis Cure Oil Easily at Home (set to The Wall!)
The “Large Batch” Method:
https://kiefair.com/2013/05/25/how-to-make-phoenix-tears/
How to Make Cannabis Oil Without Alerting the Neighbors!
https://kiefair.com/2014/03/10/how-to-make-cannabis-cure-oil-without-alerting-the-neighbors/
A powerful Youtube Playlist full of good info on Cannabis Oil / Phoenix Tears!
7 Responses to “It Kills Cancer”
BY BREEZY KIEFAIR FEBRUARY 13, 2015 – 8:43 PM
I am so honored that The oil making method I perpetuate (taught by Ronnie Lee Smith {RIP 2014} was awarded athishigh honor by having these links to the method added here as an outreach education for anyone with the will to learn to make the oil.
The #1 topic I get personal messages and calls about? My oil making methods and questions related to the treatment.
I have been with Greenfaith for many years, sometimes a quiet supporter, sometimes I donate, but in the beginning I was among the needy being helped by the good folks at Greenfaith. These links will lead you to my website and much more information. tons of links within links to read. The information is free to anyone willing to read it. Get some raw materials, and make a batch. You might just save the life of a loved one, give them more time than the doctor thinks, or at very least increase the quality of life as its quantity dwindles. I am honored by the words on this page that speak about me of course, but what really matters is passing on the method. Anecdotal evidence is so important in a climate where little real research is being done. This group of whole plant compounds is a healer of many ills. Learn to make it, feed your soul, then feed the oil to a sick loved one and watch them come back a ways from the precipice of death we all must fall from one day.
Pebbles, thank you for your kind words. It’s been a long hard road for me personally, but if the fruit of that road is giving the method I learned to empower the sick, then every step was worth it.
Thanks to Bill Bartlett and Rev Baker for honoring my oil making master, his method and my changes to it to customize it for smaller batches.
Reply
BY REV B BAKER FEBRUARY 14, 2015 – 3:35 PM
Yes breezy is a good oil maker, we have been donating material to her on and off since 2008; for her to make oil for herself and others! Praise and blessings through greenfaith!
Reply
BY DAVE CASSELL JUNE 5, 2015 – 3:36 AM
i love the lord and his people…i will be visiting now that i know he’ll be there…he always shows up in the smoke
Reply
BY HARRY HOUSTON OCTOBER 26, 2015 – 8:13 PM
I had an opportunity to spend some time with Rev Brandon Baker And several members of the Greenfaith Ministry; it was a true honor to meet people that are so dedicated to helping the sick that they put their personal freedoms on the line to do so.
The good people at Greenfaith Ministry make Holy Healing Oil derived from the Holy Cannabis Plant. And give it to the people who need it. The good people at Greenfaith Ministry have an impressive list of healing ranging from simple scratches to cancer.
How can this be anything less then Gods work?
I urge you to check out the Greenfaith Ministry and all the good they are doing.
Reply
BY BREEZY KIEFAIR NOVEMBER 19, 2015 – 11:15 PM
Yes, I’m a patron of greenfaith, I’m also fragile with my health. I’m willing to help anyone who needs it. It’s best to connect with me on Facebook, same user name or through my website kiefair.com
Reply
BY DIANA SEPTEMBER 29, 2016 – 2:57 AM
Such a good cause in life, to do the right thing to help and heal the sick. Thank you so very much for your courage and faith.
Reply
BY SANCHO GRACIA PEDRO JANUARY 29, 2017 – 6:14 AM
I want to specially thank Rick Simpson for saving my wife’s life with his healing oil. some years back my wife Rose was diagnosed with a deadly disease cancer of the lungs, we try all medication all to no avail, we also try to do the oil our selves but we were doing more harm than worse. until I saw a post on face book on how the cannabis oil had cured a cancer patient, I quickly emailed the mail: rev.420@greenfaithministry.com from that very moment we just have to give it a trier, instantly we got a reply from him asking us what the exact cancer problem that my wife Rose has….. He calculated the dosage for us, i think the dosage he calculated was 60 grams of the oil which we ordered plus 30 grams maintenance and also have body lotion and soap. He told us that if we need the donation we must meet the church elder(s)/leader(s) in person then pick it up or have it delivered, my wife Rose started the medication immediately just after a month of using Rick Simpson cannabis oil (FECO, RSO, HOLY HEALING OIL, etc), Rose is now free from cancer problem, she is living a healthy life my utmost priority of sharing this short testimony is for those that are suffering from my kind of cancer diseases or if your friend or family members are suffering from this deadly disease, please don’t die in silence there is a cure for your cancer today don’t waste anytime further you have to email some one for Rick Simpson Oil directly and save your live and the lives of others
Email: rev.420@greenfaithministry.com
Sacramental Herb Church, the 1st Fed & State Approved CannaChurch in the USA
Growing With Your Support
Audio Player
…PLEASE Know and Distribute our CHURCH FLYER (Front) AND CHURCH FLYER (Back). Here is Our leader’s interview inspiring the First Church of Cannabis. This is our ONE and ONLY ONE Sacramental Herb Prayer. Here is our 2009 Press Releaseand 2010 Press Release. Our 1st CannaSacrament info (2003-06).
…REMEMBER Our services are funded through donations from patients, patrons and community supporters. Greenfaith Ministry is also a branch of the ONAC (for their religious cannabis use/training), and a religious charity organization. If on FaceBook go here for the CHURCH FACEBOOK Page.
**Dont Forget ALL donations to Greenfaith will automatically provide FREE Assistance to those in Need.

The Greenfaith community supports a wide range of outreach programs, including:
- low income programs* #fuckcancer #cannabiskillscancer
- sacrament for church members and the financially challenged*
- food donations to shelters, families and the homeless*
- Hemp cannabis awareness events and presentations
*At this time, these programs are available only to members in Colorado
Special Gift for those pledging $100/mo
The Church thanks all who donate at this level with a retreat in Avon, Colorado, right off I-70 in the middle of the ski resorts. Yes, there are smoking rooms available. 😉
We supply the lodging at our time-share, you do the rest! Thank you so very much for your support for our Church outreach!
- Christie Lodge
- Christie Lodge – Room
- Christie Lodge – Hot Tub
- Christie Lodge – Fireplace
Choosing your Monthly Pledge
Basic Membership
Monthly Pledge: $4.20
Six months: Church documents
One year: Special event invite (See “Preparing the Soil” for an invite to the Donor Party.)
Preparing the Soil
Monthly Pledge: $10
Initial: Church documents
Six months: Greenfaith T-shirt, special gift
Planting the Seed
Monthly Pledge: $15
Initial: Church documents
Six months: Greenfaith T-shirt & Electric Sacrament Device
Watering the Plants
Monthly Pledge: $25
Initial: Church documents, Greenfaith T-shirt
Six months: Special Gift & Herb Sacrament Device
Harvest the Herb
Monthly Pledge: $50
Initial: Church documents, Greenfaith T-shirt
Six months: Special Gift & Bubbler Sacrament Device
Trimming the Buds
Monthly Pledge: $75
Initial: Church documents, Greenfaith T-shirt, Electric Pipe
Six months: Special Gift, Special Greenfaith T-shirt & Herb Sacrament device
Healing the Sick
Monthly Pledge: $100
Initial: Church documents, Greenfaith T-shirt, Electric Sacrament Device
Six months: FREE WEEK Vacation
Questions?
send a pm through facebook to this profile
email: breezyorilley@gmail.com
snail mail:
Bréedhéen O’Rilley Keefer
P.O. Box 849
Franktown, Colorado 80116
Protect Colorado Springs Home Grows
Protect Colorado Springs Home Grows by: Audrey Hatfield
How many registered cannabis patients do you think live in Colorado? How many refugees have given up their former lives to pack up and move here for access to medical cannabis? How many people in general utilize cannabis in some form or another in our state? There are approximately 108,000 registered cannabis patients and out of that many, how many of you have a clue as to what is happening in some city’s across Colorado regarding your rights as a cannabis patient? Very few.
Back in 2012 when the Amendment 64 campaign was rearing its ugly head, I was against it for several reasons. Not because I’m a selfish bitch that didn’t think everyone deserves access to cannabis, it was because, it was and is, a garbage piece of legislative prohibition, designed to benefit our government in the form of higher tax dollars, in disguise as “legalization.” We were all assured by 64 supporters that “medical would not be affected.” A64 was nothing but “legal lies” and too many people lapped it up as “progression” and “baby steps” towards “legalization.” “Regulation works,” “Regulate like alcohol.” Bullshit, all of it, as predicted!
Let’s forget about Amendment 64 for a minute and before you chastise me for using the term “medical cannabis,” there is a difference. That difference is, Amendment 20 and those of us that rely on cannabis as our medicine. For us, it’s not about just “getting high.” And no, I don’t have anything against anyone that does. Cannabis should be available to us all, but not this way. Not thru Amendment 64.
Right now, right under your noses we are slowly being made criminals once again. The MED is “recommending” to all jurisdictions to limit plant counts. One by one, city by city, slowly, Amendment 20 is being blown off by Colorado government officials, in part because of the fact that we have rec and rec generates more tax funds. You might think that it doesn’t matter because we “have A64”. But it does.
In a recent article in local paper the “Gazette Telegraph,” Colorado Springs City Council proposed ordinance 16-52, on May 10, that was signed by Mayor John Suthers, just a few days after on May 13.
In a nut shell, this ordinance (above,) is making it criminal to grow more than 12 plants per household without regard to the fact of ones plant count recommendation (Read above links). Yes, you heard it, it will be CRIMINAL! You will be a CRIMINAL, for exercising your rights under Amendment 20. Pay attention to what this will mean for patients here and eventually in the entire state.
https://coloradosprings.gov/sites/default/files/051016_personal_cultivation_ordinance_16-52.pdf
Colorado Springs is a home rule municipality and basically what that means, is they can make their own rules. HOWEVER, when it comes to this situation they can not decide how many plants a patient is allowed to have! What the fuck? Why is this happening? Amendment 64. Why isn’t it being stopped? Greed and ignorance.
All patients with higher plant counts will be affected, however, the patients that will be hurt the most are some of the many children whose parents moved here to treat their childrens rare illnesses with cannabis. Two of the families that will be affected and turned into criminals if arrested, will be Moms, Rebecca Lockwood and Marisa Kiser. Because of their childrens high plant counts and the negative impact it would have on their childrens health, Rebecca and Marisa, sprung into action. They decided to set up a meeting with City Council to get some answers and find compassion for all patients and spear headed an email campaign to Springs City Council.
Rebecca fears for the health and well-being of her child Calvin, as he has a plant count of 73 to treat his femoral retroversion, a debilitating abnormality, affecting the lower extremities.
http://www.aafp.org/afp/2003/0801/p461.htmlhttps://www.youtube.com/watch?v=T8OYxQq7mIE Marisa Kisers son Ezra, just turned 4 and went in hospice when he was just 3. He suffers from violent seizures and at one time, had an unexplained onset of dystonia so severe that he broke 8 bones in one year. He has a 72 plant count. These are just 2 of the families that will be affected by this bullshit.
It was in a May 31 meeting that the Moms were told by the council members in attendance that, “The limited plants counts are just the beginning, a ban will be placed on all home grows, not just here, but thru out the state.” This very phrase was confirmed the beginning of June from council members in a separate meeting between members of council and member Bridget Serrit, of the newly formed organization, Colorado Patient Rights Coalition
108 million patients and only a handful of you are or have been getting involved with the blatant disregard of our rights. This is going to affect you! Understand what it means! Get off of your asses and stand up for yourselves or bow down to your rights being stepped on by our local politicians. We all need to come together in force and show them that this will not be tolerated! Coming together in numbers will have greater impact and that is what it will take. This WILL happen in your town next, you need to be aware and know your rights as a patient.
Whether you grow or not, what can you do? First, research and familiarize yourselves with Amendment 20 and any laws regarding medical access in Colorado. Send emails to your local government officials that are implementing these laws. Call and leave them a brief, yet detailed message. Stand up for your rights! If you are available during the day, attend any protest about the matter that you see being advertised. Protests are being set up right now in Colorado Springs in front of Mayor Suthers office in Colorado Springs, on a monthly basis. The organization also has started a petition that as patients, you should sign.
https://www.facebook.com/events/266481020371172/https://www.change.org/p/colorado-state-house-keep-it-legal-colorado If you have paperwork to support your plant count recommendation, continue to grow that plant count. If police come to your home, DO NOT, under any circumstances, allow them access inside your home without a search warrant. DO NOT speak to the police. Record audio if they are in your home or at your door. DO NOT be swayed by the scare tactics they will try to use to get you to take a plea deal if you are arrested. You can and will win your case! It has been done! Now more than ever, is the time to get involved! Strength in numbers! Stand up!
http://www.westword.com/news/medical-marijuana-patient-bob-crouse-acquitted-another-wasteful-prosecution-5859198http://www.dailycamera.com/boulder-county-news/ci_16965794
http://gazette.com/jury-returns-not-guilty-verdict-in-mmj-case/article/140056Audrey Hatfield
Former Founder and President of C4CPR
Medical Cannabis Patient and Colorado Activist
Write to city council allcouncil@springsgov.com
Questions?
send a pm through facebook to this profile
email: breezyorilley@gmail.com
snail mail:
Bréedhéen O’Rilley Keefer
P.O. Box 849
Franktown, Colorado 80116
Green Living in Red State 2014 Election
“Green” living in a Red State after 2014 Elections
By: Verde Loneowl
As a 5th Generation Dallasite the youngest of 3 girls. Life was good all was well with the Earth. Daddy, said when General Eisenhower was elected .. don’t ever elect one of those Republicans, “you can’t make any money when they are in charge” was what he said … It has always stuck. The Fear of the GOP was instilled into my brain at a young age.
Sick and disabled since 1995 with some sort of AutoImmune disorder after our Vacation to Lake Tahoe .. the cancer followed after a long IM injection therapy for Lyme Disease with Rochephin. The IM injections were about a year in duration. If you have no experience with Lyme disease, I encourage you to watch the documentary film
“Under Our Skin”
About 8-10 years ago I went to the dermatologist in Bryan, Texas, Terry Jones, MD, to have a biopsy on a bump on the nape of my neck. A few days later I went in to have a mole removed from my back. The new doctor in the practice called to give me the lab results. “The mole on your back was benign. Oh but the other one is Squamous Cell Carcinoma.” Thanks so much. Never returned to Dr. Terry Jones’ office.
One of my friend’s Judy Greer, RN, her dad was being treated for Squamous Cell Carcinoma at the same time. Chemo was extremely difficult. My choice … let it kill me and tell NO ONE. So to spare my family the pain of knowing cancer was diagnosed decided to live what was left on God’s time. God’s time was very important to me as my daddy was a Deacon and my mom was an Officer in the Women Missionary Union of The Southern Baptist Church, Pleasant Grove Baptist Church in Dallas, Texas. We were a strong church family. This was the only decision in my mind. As I knew the chemo killed you and radiation causes cancer. So I decided to quit cutting my hair.
So we all went on about our life as if nothing was wrong with anyone in my family. When a sore would come up a trip to the Family DO and get it frozen, no more biopsy’s … as the little bumps are quite painful. squamous Cell Carcinoma is inside the blood stream.
In 2013 hearing that Medicinal Cannabis would be given in the State House of Representatives (to find your local representative’s contact information for Texas, please click here). I anxiously awaited the Texas Senate Committee hearing live feed for Medical Cannabis for Texas! The Cannabis Oil would cure cancer! The Federal Government had a Patent! Many who are sent home to die are not dying!! Oh my goodness! Soon I could begin treating with Cannabis Oil!! The doctor’s in California had been on the Morning Shows saying juice the leaves for the health benefits since 1995 … what was happening … the elected officials were so rude to those there to testify! How could this be? Not voted out of Committee?? They did not know Cannabis Oil cured cancer? Oh no now what?
Screaming out loud at the television … my husband awoke to ask “What was wrong?” I explained no way would we get Medical in 2013. My heart had sunk. The death sentence was looming closer. Still my family did not know cancer was inside me. My hubby was about to find out but did not know how to tell him.
Medical Cannabis denied by Texas Law Makers. Texas has no way to put anything onto the ballot by Petition. All laws must be done during Session and they only meet every other year! Oh my goodness … what now? Educate.
(Need to know how a bill gets introduced and passed in Texas? please click here http://www.house.state.tx.us/about-us/bill/) how a bill is done in Texas the People are not involved only those elected.
As Facebook connections were already available using those connections of people who were already in the states who had medical Cannabis and by January 2014 we had states Legalizing Cannabis for Recreational use! Texas was 20 years behind! Oh my goodness!! Networks started happening .. Noticing people were sending me Friend Requests connecting with people who were using this plant across the Planet! Not just in America but around the world people were making Cannabis Oil. Some of the stories were not happy endings, many have died while waiting to be Legally Healed. Some are being Illegally Healed. More about that another day. Once my story of Cancer came out on Facebook … along with my story about Cannabis was medicine for over 100 diseases until 1937… “they” found me. Not sure how “they” found me but “they” did. So many have taught me so much! First thing I didn’t know Sugar feeds Cancer. When they do the PET scan to see the Cancer… they shoot sugar-water into you and it lights up the cancer. Thinking Sugar was be the most difficult for me to give up. It was not. 1 week off sugar. Now I use Raw Honey in my coffee. Buying Organic food only when I can find it. We are not too healthy in my area. We do all we can to do it correctly.
If you would like to read up on the how and why cannabis can heal so many things, please click here
I can’t remember how many lesions or how often. I remember the last one … was very painful .. up above the hair-line on the base of my neck, it took a long time for him to get that one. It was frightening. It was close to the base of my skull closest one to my brain and my spinal column. I knew my time was getting closer to leave my family.
2013-2014 was spent learning the good and the bad things about this Highly Unregulated Industry. Many countries are growing hemp. The Stalks and roots are left and these are sent to China as Industrial Hemp Waste. The Chinese processed the hemp stalks and the roots into industrial hemp waste paste and pack it into drums and sell it this product. Desperate parents unable to get medicine for babies and the medicine they were using was Industrial Hemp Waste Products from China should be no THC high CBD no high for the babies oh NO!! It takes time to expose people who are doing things wrong. Right away seeing this people desperate for medicine were being railroaded into trying snake oil. Babies were sick and hospitalized. At that time my own illness had to be placed on the back burner and someone had to save the Children! It had to be me! Oh my goodness!
I Found myself on a forum Children using Cannabis, CBD, sites on Facebook or Scam sites to protect as many as could be protected. Names are found quickly and you may no longer be able to see what is happening in the bad part. The Stanley Brothers in Colorado Springs area are using the Federal Government and the Hemp Farm Act to try to provide CBD Hemp Oil to children with seizures.
More information on the scams of the “Realm of Caring”
Charlatan’s Web: A CBD Debacle
Snake Oil: History repeats itself
Problem not enough THC the oil quits working for the children and they begin to have break through seizures. The parents in Legal Cannabis States can supplement the THC that is needed. Those who allowed CBD Only or Limited bills are not BEING SERVED! It is broken and not working! Even the high CBD comes from the leaves and flowers of the Cannabis Plant not a hemp plant. Each strain has different ratios of CBD/THC/CBG/THCa there are hundreds of compounds. Cannabis makes flowers and leaves … Hemp provides very little useable compounds as there are no flowers for industrial products hemp oil, hemcrete, cloth, paper, art, and other industries. The new Charlotte’s Web has changed from Cannabis hybrid with R4 hemp to get the CBD up and the THC down. That was then! Now the Stanley Brothers are providing Charlotte’s Web HEMP OIL! Please you must educate and protect as there are no safeguards other than each state’s laws. Right now not one of the bills in the CBD only states are currently working, at this time to my knowledge. Know many of these parent warriors.
an article on THC and THCa Helping a little girl with her seizures click here
First let me assure you the high is … you feel good. It is not like a drunk. If you have not experienced a “high” you should try it before your worry about your child might be high. Many parents should be reading the “Side Effects” of the Pharma… Phenobarbital (INN) or phenobarbitone (BAN) is( a long-acting barbiturate and the most widely used anti-seizure medication globally. It has sedative properties, but as with other barbiturates, benzodiazepines are more commonly used for this purpose. Anyone else think these lab created, doctor prescribed drugs are a bad idea for children? Some of the AED Seizure meds can cause DEATH as a side effect! Cannabis Oil, ZERO deaths. You can not die from too much Cannabis it never passes the part of the brain that controls your heart or lungs… Just how smart is that?? God made this plant perfect in every way! The Plants come from Seed and it is here for our health and well-being. Sun Grown is the best method as it provides Oxygen in to the air for us to breathe! But if you can not grow legally you can use a closet and grow your plants for your medicine! It is so important for everyone who can grow to please grow and share this gift with others, in a safe manner.

A new study suggests alcohol is more harmful than heroin or crack
MOST people would agree that some drugs are worse than others: heroin is probably considered to be more dangerous than marijuana, for instance. Because governments formulate criminal and social policies based upon classifications of harm, a new study published by the Lancet on November 1st makes interesting reading. Researchers led by Professor David Nutt, a former chief drugs adviser to the British government, asked drug-harm experts to rank 20 drugs (legal and illegal) on 16 measures of harm to the user and to wider society, such as damage to health, drug dependency, economic costs and crime. Alcohol is the most harmful drug in Britain, scoring 72 out of a possible 100, far more damaging than heroin (55) or crack cocaine (54). It is the most harmful to others by a wide margin, and is ranked fourth behind heroin, crack, and methamphetamine (crystal meth) for harm to the individual. The authors point out that the model’s weightings, though based on judgment, were analysed and found to be stable as large changes would be needed to change the overall rankings
chart courtesy of: http://www.economist.com/blogs/dailychart/2010/11/drugs_cause_most_harm
This movement started decades ago. In the meantime we will be dreaming of another place where we can have the Right to Pursue Happiness and Freedoms while healing my body of cancer and disease! We have several Groups of Texans who want to see Cannabis Medicine. Connecting together on Facebook to be ready to go into Austin when the Session begins 2015. We have circled the Wagons to get our selves together and we are waiting for others to join us!
As more main stream news agency’s are interviewing these parents and patients who are healing across America. Hoping those who read this story will contact Texas Elected officials … if you use this medicine you can not come to Texas. Children and adults must leave Texas in order to cure the illnesses with Cannabis Oil. My goal is for Not One more Texan have to move away for Cannabis Oil. Hoping we can gather more help from the Grass Root efforts.
Choosing to be a Non-Dues paying member to anyone’s group. I dab (pun) some from all of the Facebook groups. Just not sure which ones to trust and which ones to not trust. Many are “Grass Roots” until you get on the Cash Cow … as Cannabis … Marihauna … Pot … Weed and other products can change your outlook.
For those who understand Extraction Methods … my personal preference for Cancer treatment is Flowers and Leaf with a full Organic Grain Alcohol Extraction. The cancer treatment is hard and fast but nothing like Chemo. People usually sleep, eat and enjoy life. Please if you can Grow do Grow and share this wonderful Cannabis Oil with others often!!
Extractions, grows, and other illegal activities are not being conducted at my home. Waiting on the laws to change. We must be ready!
It’s been a short 12 since the Elections … Much is happening in Texas and America … as we get ready to head into the 2015 Session. Texas only meets every other year so if Texas is doing anthing like a Compassionate Care Act Texans must unite regardless of party lines. Compassion knows no party lines.
Earlier this week Rice Univsersity’s, Baker Institute department of Drug Policy provided a Program called “Is Texas Ready for Medical Marihauna?” It was very informative but was a bit weak … sometimes when you work in an area so long you loose sights… Like at the very beginning the news source quoted “Texas Tribune” is a gop rag ran by the very attorney’s representing Governor Perry in a Felony Indictment in Texas. It is definitely, a red rag flying and spreading the news of the gop around. Not a reliable source but are there really any reliable sources?
It’s almost 2 hours long. Ann Lee, with Republican’s Against Marijuana Prohibition has more going on in the Houston area! We are so thankful for Ann who is works long and hard to End Prohibition.
Florida which received 58% of the vote for Medical Cannabis Initiative but 60% was required for a ballot to pass. Florida also had filed a limited bill! Thankfully, it lost in court so it’s back to the drawing board for Florida! Saving states from more bad law is very difficult with people like the Stanley Brother’s from Colorado. The science is in that CBD only does not work without THC. So more bad laws are in place for 2014 and not one is working. The only Compassionate Acts working are using Whole Cannabis Plant based medicine in 23 states and DC.
http://www.orlandosentinel.com/news/os-charlottes-web-rules-tossed-out-20141114-story.html
Educating those in the Republican Party who hasve taken such a hard hard stance against Cannabis as Medicine will make it hard but not impossible. Texans state wide must make an effort to contact their elected officals if we are to Make it Happen in 2015!! We are working at doing just that in Texas! Texas is a large state and networking together regardless of our affliations must be bipartisan! The Compassionate Cannabis Care Act will be over one of the largests numbers of people to date! We have many in Texas who will benefit from this Legislative Action. This is about Personal Freedom. Freedom! We can no longer allow the Republican Party to use Religion to Stop Cannabis when Cannabis is a Gift from our God/Creator. You can not be Pro-Life and be for Prohibition. It just does not work.
http://www.texasgop.org/wp-content/uploads/2014/06/2014-Platform-Final.pdf
Alexis Bortell, age 9 is one of DFW Normal’s Poster Children for Medical Cannabis. We have 4 in all but they represent over 85 families not counting the ones we have already sent into other States for Compassionate Care. Alexis’s dad is a Disabled Vet and her mother is as well! Whole Plant is all we can accept in Texas after seeing every bill in 2014 fail to work with a CBD only and no THC or limited amounts. Alexis has already been to Colorado and has her Red Card for treatment. She is a Texas Girl and wants to stay in Texas. She does not want to live in Colorado. Quite frankly wonder if some in Colorado are a little tired of us sending our sick and disabled there! Texas is losing money every day we do not have laws on the books in Texas for Full Compassionate Care as well as Legalization for Freedoms. Alexis, spoke at the DFW Marihuana March in October. They estimated over 5000 people in attendance, during the Ebola scare! Thinking that was a good thing. The police departments in both Dallas and Frisco had no problems with our Peaceful March’s to bring about the truth! If you are not on the Cannabis’ side you are on the wrong side of History! End Prohibition Nationwide and Free the POW’s. Leaving no one behind. As you can see from this video the Employee’s of the State of Texas working for Represenative Scott Turner, appear to have little regard for a young 9 year old girl. They shot the finger at her! A 9 year old in front of TV Camera’s from Channel 33 in DFW area. Someone said the Video put up by the station when shared was removed from Facebook. As I live a long way from the DFW area was not there in person. This video pretty much sums it up … we are peacefully asking for our Freedom and being ignored by the Republican Elected Officals. We see this as a Public Health Issue which is not being addressed by our State Legislature and across the Bible Belt. Pleople must Stand Up with us! Contacting your elected officials at both the State and National level!
The saddest thing is Cannabis … never hurt anyone. The Lies about this plant have harmed many! If you can grow … grow and share with those who can not. Onelove
Remember in Texas you can only effect change by swaying your legislators!
Find your state representatives: http://www.house.state.tx.us/members/find-your-representative/
Find your state senators:
http://www.senate.state.tx.us/75r/Senate/Members.htm#FYI
Find your Federal Level Senators and Representatives
https://www.govtrack.us/congress/members/TX
Hemp Seed and Hemp Seed Oil ~ a superfood, but not a cancer cure…
Hemp Seed and Hemp Seed Oil
~ a superfood, but not a cancer cure…
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Not to be confused with hash oil.
Is Hemp SEED oil the same as the cannabis cure oil?
NO! they are produced in entirely different methods from different parts and even different sexes of the plant!!! While I do recommend people cook with hemp seed oil whenever possible, It is not the cure for cancer. It is “health food” because its 3:1 ratio of omega-6 to omega-3 essential fatty acids, which matches the balance required by the human body. If you need more protein, I suggest eating raw shelled hemp seeds. Any vegetarian having trouble getting enough protein in their diet should buy some. A serving of 3 tablespoons packs 10 grams of protein.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
__________
What is Hemp Seed Oil?
__________
Bottles of hempseed oil
Hemp oil or hempseed oil is obtained by pressing hemp seeds. Cold pressed, unrefined hemp oil is dark to clear light green in color, with a pleasant nutty flavour. The darker the color, the grassier the flavour.
Refined hempseed oil is clear and colorless, with little flavor and lacks natural vitamins and antioxidants. Refined hempseed oil is primarily used in body care products. Industrial hempseed oil is used in lubricants, paints, inks, fuel, and plastics. Hempseed oil has found some limited use in the production of soaps, shampoos and detergents. The oil is of high nutritional value because its 3:1 ratio of omega-6 to omega-3 essential fatty acids, which matches the balance required by the human body.[1] It has also received attention in recent years as a possible feedstock for the large-scale production of biodiesel.[2][3] There are a number of organisations that promote the production and use of hempseed oil.[4]
Hemp seed oil (right)
Hempseed oil is manufactured from varieties of Cannabis sativa that do not contain significant amounts of THC, the psychoactive element present in the cannabis plant. This manufacturing process typically includes cleaning the seed to 99.99% before pressing the oil. There is no THC within the hempseed, although trace amounts of THC may be found in hempseed oil when plant matter adheres to the seed surface during manufacturing. The modern production of hempseed oil, particularly in Canada, has successfully lowered THC values since 1998.[5]Hash oil, not to be confused with hempseed oil, is used for both medicinal and recreational purposes and made from the mature female flowers and leaves of the drug cannabis, thus having a much higher THC content. Hash oil should not be confused with hemp, as the modern usage of the word ‘hemp’ is reserved for plants that meet the legal requirement of containing 0.3% THC or less.[citation needed]_____________________________
Nutrition
About 30–35% of the weight of hempseed is an edible oil that contains about 80% as essential fatty acids (EFAs); i.e., linoleic acid,omega-6 (LA, 55%), alpha-linolenic acid, omega-3 (ALA, 22%), in addition to gamma-linolenic acid, omega-6 (GLA, 1–4%) andstearidonic acid, omega-3 (SDA, 0–2%).
The proportions of linoleic acid and alpha-linolenic acid in one tablespoon per day (15 ml) of hempseed oil easily provides human daily requirements for EFAs. Unlike flaxseed oil, hempseed oil can be used continuously without developing a deficiency or other imbalance of EFAs. This has been demonstrated in a clinical study, where the daily ingestion of flaxseed oil decreased the endogenous production of GLA.[6]In common with other oils, hempseed oil provides 9 kcal/g. Compared with other culinary oils it is low in saturated fatty acids.[7]Highly unsaturated oils, and especially poor quality oils, can spontaneously oxidize and turn rancid within a short period of time when they are not stored properly; i.e., in a cool/cold, dark place, preferably in a dark glass bottle. Hempseed oil can be frozen for longer periods of storage time. Preservatives (antioxidants) are not necessary for high-quality oils that are stored properly.
Hempseed oil has a relatively low smoke point and is not suitable for frying. Hempseed oil is primarily used as a food oil and dietary supplement, and has been shown to relieve the symptoms of eczema (atopic dermatitis).[8]Benefits
Hemp is a high protein seed containing all nine of the essential amino acids (like flax). It also has high amounts of fatty acids and fiber as well as containing vitamin E and trace minerals. It has a balanced ratio of omega 3 to 6 fats at around a three to one ratio. This won’t help correct your omega balance if it’s off, but it gives you the right balance to start with.
Further the protein content of the hemp seed is supposed to be very digestible. Many people noted their personal experience of finding that hemp seed protein did not cause bloating or gas, like some of their whey, or other protein shakes did.
And, get this, unlike soy which has super high amounts of phytic acid (that anti-nutrient that prevents us from absorbing minerals), hemp seed doesn’t contain phytic acid. At the very least, this makes hemp seed a step up from soy.
The Body Ecology Diet site has an article discussing hemp here.
It contains a list of benefits including what I mentioned above plus including some others as well.
Hemp contains:
* All 20 amino acids, including the 9 essential amino acids (EAAs) our bodies cannot produce.
* A high protein percentage of the simple proteins that strengthen immunity and fend off toxins.
* Eating hemp seeds in any form could aid, if not heal, people suffering from immune deficiency diseases. This conclusion is supported by the fact that hemp seed has been used to treat nutritional deficiencies brought on by tuberculosis, a severe nutrition blocking disease that causes the body to waste away.3
* Nature’s highest botanical source of essential fatty acid, with more essential fatty acid than flax or any other nut or seed oil.
* A perfect 3:1 ratio of Omega-6 Linoleic Acid and Omega-3 Linolenic Acid – for cardiovascular health and general strengthening of the immune system.
* A superior vegetarian source of protein considered easily digestible.
* A rich source of phytonutrients, the disease-protective element of plants with benefits protecting your immunity, bloodstream, tissues, cells, skin, organs and mitochondria.
* The richest known source of polyunsaturated essential fatty acids.
This article claims that because hemp’s protein is in the globulin edistin form it is a superior source of protein. It ends that thought with this paragraph.
“The best way to insure the body has enough amino acid material to make the globulins is to eat foods high in globulin proteins. Since hemp seed protein is 65% globulin edistin, and also includes quantities of albumin, its protein is readily available in a form quite similar to that found in blood plasma. Eating hemp seeds gives the body all the essential amino acids required to maintain health, and provides the necessary kinds and amounts of amino acids the body needs to make human serum albumin and serum globulins like the immune enhancing gamma globulins. Eating hemp seeds could aid, if not heal, people suffering from immune deficiency diseases. This conclusion is supported by the fact that hemp seed was used to treat nutritional deficiencies brought on by tuberculosis, a severe nutrition blocking disease that causes the body to waste away. [Czechoslovakia Tubercular Nutritional Study, 1955] “
reference for above centered “benefits section):
http://www.thenourishinggourmet.com/2009/03/hemp-seed-nutritional-value-and-thoughts.html
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[edit]Wood finish
Hemp oil is a “drying oil”, as it can polymerize into a solid form. Due to its polymer-forming properties, hemp oil is used on its own or blended with other oils, resins, and solvents as an impregnator and varnish in wood finishing, as a pigment binder in oil paints, as a plasticizer and hardener in putty. It has uses similar to Linseed oil and characteristics similar totung oil.[9]click here for reference information for the above hemp seed oil portion of the post
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Is there a difference between Hemp and Cannabis?
Yes and no… Hemp generally refers to either the male plant or the portions of the plant used for their fiber. Cannabis generally refers to the female plant and the portions of the plant used for it’s psychoactive and healing effects.
Merriam-Webster definitions of Hemp and Cannabis:
noun ˈhemp
1
b : the fiber of hemp
c : a psychoactive drug (as marijuana or hashish) from hemp
2
: a fiber (as jute) from a plant other than the true hemp;
also: a plant yielding such fiber
Origin of HEMP
Middle English, from Old English hænep;
akin to Old High German hanaf hemp,
Greek kannabis
First Known Use: before 12th century
_____________________________
Origin of CANNABIS
Latin, hemp, from Greek kannabis; akin to Old English hænephemp
First Known Use: 1783
_____________________________
Author’s note ~ there is so much more to know on the origin of the word Cannabis!!!
If you do your homework on cannabis well,
you should have come across kaneh-bosim (Hebrew קְנֵה-בֹשֶׂם)
The anthropologist Sula Benet did a lot of work
on the etymology of this word and it’s association
with Old Testament biblical recipe for
Holy Anointing Oil given in Exodus 30:22-25.
The term sweet calamus was mistranslated
and put in place of Kaneh-Bosim
when King James of england commissioned a new translation (circa 1604-1611).
_____________________________
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Other nutritional concerns for Cancer Patients
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Foods to avoid to heal Cancer more effectively:
Red meat and refined sugars are a bad idea. If you have a sweet tooth, try to stay away from the white sugar and any sugars that have been through a lengthy refining process. Natural sugars such as honey or molasses and naturally occurring sugars in fruit are a good option. As I said in the introduction to this article, If you need more protein, I suggest eating raw shelled hemp seeds. Any vegetarian having trouble getting enough protein in their diet should buy some. A serving of 3 tablespoons packs 10 grams of protein!
_____________________________
Red Meat
_____________________________
A March 2012 study from Harvard School of Public Health (HSPH) researchers has found that red meat consumption is associated with an increased risk of total, cardiovascular, and cancer mortality. The results also showed that substituting other healthy protein sources, such as fish, poultry, nuts, and legumes, was associated with a lower risk of mortality.
_____________________________
Refined Sugar
_____________________________
n 1931, German biologist Otto Heinrich Warburg won a Nobel Prize for his research into the causes of cancer. In his studies, Warburg found that cancerous tumors fueled their growth through the metabolism of glucose — digested sugar. Although some scientists rejected Warburg’s theories for many decades, recent studies have drawn connections between different types of cancer and refined sugar intake.
Insulin Resistance and Cancer
The pancreas works with your digestive system to produce the hormone insulin, which aids in the metabolism of glucose. When you eat carbohydrates, the pancreas automatically releases insulin to help break the carbs down into glucose to fuel your cells. If you are insulin-resistant and eating a diet of primarily high-glycemic foods, your pancreas becomes overworked and cannot keep up with the demand for insulin, allowing glucose to build up in your bloodstream. Insulin resistance increases your risk of several diseases, including Type 2 diabetes, heart disease and some cancers. To prevent cancer, the World Cancer Research Fund and the American Institute for Cancer Research recommended against consuming sugary beverages and snacks in a 2007 report.
Research into Specific Cancers
Many later studies have shown a direct connection between insulin resistance, high-glycemic diets and certain types of cancer. In a study of more than 2,500 women published in the “Annals of Oncology” in 2001, the findings supported a connection between insulin resistance and breast cancer development. Another study published in the “American Journal of Epidemiology” in 2006 followed 16,000 Norwegian men for 27 years and found insulin resistance to be a predictor of prostate cancer. An analysis of a study conducted in Italy from 1986 to 1992 published in the “Annals of Oncology” in 2008 drew a link between high-glycemic diets and thyroid cancer risk.
http://www.livestrong.com/article/465680-refined-sugar-cancer/#ixzz2B0y79ySl
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endnote: a top-shelf bud asked me to create this excerpt from the FAQ’s about Phoenix Tears Therapy for the Beginner post. She makes the most beautiful hempwork necklaces. Here is a collage of pieces that I own created by the an artist from Ohio, Ms. Katarina Marie of Grateful Hemp
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Respectfully,
Breedheen O’Rilley Keefer
AKA Breezy Kiefair
links about breezy
blog
http://misshightimes.com/users/breezykiefair
on youtube
http://www.youtube.com/user/Mr8MrsKiefAir?feature=mhsn
art “like” page on FB
http://www.facebook.com/pages/The-Art-of-Breezy-Kiefair/154533251224064
fb profile
http://www.facebook.com/breezy.kiefair
@breezykiefair
the short 4 page version:
http://www.scribd.com/doc/64585079/My-Personal-Christmas-Present-to-the
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Related articles
- FAQ’s about Phoenix Tears Therapy for the Beginner (kiefair.com)
Questions?
send a pm through facebook to this profile
email: breezyorilley@gmail.com
snail mail:
Bréedhéen O’Rilley Keefer
P.O. Box 849
Franktown, Colorado 80116
Familial Mediterranean Fever ~ a Rare genetic disease
I do not look like I have a single drop of Mediterranean blood in me, so why do i care about this rare genetic disorder? Because the color of skin is only skin deep. Because despite the pale appearance of my exterior, I have the genetic ancestor from that part of the world who handed me this recessive trait. Because I have this disease and have to live with it…
I care because I need to repost the links as many times as possible in hopes that those related to me by blood will heed my warning and look for signs of the disorder in the kids…. I have made no secret of the fact that I am far estranged from my biological family, so I turn to electronic means to spread the word.
There is no cure, but the treatment does help….. There is no cure, but knowledge that there is indeed something wrong and that I am not a hypochondriac is soothing to the mind…. There is no cure, but it sure as hell does explain a lot about both myself and my blood relatives… BOTH my parents had to have the recessive gene in order for me to have this disorder. Both my parent’s sets of siblings may also be carriers of these recessive traits…. ALL of my blood siblings (half or full blooded) are POTENTIAL carriers of the defect…. Therefore, ALL of my blood nieces and nephews are potential victims of the disease as well as their children. It is my hope that those in my family will stumble upon this post and then value the family’s future generations enough to spread this information to where it may be of use (i emailed it directly to those whose email addresses I possess in my bloodline)
the below information was retrieved from: http://ghr.nlm.nih.gov/condition/familial-mediterranean-fever
What is familial Mediterranean fever?
Familial Mediterranean fever is an inherited condition characterized by recurrent episodes of painful inflammation in the abdomen, chest, or joints. These episodes are often accompanied by fever and sometimes a rash. The first episode usually occurs in childhood or the teenage years, but in some cases, the initial attack occurs much later in life. Typically, episodes last 12 to 72 hours and can vary in severity. The length of time between attacks is also variable. Without treatment to help prevent attacks and complications, a buildup of certain protein deposits (amyloidosis) in the body’s organs and tissues may occur, which can lead to kidney failure.
How common is familial Mediterranean fever?
Familial Mediterranean fever primarily affects populations originating in the Mediterranean region, particularly people of Armenian, Arabic, Turkish, and Jewish ancestry. The disorder affects from 1 in 250 people to 1 in 1,000 people in these populations. It is less common in other populations.
What genes are related to familial Mediterranean fever?
Mutations in the MEFV gene cause familial Mediterranean fever. The MEFV gene provides instructions for making a protein called pyrin (also known as marenostrin), which is found in white blood cells. This protein is involved in the immune system, helping to regulate the process of inflammation. Inflammation occurs when the immune system sends signaling molecules and white blood cells to a site of injury or disease to fight microbial invaders and facilitate tissue repair. When this has been accomplished, the body stops the inflammatory response to prevent damage to its own cells and tissues.
Mutations in the MEFV gene reduce the activity of the pyrin protein, which disrupts control of the inflammation process. An inappropriate or prolonged inflammatory response can result, usually accompanied by fever and pain in the abdomen, chest, or joints.
Normal variations in the SAA1 gene may modify the course of familial Mediterranean fever. Some evidence suggests that a particular version of the SAA1 gene (called the alpha variant) may increase the risk of amyloidosis among people with familial Mediterranean fever.
Read more about the MEFV and SAA1 genes.
How do people inherit familial Mediterranean fever?
Familial Mediterranean fever is almost always inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.
In rare cases, this condition appears to be inherited in an autosomal dominant pattern, in which one copy of the altered gene in each cell is sufficient to cause the disorder and affected individuals often inherit the mutation from one affected parent. However, there are other possible explanations of this apparent pattern. A gene mutation that occurs frequently in a population may result in a disorder with autosomal recessive inheritance appearing in multiple generations in a family, a pattern that mimics autosomal dominant inheritance. If one parent has familial Mediterranean fever (with two mutations in the MEFV gene) and the other parent is an unaffected carrier (with one mutation in the MEFV gene), it may appear as if the affected child inherited the disorder only from the affected parent. This appearance of autosomal dominant inheritance when the pattern is actually autosomal recessive is called pseudodominance.
Where can I find information about diagnosis or management of familial Mediterranean fever?
These resources address the diagnosis or management of familial Mediterranean fever and may include treatment providers.
- Gene Review: Familial Mediterranean Fever
- Gene Tests: Familial Mediterranean Fever
- MedlinePlus Encyclopedia: Familial Mediterranean fever
- MedlinePlus Encyclopedia: Secondary systemic amyloidosis
You might also find information on the diagnosis or management of familial Mediterranean fever inEducational resources and Patient support.
To locate a healthcare provider, see How can I find a genetics professional in my area? in the Handbook.
Where can I find additional information about familial Mediterranean fever?
You may find the following resources about familial Mediterranean fever helpful. These materials are written for the general public.
- MedlinePlus – Health information (3 links)
- Genetic and Rare Diseases Information Center
– Information about genetic conditions and rare diseases
- Additional NIH Resources – National Institutes of Health (2 links)
- Educational resources – Information pages (3 links)
- Patient support – For patients and families (2 links)
You may also be interested in these resources, which are designed for healthcare professionals and researchers.
- Gene Reviews
– Clinical summary
- Gene Tests
– DNA tests ordered by healthcare professionals
- ClinicalTrials.gov
– Linking patients to medical research
- PubMed
– Recent literature
- OMIM
– Genetic disorder catalog
What other names do people use for familial Mediterranean fever?
- Benign paroxysmal peritonitis
- Familial paroxysmal polyserositis
- FMF
- Hereditary Periodic Fever Syndromes
- Mediterranean Fever, Familial
- MEF
- Periodic Disease
- Periodic peritonitis
- Recurrent polyserositis
- Reimann periodic disease
- Siegal-Cattan-Mamou disease
- Wolff Periodic Disease
For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.
What if I still have specific questions about familial Mediterranean fever?
Where can I find general information about genetic conditions?
The Handbook provides basic information about genetics in clear language.
- What does it mean if a disorder seems to run in my family?
- What are the different ways in which a genetic condition can be inherited?
- If a genetic disorder runs in my family, what are the chances that my children will have the condition?
- Why are some genetic conditions more common in particular ethnic groups?
These links provide additional genetics resources that may be useful.
What glossary definitions help with understanding familial Mediterranean fever?
amyloidosis ; autosomal ; autosomal dominant ; autosomal recessive ; benign ; carrier ; cell ; complication ;familial ; fever ; gene ; immune system ; inflammation ; inheritance ; injury ; joint ; kidney ; molecule ;mutation ; population ; protein ; pseudodominance ; recessive ; sign ; symptom ; syndrome ; teenage ;tissue ; white blood cells
You may find definitions for these and many other terms in the Genetics Home Reference Glossary.
See also Understanding Medical Terminology.
The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. See How can I find a genetics professional in my area? in the Handbook.
please also read:
http://emedicine.medscape.com/article/330284-overview#showall
Familial Mediterranean fever
Familial Mediterranean fever (FMF) is a hereditary inflammatory disorder[1]:149. FMF is an autoinflammatory disease caused by mutations in MEFV, a gene which encodes a 781–amino acid protein denoted pyrin.[2]
The disorder has been given various names including familial paroxysmal polyserositis, periodic peritonitis, recurrent polyserositis, benign paroxysmal peritonitis, periodic disease or periodic fever, Reimann periodic disease or Reimann’s syndrome, Siegal-Cattan-Mamou disease, and Wolff periodic disease.[3][4][5] Note that “periodic fever” can also refer to any of thePeriodic fever syndromes.
Epidemiology
FMF affects groups of people originating from around the Mediterranean Sea (hence its name). It is prominently present in the Armenian people, Sephardi Jews (and, to a much lesser extent, Ashkenazi Jews), Cypriots, Turks and Arabs.[6]
[edit]Signs and symptoms
[edit]Attacks
There are seven types of attacks. Ninety percent of all patients have their first attacks before they are 18 years old. All develop over 2–4 hours and last anywhere from 6 hours to 4 days. Most attacks involve fever.[6]
- Abdominal attacks, featuring abdominal pain, affect the whole abdomen with all signs of peritonitis (inflammation of abdominal lining), and acute abdominal pain likeappendicitis. They occur in 95% of all patients and may lead to unnecessary laparotomy. Incomplete attacks, with local tenderness and normal blood tests, have been reported.
- Joint attacks mainly occur in large joints, especially in the legs. Usually, only one joint is affected. Seventy-five percent of all FMF patients experience joint attacks.
- Chest attacks include pleuritis (inflammation of the pleura) and pericarditis (inflammation of the pericardium). Pleuritis occurs in 40% of patients, and makes it difficult to breathe or lie flat, but pericarditis is rare.
- Scrotal attacks due to inflammation of the tunica vaginalis occurs in up to 5% and may be mistaken for acute scrotum (i.e. testicular torsion).
- Myalgia (rare in isolation)
- Erysipeloid (a skin reaction on the legs, rare in isolation)
- Fever without any of the other symptoms listed above (25%)
[edit]Complications
AA-amyloidosis with renal failure is a complication and may develop without overt crises. AA amyloid protein is produced in very large quantities during attacks, and at a low rate between them, and accumulates mainly in the kidney, as well as the heart, spleen, gastrointestinal tract and thyroid.[6]
There appears to be an increase in the risk for developing particular vasculitis-related diseases (e.g. Henoch-Schönlein purpura), spondylarthropathy, prolonged arthritis of certain joints and protracted myalgia.[6]
[edit]Diagnosis
The diagnosis is clinically made on the basis of the history of typical attacks, especially in patients from the ethnic groups in which FMF is more highly prevalent. An acute phase response is present during attacks, with high C-reactive protein levels, an elevated white blood cell count and other markers of inflammation. In patients with a long history of attacks, monitoring the renal function is of importance in predicting chronic renal failure.[6]
A genetic test is also available to detect mutations in the MEFV gene. Sequencing of exons 2, 3, 5, and 10 of this gene detects an estimated 97% of all known mutations.[6]
A specific and highly sensitive test for FMF is the “Metaraminol Provocative Test (MPT),” whereby a single 10 mg infusion of Metaraminol is administered to the patient. A positive diagnosis is made if the patient presents with a typical, albeit milder, FMF attack within 48 hours. As MPT is more sensitive than specific, it does not identify all cases of FMF. Although a positive MPT can be very useful.[7][8]
[edit]Pathophysiology
Virtually all cases are due to a mutation in the MEFV gene on the sixteenth chromosome, which codes for a protein called pyrin or marenostrin. Various mutations of this gene lead to FMF, although some mutations cause a more severe picture than others. Mutations occur mainly in exons 2, 3, 5 and 10.[6]
The function of pyrin has not been completely elucidated, but it appears to be a suppressor of the activation of caspase 1, the enzyme that stimulates production of interleukin 1β, a cytokine central to the process of inflammation. In other words an ineffective pyrin doesn’t inhibit inflammation normally, resulting in inflammatory episodes of membranes at differing sites. It is not conclusively known what exactly sets off the attacks, and why overproduction of IL-1 would lead to particular symptoms in particular organs (e.g. joints or the peritoneal cavity).[6]
[edit]Genetics
The MEFV gene is located on the short arm of chromosome 16 (16p13). The disorder inherits in an autosomal recessive fashion. Therefore, two asymptomatic carrier parents have a 25% chance of a child with the disorder, a 50% chance of a child who is an asymptomatic carrier and a 25% chance of a child who does not carry the disorder. FMF patients who have children with a carrier or another FMF patient have a 50% and 100% chance, respectively, of having a child with FMF.[9][10]
There is one known case of an affected patient with only one parent who is a carrier. This is caused by a unique mutation on thesixteenth chromosome.
[edit]Treatment
Attacks are self-limiting, and require analgesia and NSAIDs (such as diclofenac).[6]
Colchicine, a drug otherwise mainly used in gout, decreases attack frequency in FMF patients. The exact way in which colchicine suppresses attacks is unclear. While this agent is not without side effects (such as abdominal pain and muscle pains), it may markedly improve quality of life in patients. The dosage is typically 1–2 mg a day. Development of amyloidosis is delayed with colchicine treatment. Interferon is being studied as a therapeutic modality.[6] Some advise discontinuation of colchicine before and during pregnancy, but the data are inconsistent, and others feel it is safe to take colchicine during pregnancy.[11]
Approximately 5-10% of FMF cases are resistant to colchicine therapy alone. In these cases, adding anakinra to the daily colchicine regimen has been successful.[12]
[edit]History
A New York allergist, Dr Sheppard Siegal, first described the attacks of peritonitis in 1945; he termed this “benign paroxysmal peritonitis”, as the disease course was essentially benign.[13] Dr Hobart Reimann, working in the American University in Beirut, described a more complete picture which he termed “periodic disease”.[14][15]
In 1972, colchicine was discovered to prevent attacks.[16]
The link to the MEFV gene was discovered in 1997 by two different groups, each working independently – the French FMF Consortium,[9] and the International FMF Consortium.[10]
[edit]See also
[edit]References
- ^ James, William; Berger, Timothy; Elston, Dirk (2005). Andrews’ Diseases of the Skin: Clinical Dermatology. (10th ed.). Saunders. ISBN 0-7216-2921-0.
- ^ Chae JJ, Wood G, Richard K et al. (September 2008). “The familial Mediterranean fever protein, pyrin, is cleaved by caspase-1 and activates NF-kappaB through its N-terminal fragment”. Blood 112 (5): 1794–1803. doi:10.1182/blood-2008-01-134932. PMC 2518886. PMID 18577712.
- ^ Dugdale III, David C; Jatin Vyas (2010-09-15). “Familial Mediterranean fever – PubMed Health”. PubMed Health. National Centre for Biotechnology Information. Retrieved 2011-04-24.
- ^ Enersen, Ole Daniel. “Whonamedit – Siegal-Cattan-Mamou syndrome”. Whonamedit? A dictionary of medical eponyms. Archived from the original on 2001-04-24. Retrieved 2011-04-24.
- ^ “Familial Mediterranean fever – Genetics Home Reference”. Genetics Home Reference. U.S. National Library of Medicine. 2011-04-14. Archived from the original on 2011-04-24. Retrieved 2011-04-24.
- ^ a b c d e f g h i j Livneh A, Langevitz P (2000). “Diagnostic and treatment concerns in familial Mediterranean fever”. Baillieres Best Pract Res Clin Rheumatol 14 (3): 477–498.doi:10.1053/berh.2000.0089. PMID 10985982.
- ^ Barakat MH, El-Khawad AO, Gumaa KA, El-Sobki NI, Fenech FF (1984). “Metaraminol provocative test: a specific diagnostic test for familial Mediterranean fever”. Lancet 1(8378): 656–7. PMID 6142351.
- ^ Huppertz HI, Michels H (1988). “[The metaraminol provocation test in the diagnosis of familial Mediterranean fever]”. Monatsschr Kinderheilkd 136 (5): 243–5. PMID 3405225.
- ^ a b The French FMF Consortium (1997). “A candidate gene for familial Mediterranean fever”. Nat. Genet. 17 (1): 25–31. doi:10.1038/ng0997-25. PMID 9288094.
- ^ a b The International FMF Consortium (1997). “Ancient missense mutations in a new member of the RoRet gene family are likely to cause familial Mediterranean fever”. Cell 90(4): 797–807. doi:10.1016/S0092-8674(00)80539-5. PMID 9288758.
- ^ Michael O, Goldman RD, Koren G (August 2003). “Safety of colchicine therapy during pregnancy”. Can Fam Physician 49: 967–9. PMC 2214270. PMID 12943352.
- ^ Calligaris L, Marchetti F, Tommasini A, Ventura A (2008). “The efficacy of anakinra in an adolescent with colchicine-resistant familial Mediterranean fever”. European Journal of Pediatrics 167 (6): 695–696. doi:10.1007/s00431-007-0547-3. PMC 2292480. PMID 17588171.
- ^ Siegal S (1945). “Benign paroxysmal peritonitis”. Ann Intern Med 23 (2): 234–47. PMID 18124924.
- ^ Reiman HA (1948). “Periodic disease. Probable syndrome including periodic fever, benign paroxysmal peritonitis, cyclic neutropenia and intermittent arthralgia”. J Am Med Assoc 136 (4): 239–44. PMID 18920089.
- ^ synd/2503 at Who Named It?
- ^ Goldfinger, S.E. (1972-12-21). “Colchicine for familial Mediterranean fever”. New England Journal of Medicine 287 (25): 1302. doi:10.1056/NEJM197212212872514.PMID 4636899.
[edit]External links
- Proteopedia 2wl1 information about the MEFV gene.
- GeneReview/NIH/UW entry on Familial Mediterranean Fever
Breezy Says:
–Auto signature below–
Respectfully,
Breedheen O’Rilley Keefer
AKA Breezy Kiefair
links about breezy
blog
http://misshightimes.com/users/breezykiefair
on youtube
http://www.youtube.com/user/Mr8MrsKiefAir?feature=mhsn
art “like” page on FB
http://www.facebook.com/pages/The-Art-of-Breezy-Kiefair/154533251224064
fb profile
http://www.facebook.com/breezy.kiefair
@breezykiefair
the short 4 page version:
http://www.scribd.com/doc/64585079/My-Personal-Christmas-Present-to-the
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~
Related articles
- A Family Doctor’s Tale – GENETIC DISEASES (kennethkee.info)
- Mechanisms Behind Fever-Induced Seizures Revealed By New Fruit Fly Model Of Epilepsy (medicalnewstoday.com)
- Could genetic diseases be cured in the womb? (sott.net)
- Colchicine in Renal Failure (sajerosablog.wordpress.com)
- Interesting article about CVID and Genes (cvidarticles.wordpress.com)
- Licorice Shown To Kill SARS And Other Lethal Viruses (vaticproject.blogspot.com)
- Polyposis (familyhistorybowelcancer.wordpress.com)
- Researcher Investigates His Own Genetic Mutation (23andme.com)
Vapor Brothers Donate Vape to save WONPR president’s life
I begin with the letter I was circulating around to different vapor companies. Cher wanted a volcano, but it was Vapor Brothers who stepped up and made the donation. Thanks GUYS!
I’m so glad someone gave me a link to this video:
Breedheen O’Rilley Keefer
AKA Breezy Kiefair
XXX-XXX-XXXX
Aurora, Co
USA
http://breedheenorilleykeefer.com/
April 4, 2012
To whom it may Concern:
I am writing to you on behalf of a medicinal cannabis activist named Cher Ford-Mccullough. Mrs. Ford-Mccullough has been listed as one of the top activists by skunk magazine on more than one occasion. http://www.celebstoner.com/201108027923/news/marijuana-news/skunk-top-pot-activists.html
She has published art and poems in Treating yourself magazine. Here is a video in which Tonya Davis of Treating Yourself Magazine speaks about Cher and her activism. She begins speaking about Tonya at around 1:56
Cher has also done two journey for Justice marches. Her bio on the featured speaker page for the Journey for justice march (retrieved from) http://www.journeyforjustice.org/march/speakers.html reads as thus:
Cher Ford-McCullough is the Founder and President of the Women’s Organization for National Prohibition Reform, Kentucky State Director of the American Alliance for Medical Cannabis and President of Compassionate Moms. She is a member of the ACLU and The Southern Poverty Law Center. Her name is listed on the Wall of Tolerance in Montgomery, Ala.
Cher participated in both the Florida and Texas Journey for Justice Marches in 2000 in the capacity of patient support. Cher has worked in drug policy and prison reform since the first Two Million Too Many protests in 1999. Prior to becoming a full time activist, she worked as a professional singer and a retail store owner in western Kentucky. Cher is married, has two daughters and four grandchildren.
Recently, Cher became very ill and was placed in the ICU for a collapsed lung (and a cannabis deficiency) Cher Ford-Mccullough really needs a volcano vaporizer to help her lungs recover from whatever put her in ICU. I am writing you to see if we can get one donated to her. Please also offer positive energy in whatever your tradition. if that’s a prayer, good vibes, a hope, a wish, a dream, a meditation, a candle lit or whatever you personally believe would enrich her on a spiritual level, please do it. We are all made of energy and vibrate… lets vibrate this wonderful artist who uses her skills as an activism tool to enrich so many out of that ICU and back home to her easel and muse. Her husband, Brian McCullough stands vigil with his lady. As I write this, is not out of the woods yet… she is still in ICU. those wishing to send her electronic greetings for free may do so at the following link.
http://www.stlukescr.org/resources-for-you/online-tools/ ICU in room # 207
If you can help Cher get a vaporizer, please contact her bitchcrafts420@yahoo.com or her husband Brian
To anyone who Doesn’t think Volcano Vaporizer is the best vape around? well she needs a VAPORIZER, it doesn’t really matter what brand… write to your favorite vaporizer manufacturer on her behalf…
Better still, do you have a vape lying about that you never use (maybe you got a better one?) well, consider donating it to cher and her hubby Brian McCullough
UPDATE 4/11/2012
Today, I got the following message from Vapor Brothers http://www.vaporbrothers.com/
Hello Breezy,
We have tried to contact Cher about a free Vaporizer in Dec and Jan. Thank you so much for your email.
We have contacted Brian and we are waiting for a respond so we can send her out a Vaporbrothers Vaporizer.
We look forward to hearing back from him so we can get her one out to her right away.
Thank you for your support!!
VB Support, Stephanie
(877) 98-VAPOR
my response:
I just found out that brian’s email that I provided you is inactive. please give him a call.
Hello Breezy,
Thank you for the info, sure you can post our message on your blog. I actually just contacted Brian and was able to speak to Cher, and I let her know that we will be shipping her out a Vaporbrothers Vaporizer today. We wish her well and we hope the Vaporizer helps her out. We appreciate all of her support in bringing policy reform forward.
If you happen to need a Vaporbrothers Vaporizer Care package for any raffles or Shows in the future please feel free to contact us. We would love to help you raise money for the cause.
Thank you again for your support!! We look forward to hearing back from you.
VB Support, Stephanie
(877) 98-VAPOR
UPDATE 5/5/2012
Cher is loving her new vaporizer!
“They sent it out the same day they called about it.
I’ve tried to just smoke,but i really can’t, so…
it’s good i got it when i did.”
thanks again vapor brothers!
Related articles
- WONPR President Needs Vape to Help Save Life (breedheenorilleykeefer.com)
Who We are, How We Came to Be, Why we Give back
Article I wrote that was published in Cannabis Health news Magazine February 2010
need proof that it was published (i know many of you do…http://cannabishealthnewsmagazine.com/PDF/CHNM_Feb2010_small.pdf )
The below piece is to be published in the next issue of Cannabis Health News Magazine whose editor is Jason Lauve. Jason was acquitted of all charges by a jury on August 6, 2009. He has been a tireless advocate for Medical Marijuana patients in Colorado before this date and since.
Kiefair Keepsakes…. How we came to be, Why we give back
Copyrighted material All Rights Reserved see message at the bottom of essay
I tell you this story, not for myself, but for those in similar situations without the strength or ability to speak.
The government of the United States and the State of Colorado (as well as other states) are all saving a ton of money due to the growth in the medical marijuana industry and so are the dispensaries and caregivers. As a patient caught in the middle, I decided that I may have a unique perspective on this issue and have decided to throw my two cents in on the topic.
If you listen to the news, it seems to be the government officials vs. the dispensary owners. here in Colorado. This should not be the case. The patients needs should be at the heart of this discussion, particularly the needs of low income medical marijuana patients on Social Security Disability and Social Security Income (SSD/SSI)
I posted much of the content you will read here all over the internet in an effort to help myself and others in my position. I sat in the online forums begging:
“Is there someone, anyone out there who hears my plea and wants to help me actually do something other than sit in online forums and complaining about the problem and hope someone does something”
I was heartbroken to find little positive response and a lot of negative/cruel responses by persons who clearly are recreational users and not medical users. The treatment of women in some of these cannabis forum rooms was often appalling. I finally decided to stop beating a dead horse and set up a store front to help me get the funds I need for my own medicine, food and other needs and to donate 10% of our profits to provide medical marijuana for free to low income patients in need. Currently we have only one dispensary signed on with us, GreenBelly Co-op LLC in Eldorado Springs, Co.
We encourage other dispensaries and caregivers to join with us in this effort. The funds to be donated will be held in trust and dispensed when/where they are needed according to the needs and location of the patient in question. A patient from your area would contact me, then I would contact you to confirm you have the stock necessary for the patient and to confirm availability of time, I would then deposit money for their medication into a paypal account owned by your dispensary. The patient could then come in and pick up their necessary medicine. I require no investment on your part. Patients would report on the quality of your medicine and I would then write their reviews and forward their recommendations (no names attached) on the net. Everybody wins. People who wish to provide money for the trust can purchase anything in my online gift-store or my personal catalog. 10% of my profits go to this fund. Hopefully a larger and larger percentage of profits will got to the trust when my personal finances allow me.
When I began to write the essay that I posted in the online forums, I decided that my joining the Medical Marijuana Registry was my Christmas Present to the American Taxpayer for the year 2009. And posted the title as “My Personal Christmas Gift to the American Taxpayer.”
Now, you may imagine me as the stereotype of a “stoner” that has been created by the media. Let me correct you
First of all, I am a female over 25 and under 40 with severe and debilitating Fibromyalgia, the kind that forces doctors to shake their heads and prescribe one ineffective man made medicine on top of another while I waste away and my quality of life diminishes. The onset of my symptoms began almost instantly after my birth in Canon City, CO and I have been fragile ever since. I’ve even been told by a doctor or two that may well have one of the worst Fibromyalgia cases on record. I was a ward of the State of Colorado until I ran away when I was 16 due to horrid abusive conditions within the state foster care program and completed my high school in another state.
My sole health insurance is provided to me is under medicare/medicaid. This is because I am completely disabled and the doctors do not allow me to work, or even to attend school. I assure you that this is only for the time being… I am getting stronger all the time!
In 1994, I was awarded Ginsberg Scholarship up at Naropa during the 20th anniversary festival. I dreamed for years of attending, but my health prevented it. I finally got stubborn and bullied my doctors into letting me go. I was accepted into and attended Naropa University for two semesters in 2007-2008 school year in an effort to get a degree that would give me access to jobs more suited to my bodies abilities, and was pulled out by my doctors both times. Naropa wanted me there, I wanted to be there, but government programs required I be enrolled a certain amount of credit hours (beyond the abilities of my body) in order to keep my funding. I attempted a semester at Grand Canyon University online in Fall 2008 to the same effect. Now I have many thousands of dollars in student loans I can’t pay because I attempted to get a degree so I could get a job my body could handle.
I was forced to be on government programs like Social Security Disability and Social Security Income (SSD/SSI) at a young age. I was in middle school when I was put on SSD/SSI for the first time while I was a ward of the State of Colorado.
Let me clarify, the first time I was put on disability, I was a minor and the State decided as my sole legal guardian to place me on disability. The state “adopted me” in a sense.My name was changed legally and my parents rights to me as a child were formally, legally and permanently terminated. None of it was not my choice (except the name change after years of foster care), it was not discussed with me, I was a child. My medical care as a child was much as it is now, with the exception of the fact that kids get a bit more coverage. Being on the program at a young age, I did not accumulate much in the way of work money in my SSI account, although I did attempt to work several times. Unfortunately every time, an employer or doctor would get tired of me being sick and put a stop to it one way or another. That is why my monthly amounts from SSI/SSD are so low, not because I am disabled, but because I couldn’t work to pay into the system like the people who receive these benefits only when they reach retirement after a full life of paying in. Also did you know the government actually Penalized people for getting married if you are both on disability? They treat you as one person and give you one person’s pay! For love, and for spiritual reasons I decided that was a risk I would just have take. So, I married my love who happened to be on disability also anyway.
Now I ask the members of the Government of the Great State of Colorado, if you had an adult child who was sick and suffering would you leave them to languish in pain and poverty just because it was no longer your legal responsibility? Of course you wouldn’t. You would do whatever was in your power to make your child as comfortable as possible.
As an adult child, I now boldly but humbly step up to my adopted parent, the Government of the State of Colorado, and ask, “Guardian Colorado, do you it intend to focus on the dispensaries who are the money in this discussion, or do you intend to focus on your citizens whose LIVES are being saved by this plant? You discuss care giving so much in this debate, but the treatment of patients on the part of many in this debate has proven differently. I know you have hearts, please use them as you consider these policies. This shouldn’t be a partisan issue. This should be a people issue.
Before I was placed on the Colorado Medical Marijuana Registry in June 2009, I would have to visit a doctors office several times a month, sometimes several times a week, sometimes with several appointments booked the same day with specialists and tests, painful and difficult physical therapy that seemed to harm more than hurt, etc., and there were to many trips to the emergency room to count.
I went to the ER out of sheer desperation, I went just so I could get comfortable enough to have a bit of sleep after a week or more of lingering in a painful place that seemed to be located in deep within the realm of a narcotic distorted pain haze, a no-where-land that seemed to be somewhere between life and death. The doctors in the emergency room and elsewhere often treated me as though I was an addict, and not a pain patient, AND I WAS MISERABLE!
Since I was approved for the medical marijuana registry I haven’t needed near the amount of services from the medicaid/medicare program. In fact, I’ve had to see a doctor twice since June 3, 2009 when the doctor signed my forms.
Once to have 14 teeth pulled, a little bit of dental work made necessary by a combination of years of no dental benefits unless my teeth couldn’t be saved and needed to be pulled, being on narcotics for almost a decade, and dealing with severe nausea/vomiting/malnutrition.
The other doctor visit (and medications that followed) were for a bad cold that I caught at the dentists office. I haven’t seen a doctor at all otherwise, although I do call my family doctor to check in and let her know I am doing well.
Before I was on the MMJ registry, I was on so many medications (20 plus medications taken at various intervals though the day) that I felt like I was taking a pill every 2 minutes…. Number of traditional prescriptions I take daily now – ZERO.
Now the government was paying for all those medications I was on before through medicare/medicaid, plus all the doctor visits to get, maintain, and change dosing on those prescriptions right? Some of those medications by themselves cost the government thousands of dollars a month! Many could not have refills on them by law and required a doctor visit every time I needed more.
I always felt guilty about my personal burden on the American Taxpayers. But now I don’t have to feel guilty cause I have given a present to the American Taxpayer. I got on the MMJ registry. Now I do not go to the mainstream doctor unless I need antibiotics. I am off all prescriptions. I had tobacco quit (been trying for 20 years to quit) until I was without medicine too long and got stressed out, but I plan to quit again.
I and am well enough to manage a website as well as volunteer and be an advocate for others in need. I have regularly traded my services in clerical/computer work either from home or in the GreenBelly Coop LLC office for medications when I am strapped for cash. All of these things would have been impossible for me nine short months ago when I was all but bedridden and and in so much pain I had to keep myself from overdosing.
The government is saving many thousands of dollars a month on me alone, and yet I have to struggle to obtain this money saver for the American taxpayer. That much cut in government spending on the part of an individual… I should get a medal or something. Now think how many individuals are saving the government this money in the State of Colorado alone…. Let alone the other 13 states and the District of Columbia! We all need medals or medicine at the very least!
How many others are there like me? Meanwhile, the price of my medicine increases as the MMJ movement grows. My family and I have been stuck having to make really hard decisions like, do we pawn our wedding and engagement rings to get my medicine? Or do we pawn them and buy some food? Or do we keep the rings for sentimental reasons, lay here and just starve and have seizures from pain and lack of medicine/food.
I ended up pawning all the rings, having already sold else of value to the pawn store and bought both medicine and food. The money I received for my treasured bands did not buy nearly enough of either medicine or food. We promised ourselves we would get them back, but I ended up crying my eyes out when I realized I just can’t afford to get them out of hock. The deadline to get them back passed weeks ago. I live in a Winnebago and have been in real danger of starving to death at times. Now don’t get me wrong, my life has been profoundly changed by this medicine, and any hardship I may have to endure is truly worth the benefits of this plant. I will not compromise and go back to the narcotics and other prescriptions just because I can get them paid for or for any other reason. I would rather be in pain when I am without my medical marijuana than take a morphine and get sicker.
Sometimes family members and the community can make it very hard to be a low income medical marijuana patient too. I have heard many stories of people not living with family/friends any longer because they are shunned for their medicinal use. I’ve experienced this shunning first hand myself. The stereotype of the “typical” marijuana user is further damaging these people with no where else to turn!
This herb is profoundly changing lives! It is healing people, body, mind, and soul. Yet its legal users get treated as if they are using it for recreation. I believe recreational use is a VALID use of the plant, further I feel it be legalized and would be an important source of revenue for America if it were to be legal once again. However, that is not why I personally NEED this plant.
This plant allows me to eat, to sleep, to get out of my bed, to manage my pain enough to have a job, to be involved with life instead of living in a nightmare world just praying for the end to come soon. If you happen to be a Fibromyalgia patient praying for the end, you can be praying for a long time as this is not a terminal disease.
The Mayo clinic website (see footnote 1) describes symptoms of Fibromyalgia as including
Signs and symptoms of fibromyalgia can vary, depending on the weather, stress, physical activity or even the time of day.
Widespread pain and tender points
The pain associated with fibromyalgia is described as a constant dull ache, typically arising from muscles. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
Fibromyalgia is characterized by additional pain when firm pressure is applied to specific areas of your body, called tender points. Tender point locations include:
Back of the head, Between shoulder blades, Top of shoulders, Front sides of neck, Upper chest,Outer elbows, Upper hips, Sides of hips, Inner knees
Fatigue and sleep disturbances
People with fibromyalgia often awaken tired, even though they seem to get plenty of sleep. Experts believe that these people rarely reach the deep restorative stage of sleep. Sleep disorders that have been linked to fibromyalgia include restless legs syndrome and sleep apnea.
Co-existing conditions
Many people who have fibromyalgia also may have:
Chronic fatigue syndrome
Depression
Endometriosis
Headaches
Irritable bowel syndrome (IBS)
Lupus
Osteoarthritis
Post-traumatic stress disorder
Restless legs syndrome
Rheumatoid arthritis
And a whole host of other conditions not on the Mayo clinic list.
Moder Western medicine can’t even agree on the causes/mechanisms of this disease because they don’t understand it.
It has been suggested that this is a psychological disease only, a psychosis created when a hypocondriac hears about fibromyalgia. The advocates of this theory say that the symptoms of this diesease are all in the patient’s head. I do not personally believe in this theory, but even if this disease is all in my head, the medical marijuana still helps.
Other sources on Fibromyalgia suspect that this disease has been around for all time, a genetic disease with a trigger, and its symptoms are found even in individuals of remote tribes of Africa and the Amazon who have no contact with the west. So why should I use new untested man-made medicine created by people who don’t understand my disease and possibly believe it doesn’t exist? Especially when that disease has been treated with herbs known to posses pain relieving qualities for many generations of humans?
Personally, my last completely “pain free” moment was around 3:30 PM on August 21, 2002. I know because I keep a detailed pain/medication journal in an effort to regulate my condition. I am confident that If I had the proper medicine, I would have pain free moments again. This herb doesn’t just treat pain sensations, it helps correct causes. Perhaps with the right regimen, daily pain could be a thing of the past for me.
This disease itself may not kill you, but it can certainly make you wish for death. There are near epidemic levels of Fibromyalgia patients and pain patients in general who are hurting so bad they are suicidal, or worse succeed in taking their own life. I have a brother who died as a result of a doctor who wasn’t paying enough attention with his pen and prescription pad. After years of pain and suffering following a head injury, my brother died of a drug interaction prescribed by his doctor.
Dispensaries are necessary, but not without a social conscience
Now the other side of the coin. It is no secret that the people who own dispensaries are making money on patients like me too.
We need these dispensaries for a variety of reasons.
1)What would a patient do if their caregiver had a bad crop and was without medicine? If that paitent was restricted from seeing other caregivers they would have no where to get their medicine but the street.
2) Our caregivers are restricted to a number of plants they can grow for you, thus if you become tolerant to the genetics of one strain of medicine quickly and need to change the genetics of you medication often, it may be difficult for your caregiver to have/maintain the variety you need.
3) Competition strengthens customer service and prevents patients from being in a form of bondage by their caregiver. If we restrict patients from going to other dispensaries, how are they to know if the medicine they are receiving is the best quality available for them. If we restrict the number of persons a dispensary can serve to a tiny number and prevent patients from seeing other medical marijuana providers, and in addition the number of times a year they can change their caregiver, then patients must settle for whatever medicine a particular caregiver is giving them whether it is effective or not.
We need a program to help low income patients get their medicine!
If you are low income and can’t afford your “mainstream pharmacy” medicine, you can go to various organizations and they will help you to buy your medicine, sometimes even on a regular basis if they are necessary and not covered by insurance, but that doesn’t include medical marijuana.
If you are brave enough to speak up and ask for help getting your medicine at these organizations, you will probably find the door closed firmly in your face. You may also find that other services from the organization become difficult or impossible to obtain as well. This is out and out discrimination in my opinion. If your medicine is MMJ no one is willing to help you unless you happen to be lucky enough to find a care giver who actually gives a care if you have medicine or not! I just put my medical costs on a new food stamp application mailed 1/13/09 to Boulder County. We shall see what happens.
“So what,” you say? Well let’s look at this… The high price can force a person in my position to go back to buying their medicine off the street where it is less expensive, but also less potent, less safe.
1)You never know what has been added to you herb to increase the genetically weak herbs potency artificially with other street drugs or various substances to make it seem as though there is more weight to the medicine.
2)It is much more dangerous to obtain, and the process of obtaining it can be a risk to your health in many ways. Long periods in the cold and encounters with strange germs can put a person right back in their sick bed or the hospital.
3) The money spent on street grade medication often goes back to fund gang and criminal activity. This is something that most medical marijuana patients do not want to support and got on the registry to stop supporting. I personally counted avoiding purchasing on the street as one of the largest pluses to getting on the registry, and yet I see people like me being forced back there.
4) The price of cannabis on the street directly influences the costs of Medical Grade in the Dispensaries. In this respect, Cannabis is a commodity like any other, and as such is subject to price fluctuation when artificially influenced. It doesn’t really have anything to do with how much it costs to grow it and transport it to the patient. It has to do with how much it costs on the street.
What is to be done if you have no medicine? Where can you go?
There are few funds or organizations willing to help people like me get my medicine when I can’t afford it, and you have to really dig in your need to find them. When I did find them, they could only help once or not at all due to the demand. Many patients do not have the strength for this search when they are lacking appropriate medication. It took me months of daily web crawling to dig any up organizations up. Now people who wish to help provide medicine to people in this position can buy something for themselves or someone else, something they may have bought anyway and someone gets medicine.
If someone who has medicine/money wants to help a person in my position, likewise there is no way for a person who wants to help to donate money to people in a position similar to mine. Right now low income persons only relief seems to be individuals/churches/caregivers being kind. So I created this gift company, and here we are.
One church I know of is greenfaith ministry. The Reverend of greenfaith ministry is also known as the 420 Reverend. I have had contact with Reverend Brandon Baker from this organization who is a great man. He drove over 50 miles to get me some medicine for free. Unfortunately he is one man and the demand is high. Rev. B Baker is quoted as saying, “Tell the (Denver City my edit) counsel a majority amount of local churches support un-regulated access for all needy mmj patients, give them my name and number if they say they want to meet with any of the spiritual mmj community church leaders!”
Meds for free? What about Caregivers and Growers needs?
Now, I have no problem with the idea of paying for my medications… The person who grows it provides a service that a dollar amount really can’t be placed on and should be compensated, and so should everyone involved in getting the medicine to me. That is only fair. But I want know the money I spend helps others like me or at very least the movement in general. I also don’t need to be paying 50+% of my income to stay barely comfortable. I’d like to be able to pay a reasonable percentage of my income and have all the medicine my body requires. I know that may seem a little unrealistic, but a girl in pain can dream. lol
Here in Colorado it is the wild wild west right now. If I happen to have to go somewhere other than my primary caregiver, my $ will probably end up in a growing bank account of some green gold rush eyed caregiver who could really care less if I have effective medication or not. In fact, it seems like the only green anyone cares about is dollar bill green and the green of greed. Yet the right to visit a dispensary other than your caregiver is a necessary one. What happens if your caregiver loses a grow? What do you do if you need a different strain of medicine than what is available that day? What if they are out of the product that helps the most? Would you refuse to let me go to W@(m@rt if W@lgr33ns was out of my prescription?
So the government ignores the money it saves, and many (not all) of the dispensaries in the area seem to have little social conscience about the price a person like me can pay to have their medicine.
A Big social Problem, and Yet We aren’t the Issue, money is.
When your total family income is at or below poverty levels, you can absolutely be forced back on the streets to get your medicine. My medical condition requires a minimum of 1/8 oz of smoke-able every 2 days to just to keep me off narcotics and other prescriptions that do more harm than good, not crying, not having seizures caused by pain, and not be stuck in bed.
This dosing by no means keeps me comfortable it is important to note.
I have NEVER had the pleasure of having enough medicine on hand to decide on what a good “comfortable” dosing schedule would be, even though I do have a compassionate caregiver. I just don’t want to put my poor caregiver out of business taking care of my needs.
What I am trying to say is that there is something fundamentally very wrong with the fact that there are so many people who are to poor to even know what the appropriate dosage of medication for their amount of pain, yet the government is saving a bunch of cash and the Medical Marijuana industry is getting the “lion’s share” of the rest of their income.
It is frustrating to feel like you and others are falling through the cracks even further. Many in my position were barely hanging on before the economic downturn, and now see no light at the end of the tunnel. SSI/SSD keeps you far below the poverty line if you have been unable to work enough many living on $1000 a month or less for their whole family.
It is frustrating to see others get wealthy off of you and others while your tier of society starves. Sometimes I feel invisible, and I know for a fact I am not the only one out there feeling this.
Why do the out of state interests get a louder voice than ours?
I was born in the State of Colorado. My family has lived in this state for 4 generations (or more.) My grandmother owned and operated the Historic Stirrup Ranch near Canon City, Co. for many years. I love Colorado, but I live in an RV and am so desperate to be in a place where I can have food and medicine that I am willing to move to any state with a registry because the climate here is so difficult for patients right now.
I have a plan so that if I were able to obtain some land, I could be self sufficient (NO MORE SSI/SSD and I could actually contribute to charities instead of needing help from them!) and never have to worry about being hungry or without my necessary medicine. In time, many others could be helped with food and medicine grown on the land. I could be fulfilling needs rather than begging to have my needs filled.
Kiefair Keepsakes, stepping stone to a dream
My dream is to be able to get some land and set up an initial grow op in earth ships (a growing movement of building practices with an all environmentally friendly building/management philosophy.) This initial grow op would end up growing into a Nonprofit Medical Marijuana retreat/community/caregiver for patients like me to be able to get their medicine and/or live in a more affordable and kind setting, using their personal talents and abilities to benefit the community. I want to focus on what a “disabled person” can do, not their limitations. I want to create a place where it is safe to be sick on a daily basis with no fear of hunger, lack of medication, or fear of the loss of a job/home due to illness.
While I have the heart and the ability to do this work (given time and medication), I unfortunately have no capital for such a venture and am praying the universe will see fit to make it happen.
I have researched many aspects of this and it is very feasible, however getting investment in such a venture is not my forte. This kind of setting would be great tool for a “for profit” dispensary to use. It would be publicity, demonstrate social conscience, and you could also offer my nonprofit medications cheap to their own low income patients. inquire further at kiefair.keepsakes@gmail.com
I just wanna say Thanks to all the people out there helping to make it possible for people who need this medicine to have it. Whatever you celebrate this or any season, may it be meaningful and may Blessings come to you all!
footnote 1 Retrieved from the Mayo clinic website 1/12/2009
http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=symptoms
Copyright 2009,2o10 by Breezy Keefer, owner Kiefair Keepsakes All Rights Reserved
Please copy and redistribute with attribution of source!
hey, vote me up on miss high times please!!! 10 is high, 1 is low