Category Archives: luck of the draw

Protect Colorado Springs Home Grows

Protect Colorado Springs Home Grows by: Audrey Hatfield

How many registered cannabis patients do you think live in Colorado? How many refugees have given up their former lives to pack up and move here for access to medical cannabis? How many people in general utilize cannabis in some form or another in our state? There are approximately 108,000 registered cannabis patients and out of that many, how many of you have a clue as to what is happening in some city’s across Colorado regarding your rights as a cannabis patient? Very few.

Back in 2012 when the Amendment 64 campaign was rearing its ugly head, I was against it for several reasons. Not because I’m a selfish bitch that didn’t think everyone deserves access to cannabis, it was because, it was and is, a garbage piece of legislative prohibition, designed to benefit our government in the form of higher tax dollars, in disguise as “legalization.” We were all assured by 64 supporters that “medical would not be affected.” A64 was nothing but “legal lies” and too many people lapped it up as “progression” and “baby steps” towards “legalization.” “Regulation works,” “Regulate like alcohol.” Bullshit, all of it, as predicted! 

http://www.westword.com/news/marijuana-community-divide-on-amendment-64-deep-wide-often-nasty-5859203

  Let’s forget about Amendment 64 for a minute and before you chastise me for using the term “medical cannabis,” there is a difference. That difference is, Amendment 20 and those of us that rely on cannabis as our medicine. For us, it’s not about just “getting high.” And no, I don’t have anything against anyone that does. Cannabis should be available to us all, but not this way. Not thru Amendment 64.

 Right now, right under your noses we are slowly being made criminals once again. The MED is “recommending” to all jurisdictions to limit plant counts. One by one, city by city, slowly, Amendment 20 is being blown off by Colorado government officials, in part because of the fact that we have rec and rec generates more tax funds. You might think that it doesn’t matter because we “have A64”. But it does.

  In a recent article in local paper the “Gazette Telegraph,” Colorado Springs City Council proposed ordinance 16-52, on May 10, that was signed by Mayor John Suthers, just a few days after on May 13.

http://gazette.com/colorado-springs-mayor-day-of-reckoning-coming-for-citys-illegal-marijuana-growers/article/1577088 

In a nut shell, this ordinance (above,) is making it criminal to grow more than 12 plants per household without regard to the fact of ones plant count recommendation (Read above links). Yes, you heard it, it will be CRIMINAL! You will be a CRIMINAL, for exercising your rights under Amendment 20. Pay attention to what this will mean for patients here and eventually in the entire state.

https://coloradosprings.gov/sites/default/files/051016_personal_cultivation_ordinance_16-52.pdf

 Colorado Springs is a home rule municipality and basically what that means, is they can make their own rules. HOWEVER, when it comes to this situation they can not decide how many plants a patient is allowed to have! What the fuck? Why is this happening? Amendment 64. Why isn’t it being stopped? Greed and ignorance.

   All patients with higher plant counts will be affected, however, the patients that will be hurt the most are some of the many children whose parents moved here to treat their childrens rare illnesses with cannabis. Two of the families that will be affected and turned into criminals if arrested, will be Moms, Rebecca Lockwood and Marisa Kiser. Because of their childrens high plant counts and the negative impact it would have on their childrens health, Rebecca and Marisa, sprung into action. They decided to set up a meeting with City Council to get some answers and find compassion for all patients and spear headed an email campaign to Springs City Council.

  

Rebecca fears for the health and well-being of her child Calvin, as he has a plant count of 73 to treat his femoral retroversion, a debilitating abnormality, affecting the lower extremities.

http://www.aafp.org/afp/2003/0801/p461.html

https://www.youtube.com/watch?v=T8OYxQq7mIE

 Marisa Kisers son Ezra, just turned 4 and went in hospice when he was just 3. He suffers from violent seizures and at one time, had an unexplained onset of dystonia so severe that he broke 8 bones in one year. He has a 72 plant count. These are just 2 of the families that will be affected by this bullshit. 


 It was in a May 31 meeting that the Moms were told by the council members in attendance that, “The limited plants counts are just the beginning, a ban will be placed on all home grows, not just here, but thru out the state.” This very phrase was confirmed the beginning of June from council members in a separate meeting between members of council and member Bridget Serrit, of the newly formed organization, Colorado Patient Rights Coalition

 108 million patients and only a handful of you are or have been getting involved with the blatant disregard of our rights. This is going to affect you! Understand what it means! Get off of your asses and stand up for yourselves or bow down to your rights being stepped on by our local politicians. We all need to come together in force and show them that this will not be tolerated! Coming together in numbers will have greater impact and that is what it will take. This WILL happen in your town next, you need to be aware and know your rights as a patient.

Whether you grow or not, what can you do? First, research and familiarize yourselves with Amendment 20 and any laws regarding medical access in Colorado. Send emails to your local government officials that are implementing these laws. Call and leave them a brief, yet detailed message. Stand up for your rights! If you are available during the day, attend any protest about the matter that you see being advertised. Protests are being set up right now in Colorado Springs in front of Mayor Suthers office in Colorado Springs, on a monthly basis. The organization also has started a petition that as patients, you should sign.

 https://www.facebook.com/events/266481020371172/

https://www.change.org/p/colorado-state-house-keep-it-legal-colorado

  If you have paperwork to support your plant count recommendation, continue to grow that plant count. If police come to your home, DO NOT, under any circumstances, allow them access inside your home without a search warrant. DO NOT speak to the police. Record audio if they are in your home or at your door. DO NOT be swayed by the scare tactics they will try to use to get you to take a plea deal if you are arrested. You can and will win your case! It has been done! Now more than ever, is the time to get involved! Strength in numbers! Stand up!

 http://www.westword.com/news/medical-marijuana-patient-bob-crouse-acquitted-another-wasteful-prosecution-5859198

http://www.dailycamera.com/boulder-county-news/ci_16965794

http://gazette.com/jury-returns-not-guilty-verdict-in-mmj-case/article/140056

Audrey Hatfield

Former Founder and President of C4CPR

Medical Cannabis Patient and Colorado Activist

Write to city council allcouncil@springsgov.com

CDPHE, Please keep to the LAW Regarding Privacy

CDHPE Violates Patients Privacy

This past Wednesday, several patients came out in support of the CDHPE MMJ Privacy breach. I’m sure you heard that the CDHPE rejected a petition to stop police from getting our private patient data. Wait, What? You didn’t know about it? Didn’t the Registry contact you about it? Isn’t it is the duty of the Health department to “notify all mmj patients of any changes in the code?” It would be easy to post about the violation on their website, in fact, it should be mandatory! However, they “didn’t realize they were in violation,” so that must be why they didn’t post it? Really?
In Colorado Revised Statues, Regulation 5 it states:
“A). Authorized employees of state or local law enforcement agencies shall be granted access to the information contained within the department’s registry ONLY for the purpose of verifying that an individual who has PRESENTED a registry identification card to a state or local law enforcement official is lawfully in possession of such card. The department shall report to authorized state or local law enforcement officials whether a patient’s registry identification card has been suspended because the patient no longer has a debilitating medical condition.”
So, what’s the problem? Several patients have come forward with the same story. They get stopped for whatever reason, in another state and after the officer calls in, he somehow has knowledge that said person is a “red-card” holder. How can this be? They didn’t offer up the information, so how did they get it? Isn’t the Registry supposed to be confidential and protected? Officers are ONLY supposed to have this knowledge if said person presented them a red-card. In all of these instances, no red-card was presented.
For me, this is a huge problem! It’s bad enough the daily discrimination we face as cannabis patients. We have no protection in housing, employment, CPS or otherwise. The state reeled us in, took our money and then screwed us, bottom line! Offering us “protection and Confidentiality” and we have NONE! Oh, that’s right, we have A20, affirmative defense.
That’s all we have…As far as I’m concerned, the CDHPE should be held accountable. The program should be revised and they should pay a fine! But, I doubt that will EVER happen. It’s all a dangling carrot and the state has and is making bank off of sick people. We get treated like second class citizens and all we want is to be well. To be able to treat ourselves with a plant, without putting poison into our bodies. A plant that works for us all!

Audrey Hatfield/ President C4CPR website: http://www.c4cpr.org/

Another eye witness to the protest has this to say

MMJ Wobble me

“My comments on the CDPHE illegal violations, first I believe that the CDPHE has proven to be incompetent and no patient should feel confident that this government agency will honor the American peoples rights and protections, furthermore their lack of intelligence is no excuse for the crimes they have committed on innocent mmj patients and all parties of this breach should be terminated, in fact I strongly believe that the mmj patients are better off without an illegal database. I believe that the CDPHE hasn’t fulfilled its end of the deal by passing protected information to those who have no business having it, and it for their ignorance have put near 200,000 mmj patients in harms way by exposing anonymous locations and personal information which would be used to incriminate oneself, I say terminate the CDPHE database and we would rid the mmj patients from an unnecessary harm.”

Privacy is near and dear to the man behind the MMJ Wobble Me pen name. He has even created a social network online meant to offer more privacy while still offering the social networking of sites such as Facebook.

He has this to say about the site he created, “WobbleMe where we care about our natural, god given, human, constitutional and protections.

2013-08-23 wobble me

you may visit the site he created here:  http://wobbleme.com/

Images of the protest By: Mr. MMJ Wobble me they are his intellectual property and used with his permission.

2013-08-21 CDPHE privacy protest (1) 2013-08-21 CDPHE privacy protest (2) 2013-08-21 CDPHE privacy protest (3) 2013-08-21 CDPHE privacy protest (4) 2013-08-21 CDPHE privacy protest (5) 2013-08-21 CDPHE privacy protest (6) 2013-08-21 CDPHE privacy protest (7) 2013-08-21 CDPHE privacy protest (8) 2013-08-21 CDPHE privacy protest (9) 2013-08-21 CDPHE privacy protest (10)

Were you down in Denver at the recent CDPHE privacy protest? Do you have pictures or a story to share about the experience? I am working on a writing piece highlighting the protest and why it is important and I want to hear from you. Couldn’t make it down to the protests but still have an opinion? i would like to hear that as well…. be sure to let me know if you wish your commentary to appear in the article or if you are just registering your opinion to help me form my arguments. If you have photos, please let me know whom the photo credit should go to…. Thanks in advance. email to btokeefer@gmail.com or comment below.

more news stories on this protest:

Colorado health authorities reject emergency privacy petition

DENVER (AP) — Colorado health authorities have rejected an emergency petition from medical marijuana patients to destroy the state patient registry because of security breaches.

The state Board of Health apologized Wednesday to marijuana patients who demanded they destroy the 107,000-person marijuana patient registry. The patients are angry about security problems outlined in a June audit. However, the health board unanimously rejected the emergency request, saying they want to hear from the state attorney general before proceeding.

Colorado’s medical patient list is supposed to be accessible to law enforcement only under limited circumstances. But state auditors in June blasted the health department for lax security of the registry. The official who manages the registry told board members the security problems are being addressed.

Some marijuana patients on Colorado’s registry put paper bags over their heads to protest the Board of Health meeting on Wednesday.

http://www.nbc11news.com/news/headlines/Colorado-marijuana-patients-protest-privacy-breaches-220503261.html

Colorado Marijuana Patients Protest Privacy Breaches

DENVER (AP/CBS4) — Medical marijuana patients asked Colorado health authorities on Wednesday to destroy and rebuild the state’s 107,000-person marijuana patient registry because of security breaches.

The Board of Health unanimously rejected the emergency petition. But officials expressed alarm about a recent state audit showing the Colorado Department of Health and Environment isn’t keeping the registry confidential, as required by law.

“Patients can lose their jobs and they’ve had their children taken away, all because it’s been found out they’re a medical marijuana patient,” a medical marijuana patient who didn’t want to be identified for privacy reasons told CBS4.

Colorado last year made marijuana legal for all adults, but medical marijuana cards are still required to shop in dispensaries.

Colorado’s medical marijuana patient list is supposed to be accessible to law enforcement only under limited circumstances. But state auditors in June blasted the health department for lax security of the registry.

In one 2012 case, the health department turned over 107 names to an officer investigating a dispensary, a violation of the protocol for sharing registry information with authorities. In another case, the health department shared with auditors the names of 5,400 people designated to grow marijuana on behalf of others, without notifying the caregivers of the breach.

Auditors also criticized the health department for not getting confidentiality agreements from temporary employees hired to help process medical marijuana applications.

“The registry is compromised beyond repair. We don’t believe there’s any reason to trust this,” said Laura Kriho, who leads a patient advocacy group and filed the emergency petition asking the health department to destroy the database and start it again.

About a dozen protesters pulled paper bags over their heads to protest the privacy breaches outside the Board of Health meeting.

“That is why we are wearing paper bags over our heads; to symbolize these little pieces of paper are probably doing a better job protecting our confidentiality than the health department has,” the patient at the rally said.

“I’m disgusted. No other patients’ medical information is treated this way,” protester Kathleen Chippi said.

The administrator of Colorado’s pot patient registry insisted the state is making security upgrades suggested in the audit. Ron Hyman, the state’s registrar of vital statistics, said the agency needs more time to work with law enforcement and other state agencies to rectify problems involved in keeping the database secure.

“We take security and confidentiality of our registry very seriously,” Hyman said.

Hyman told the health board that isolated breaches notwithstanding, police are allowed to perform only individual registry checks, and only if the patient provides a registry number.

“The way it works is they submit information from the registry card that includes first and last name of the registered, the date of birth, and unique identification number,” Hyman said. “We feel we have prudent practices in place … they are not permitted to go on fishing expeditions.”

And the Colorado Bureau of Investigation confirmed to CBS4 they have a link to the registry. The health department agreed to improve security, but patients say it needs to be done sooner rather than later.

“One of the main reasons that we have a medical marijuana registry is because of the discriminations patients face,” a patient said.

Washington state, the only other state to allow medical and recreational marijuana use, does not keep a patient registry.

Colorado’s medical registry has declined since adult use was made legal, but only slightly. Colorado had 108,481 patients a month before the legalization measure passed, and 106,817 patients at the end of June, the most recent statistics available.

The protesters said they want the registry to continue, but they want it to be rebuilt and kept more secure. Colorado’s pot patients can possess more marijuana than recreational users, and they could face lower taxes, depending on what voters approve this November.

– By Kristen Wyatt, AP Writer

http://denver.cbslocal.com/2013/08/21/colorado-marijuana-patients-protest-privacy-breaches-2/

Colorado board rejects petition to stop cops from getting data on med pot users

POSTED:   08/21/2013 02:45:58 PM MDT55 COMMENTS
UPDATED:   08/22/2013 01:04:40 AM MDT
Wayward Bill Chengelis, Chairman of the U.S. Marijuana Party, along with other marijuana patients on Colorado’s registry, attending a state Board of Health meeting, Aug. 21, 2013. (RJ Sangosti, The Denver Post)

The state Board of Health on Wednesday rejected an emergency petition filed by medical marijuana patients who urged the panel to halt the sharing of patient information with law enforcement.

A June audit found that the Colorado Department of Health and Environment hasn’t kept the registry confidential.

The board apologized to marijuana patients who demanded they destroy and rebuild the 107,000-person registry. Information from the registry is supposed to be accessible to law enforcement only under limited circumstances.

Board president Laura Davis said the panel doesn’t have enough information to determine that the registry is not working properly.

That information will come from the state Attorney General’s Office, which so far has made no formal recommendations about what, if anything, should be changed, Davis said.

“We don’t know that we are doing anything wrong,” she said. “The prudent thing to do is have a conversation with the attorney general.”

Audrey Hatfield, president of Coloradans for Cannabis Patient Rights, said three patients had contacted her to complain that officers who stopped them and ran their names through their computers found that they were on the registry. “It has been going on for at least a year,” she said.

Ron Hyman, the state’s registrar of vital statistics, said his office has been in contact with the attorney general “to assure we are adequately following what we should be doing. The audit said we are moving through uncharted waters and we want to be prudent.”

The state has been making changes recommended in the audit, he said.

In a 2012 case, according to the audit, the health department turned over 107 names to an officer investigating a dispensary, a violation of the protocol for sharing registry information with authorities. In another case, the health department shared with auditors the names of 5,400 people designated to grow marijuana on behalf of others, without notifying the caregivers of the breach.

Auditors also criticized the health department for not getting confidentiality agreements from temporary employees hired to help process medical marijuana applications.

Laura Kriho, of the Cannabis Therapy Institute, said she would resubmit the petition. The names on the registry should be confidential “so patients won’t fear being treated as criminals.”

Marijuana activists demonstrated during the meeting outside the Colorado Department of Public Health and Environment. They wore paper bags over their heads to protest what they called the breach of confidentiality.

The Associated Press contributed to this report

The Associated Press contributed to this report

http://www.denverpost.com/breakingnews/ci_23911097/colorado-board-rejects-petition-stop-police-from-getting

Want to do something? write the CDPHE

Contact info For CDPHE

CDPHE

HSV-80608

4300 Cherry Creek Drive South

Denver, CO 80246-1530

 e-mail: medical.marijuana@state.co.us

 Web site: www.colorado.gov/cdphe/medicalmarijuana

 Phone: 303-692-2184

Lets remind ourselves what amendment 20 says in its entirety. I have highlighted some passages that deal with privacy:

0-4-287 – ARTICLE XVIII – Miscellaneous Art. XVIII – Miscellaneous

Section 14. Medical use of marijuana for persons suffering from debilitating medical conditions. (1) As used in this section, these terms are defined as follows:
(a) “Debilitating medical condition” means:
(I) Cancer, glaucoma, positive status for human immunodeficiency virus, or acquired immune deficiency syndrome, or treatment for such conditions;
(II) A chronic or debilitating disease or medical condition, or treatment for such conditions, which produces, for a specific patient, one or more of the following, and for which, in the professional opinion of the patient’s physician, such condition or conditions reasonably may be alleviated by the medical use of marijuana: cachexia; severe pain; severe nausea; seizures, including those that are characteristic of epilepsy; or persistent muscle spasms, including those that are characteristic of multiple sclerosis; or
(III) Any other medical condition, or treatment for such condition, approved by the state health agency, pursuant to its rule making authority or its approval of any petition submitted by a patient or physician as provided in this section.
(b) “Medical use” means the acquisition, possession, production, use, or transportation of marijuana or paraphernalia related to the administration of such marijuana to address the symptoms or effects of a patient’s debilitating medical condition, which may be authorized only after a diagnosis of the patient’s debilitating medical condition by a physician or physicians, as provided by this section.
(c) “Parent” means a custodial mother or father of a patient under the age of eighteen years, any person having custody of a patient under the age of eighteen years, or any person serving as a legal guardian for a patient under the age of eighteen years.
(d) “Patient” means a person who has a debilitating medical condition.
(e) “Physician” means a doctor of medicine who maintains, in good standing, a license to practice medicine issued by the state of Colorado.
(f) “Primary care-giver” means a person, other than the patient and the patient’s physician, who is eighteen years of age or older and has significant responsibility for managing the well-being of a patient who has a debilitating medical condition.
(g) “Registry identification card” means that document, issued by the state health agency, which identifies a patient authorized to engage in the medical use of marijuana and such patient’s primary care-giver, if any has been designated.
(h) “State health agency” means that public health related entity of state government designated by the governor to establish and maintain a confidential registry of patients authorized to engage in the medical use of marijuana and enact rules to administer this program.
(i) “Usable form of marijuana” means the seeds, leaves, buds, and flowers of the plant (genus) cannabis, and any mixture or preparation thereof, which are appropriate for medical use as provided in this section, but excludes the plant’s stalks, stems, and roots.
(j) “Written documentation” means a statement signed by a patient’s physician or copies of the patient’s pertinent medical records.
(2) (a) Except as otherwise provided in subsections (5), (6), and (8) of this section, a patient or primary care-giver charged with a violation of the state’s criminal laws related to the patient’s medical use of marijuana will be deemed to have established an affirmative defense to such allegation where:
(I) The patient was previously diagnosed by a physician as having a debilitating medical condition;
(II) The patient was advised by his or her physician, in the context of a bona fide physician-patient
relationship, that the patient might benefit from the medical use of marijuana in connection with a debilitating
medical condition; and
(III) The patient and his or her primary care-giver were collectively in possession of amounts of marijuana
only as permitted under this section.
This affirmative defense shall not exclude the assertion of any other defense where a patient or primary
care-giver is charged with a violation of state law related to the patient’s medical use of marijuana.
(b) Effective June 1, 2001, it shall be an exception from the state’s criminal laws for any patient or primary
care-giver in lawful possession of a registry identification card to engage or assist in the medical use of
marijuana, except as otherwise provided in subsections (5) and (8) of this section.
(c) It shall be an exception from the state’s criminal laws for any physician to:
(I) Advise a patient whom the physician has diagnosed as having a debilitating medical condition, about the
risks and benefits of medical use of marijuana or that he or she might benefit from the medical use of
marijuana, provided that such advice is based upon the physician’s contemporaneous assessment of the
patient’s medical history and current medical condition and a bona fide physician-patient relationship; or
(II) Provide a patient with written documentation, based upon the physician’s contemporaneous assessment
of the patient’s medical history and current medical condition and a bona fide physician-patient relationship,
stating that the patient has a debilitating medical condition and might benefit from the medical use of
marijuana.
No physician shall be denied any rights or privileges for the acts authorized by this subsection.
(d) Notwithstanding the foregoing provisions, no person, including a patient or primary care-giver, shall be
entitled to the protection of this section for his or her acquisition, possession, manufacture, production, use,
sale, distribution, dispensing, or transportation of marijuana for any use other than medical use.
(e) Any property interest that is possessed, owned, or used in connection with the medical use of marijuana
or acts incidental to such use, shall not be harmed, neglected, injured, or destroyed while in the possession
of state or local law enforcement officials where such property has been seized in connection with the
claimed medical use of marijuana. Any such property interest shall not be forfeited under any provision of
state law providing for the forfeiture of property other than as a sentence imposed after conviction of a
criminal offense or entry of a plea of guilty to such offense. Marijuana and paraphernalia seized by state or
local law enforcement officials from a patient or primary care-giver in connection with the claimed medical
use of marijuana shall be returned immediately upon the determination of the district attorney or his or her
designee that the patient or primary care-giver is entitled to the protection contained in this section as may
be evidenced, for example, by a decision not to prosecute, the dismissal of charges, or acquittal.
(3) The state health agency shall create and maintain a confidential registry of patients who have applied for
and are entitled to receive a registry identification card according to the criteria set forth in this subsection,
effective June 1, 2001.
(a) No person shall be permitted to gain access to any information about patients in the state health
agency’s confidential registry, or any information otherwise maintained by the state health agency about
physicians and primary care-givers, except for authorized employees of the state health agency in the
course of their official duties and authorized employees of state or local law enforcement agencies which
have stopped or arrested a person who claims to be engaged in the medical use of marijuana and in
possession of a registry identification card or its functional equivalent, pursuant to paragraph (e) of this
subsection (3). Authorized employees of state or local law enforcement agencies shall be granted access to
the information contained within the state health agency’s confidential registry only for the purpose of
verifying that an individual who has presented a registry identification card to a state or local law
enforcement official is lawfully in possession of such card.
(b) In order to be placed on the state’s confidential registry for the medical use of marijuana, a patient must
reside in Colorado and submit the completed application form adopted by the state health agency, including
the following information, to the state health agency:
(I) The original or a copy of written documentation stating that the patient has been diagnosed with a debilitating medical condition and the physician’s conclusion that the patient might benefit from the medical use of marijuana;
(II) The name, address, date of birth, and social security number of the patient;
(III) The name, address, and telephone number of the patient’s physician; and
(IV) The name and address of the patient’s primary care-giver, if one is designated at the time of application.
(c) Within thirty days of receiving the information referred to in subparagraphs (3) (b) (I)-(IV), the state health agency shall verify medical information contained in the patient’s written documentation. The agency shall notify the applicant that his or her application for a registry identification card has been denied if the agency’s review of such documentation discloses that: the information required pursuant to paragraph (3) (b) of this section has not been provided or has been falsified; the documentation fails to state that the patient has a debilitating medical condition specified in this section or by state health agency rule; or the physician does not have a license to practice medicine issued by the state of Colorado. Otherwise, not more than five days after verifying such information, the state health agency shall issue one serially numbered registry identification card to the patient, stating:
(I) The patient’s name, address, date of birth, and social security number;
(II) That the patient’s name has been certified to the state health agency as a person who has a debilitating medical condition, whereby the patient may address such condition with the medical use of marijuana;
(III) The date of issuance of the registry identification card and the date of expiration of such card, which shall be one year from the date of issuance; and
(IV) The name and address of the patient’s primary care-giver, if any is designated at the time of application.
(d) Except for patients applying pursuant to subsection (6) of this section, where the state health agency, within thirty-five days of receipt of an application, fails to issue a registry identification card or fails to issue verbal or written notice of denial of such application, the patient’s application for such card will be deemed to have been approved. Receipt shall be deemed to have occurred upon delivery to the state health agency, or deposit in the United States mails. Notwithstanding the foregoing, no application shall be deemed received prior to June 1, 1999. A patient who is questioned by any state or local law enforcement official about his or her medical use of marijuana shall provide a copy of the application submitted to the state health agency, including the written documentation and proof of the date of mailing or other transmission of the written documentation for delivery to the state health agency, which shall be accorded the same legal effect as a registry identification card, until such time as the patient receives notice that the application has been denied.
(e) A patient whose application has been denied by the state health agency may not reapply during the six months following the date of the denial and may not use an application for a registry identification card as provided in paragraph (3) (d) of this section. The denial of a registry identification card shall be considered a final agency action. Only the patient whose application has been denied shall have standing to contest the agency action.
(f) When there has been a change in the name, address, physician, or primary care- giver of a patient who has qualified for a registry identification card, that patient must notify the state health agency of any such change within ten days. A patient who has not designated a primary care-giver at the time of application to the state health agency may do so in writing at any time during the effective period of the registry identification card, and the primary care-giver may act in this capacity after such designation. To maintain an effective registry identification card, a patient must annually resubmit, at least thirty days prior to the expiration date stated on the registry identification card, updated written documentation to the state health agency, as well as the name and address of the patient’s primary care-giver, if any is designated at such time.
(g) Authorized employees of state or local law enforcement agencies shall immediately notify the state health agency when any person in possession of a registry identification card has been determined by a court of law to have willfully violated the provisions of this section or its implementing legislation, or has pled guilty to such offense.
(h) A patient who no longer has a debilitating medical condition shall return his or her registry identification card to the state health agency within twenty-four hours of receiving such diagnosis by his or her physician.
(i) The state health agency may determine and levy reasonable fees to pay for any direct or indirect administrative costs associated with its role in this program.
(4) (a) A patient may engage in the medical use of marijuana, with no more marijuana than is medically necessary to address a debilitating medical condition. A patient’s medical use of marijuana, within the following limits, is lawful:
(I) No more than two ounces of a usable form of marijuana; and
(II) No more than six marijuana plants, with three or fewer being mature, flowering plants that are producing a usable form of marijuana.
(b) For quantities of marijuana in excess of these amounts, a patient or his or her primary care-giver may raise as an affirmative defense to charges of violation of state law that such greater amounts were medically necessary to address the patient’s debilitating medical condition.
(5) (a) No patient shall:
(I) Engage in the medical use of marijuana in a way that endangers the health or well-being of any person; or
(II) Engage in the medical use of marijuana in plain view of, or in a place open to, the general public.
(b) In addition to any other penalties provided by law, the state health agency shall revoke for a period of one year the registry identification card of any patient found to have willfully violated the provisions of this section or the implementing legislation adopted by the general assembly.
(6) Notwithstanding paragraphs (2) (a) and (3) (d) of this section, no patient under eighteen years of age shall engage in the medical use of marijuana unless:
(a) Two physicians have diagnosed the patient as having a debilitating medical condition;
(b) One of the physicians referred to in paragraph (6) (a) has explained the possible risks and benefits of medical use of marijuana to the patient and each of the patient’s parents residing in Colorado;
(c) The physicians referred to in paragraph (6) (b) has provided the patient with the written documentation, specified in subparagraph (3) (b) (I);
(d) Each of the patient’s parents residing in Colorado consent in writing to the state health agency to permit the patient to engage in the medical use of marijuana;
(e) A parent residing in Colorado consents in writing to serve as a patient’s primary care-giver;
(f) A parent serving as a primary care-giver completes and submits an application for a registry identification card as provided in subparagraph (3) (b) of this section and the written consents referred to in paragraph (6) (d) to the state health agency;
(g) The state health agency approves the patient’s application and transmits the patient’s registry identification card to the parent designated as a primary care-giver;
(h) The patient and primary care-giver collectively possess amounts of marijuana no greater than those specified in subparagraph (4) (a) (I) and (II); and
(i) The primary care-giver controls the acquisition of such marijuana and the dosage and frequency of its use by the patient.
(7) Not later than March 1, 2001, the governor shall designate, by executive order, the state health agency as defined in paragraph (1) (g) of this section.
(8) Not later than April 30, 2001, the General Assembly shall define such terms and enact such legislation as may be necessary for implementation of this section, as well as determine and enact criminal penalties for:
(a) Fraudulent representation of a medical condition by a patient to a physician, state health agency, or state or local law enforcement official for the purpose of falsely obtaining a registry identification card or avoiding arrest and prosecution;
(b) Fraudulent use or theft of any person’s registry identification card to acquire, possess, produce, use, sell, distribute, or transport marijuana, including but not limited to cards that are required to be returned where patients are no longer diagnosed as having a debilitating medical condition;
(c) Fraudulent production or counterfeiting of, or tampering with, one or more registry identification cards; or
(d) Breach of confidentiality of information provided to or by the state health agency.
(9) Not later than June 1, 2001, the state health agency shall develop and make available to residents of Colorado an application form for persons seeking to be listed on the confidential registry of patients. By such date, the state health agency shall also enact rules of administration, including but not limited to rules governing the establishment and confidentiality of the registry, the verification of medical information, the issuance and form of registry identification cards, communications with law enforcement officials about registry identification cards that have been suspended where a patient is no longer diagnosed as having a debilitating medical condition, and the manner in which the agency may consider adding debilitating medical conditions to the list provided in this section. Beginning June 1, 2001, the state health agency shall accept physician or patient initiated petitions to add debilitating medical conditions to the list provided in this section and, after such hearing as the state health agency deems appropriate, shall approve or deny such petitions within one hundred eighty days of submission. The decision to approve or deny a petition shall be considered a final agency action.
(10) (a) No governmental, private, or any other health insurance provider shall be required to be liable for any claim for reimbursement for the medical use of marijuana.
(b) Nothing in this section shall require any employer to accommodate the medical use of marijuana in any work place.
(11) Unless otherwise provided by this section, all provisions of this section shall become effective upon official declaration of the vote hereon by proclamation of the governor, pursuant to article V, section (1) (4), and shall apply to acts or offenses committed on or after that date.
Enacted by the People November 7, 2000 — Effective upon proclamation of the Governor.

retrieved from: http://www.colorado.gov/cs/Satellite/CDPHE-CHEIS/CBON/1251593017076 August 23, 2013 6:39pm MDT

Shall We Call it Wail Oil or Phoenix Tears?

Its the bitter watches of the night and I wake. I ask myself what it is that has rousted me this day from my slumber. Its not near my body clock’s time of 4am…. There is a wailing in my mind and I must ask myself “whose pain is this?” for I know it is not mine. My body is aching with the storm on the peak, but I’d just found my center and there was no wail with in me like this to speak.

So trying not to wake the other in my bed, I sit quietly and listen to see what it is this wailing voice has come to seek. Its victims so many victims… victims of war, hungry ghosts of a corrupt system, victims of the human butchers and legal poison vendors, victims of industry and victims of hard work, being eaten alive by cancer and bodily disorder of so many shapes and forms it makes me shudder in vibration with this wail. And within me I hold an answer for so many a gift from above that I try to spread without regard to a patient station in life….. It is a wail of responsibility. It is a wail of the profiteer’s victims. It is the wail of prohibitions ugly head……

I light a candle to guard my heart from a wailing so deep in the thick of the night and I still listen to the voice in my mind reminding me of their plight. I sit a while with the lamb in my breath asking that higher than I to step in and take this wail up with my smoke to the sky. I ask for the means to bless those wailing with even a few grams of healing and hope cause I believe in doing what my creator said. And I know that this life and this path I have chosen for myself has never been easy but its not about self.

I give honor to the earth. I burn sacred sage of the earth and cleanse the darkness from my mind until light only remains. I light incense and honor the air. More candles glow and I honor the firey spirit of the soul and I soak in salted and perfumed waters and try to scrub away the victimization of these beautiful souls. Lambs breath fills my pipe and lungs and mind and I try to send a shining beacon of the creators light to these wailing in my mind and in the dark and in their own lives and pain… Dressed for the day I inhale organic tobacco and ponder quietly.

Then another presence comes upon my mind…. and I am taken back though the years and back in time. To a place and time where my body was not constantly sore…. Its boulder its Ginsberg its 1994. Its a little bookish Jewish dude who howled for his time and who brought me to his feet to sit for a time… You see he was my own personal poet willy wonka who saw a bit of my poetry and brought me on up to the Naropa factory to sit at his feet for the anniversary of his beloved school. It was Allen Ginsberg day in Boulder and I was with the master and yet a child myself….. I remember how he opened my eyes and smoked a blended herbal cigarette with me in an intermission…..

What dreams I have of you tonight Allen Ginsberg as you dreamed of Walt Whitman…. with sick people wailing in the night and my soul howling at the moon of my own inner madness.

I wonder where you are tonight while I feel so small and so responsible. I imagine you my zen master in your own nirvana or perhaps your here again in another body and another life… But from wherever you are I seem to hear your voice reminding me of the power of my pen and of the ideals to which you and I both try to keep. You wanted freedom of the plant and so do I. I’m trying to be a willy wonka for others where you were willy wonks for I… and so my musings and prayers and light intercessions complete I turn to what I can do for those wailing from where I am and put actions to the light that I keep.

And so I begin to wail for these folks online saying with my writers voice and my mighty pen:

I begin with this blessing: Virtual early Sunday morning tokes to all of the Rastafarian sacramental strain lambs breath. For me this strain quiets fears and calms my mind. It clears my mind and puts me in a space where i can enter my creators holy throne room with gratitude and peace instead of chaos and turmoil. It makes me still enough to hear the still small voice of my soul. It points me to currents and springs of strength and reminds me of the good i do. All of this i have for me i extend to you virtually and in energy and prayer.

Note***** There are two sacramental strains to the Rastafarian religion. One is called Lamb’s bread (I have never had the pleasure of smoking this strain) and it is said to have cola’s so large that the buds are sliced up like slices of bread. This is said to be more for dancing and rejoicing before the Lamb. Lamb’s breath is characterized by smaller dense highly resinous buds that are mellow, mind clearing and good for quiet contemplation.

I am still looking for new raw material sources to meet demand. I will pay $100 a pound for quality trim. I know a lot of you usually process your own trim but who cant use an extra few dollars around the holidays that the transaction goes to save lives? Call 719 480 0238. you must be in Colorado. I need bulk i need it quick.

I will travel anywhere in the state and negotiate on price for the right weight of the right stuff. I need trim that bad. I am trying to get people served as quickly as possible while longer term sources Relationships are in the works. Call 719 480 0238. A portion of any and all trim purchased goes to provide free phoenix tears to those in need that is why i need good prices. To put goodies into financially challenged cancer and severe illness folks hands. Lets get those free folks their Christmas presents and the paid folks what they deserve. It will make you feel good to give some people tears of joy.

The rest of you who cannot help with actions you may offer you energy to the task. Never underestimate the power of prayer in intercession for someone else. If we focus good vibes on those free peeps and paid peeps their lives can improve exponentially by far more than me just getting Their oil delivered to them. I invite you to join me in that intention…. No, i challenge you to.

Where is the heart that used to beat in this state for the less fortunate? Have you all gone mad with greed? I am willing to pay a fair price so i can give meds away for free. Will no one support me in that cause? Are you all so rich you can laugh at thousands of dollars? Are you all so unmoved by the plight of the less fortunate? Is there no one who believes in me filling hands where mine once needed filled? No one thinks its good to repay kindness by paying
it forward to others?

I just gotta get these people taken care of. For some it means hope to try for another year. There is a couple who lives on the street. One partner has bone cancer and has all but given up. When my oil is there they live as good as they can and enjoy what life they have. Without the oil bone cancer boy gives up. They cant pay and i don’t care. I wanna give them both some hope and quality of life.

There is a writer whom many respect respect within our community whose belly aches him to no end and he cant sleep among other serious issues that are more private. He works hard for our cause but cant afford oil. He is the very picture of a starving writer and artist with a good soul and I wanna get him some rest and comfort so he can continue to serve us all so well.

There is an awesome bud-tend who works for far less than he is worth. The shop he works for sells oil yet it is out of his price range. A grain of rice a day would stop him from needing a diabetic needle yet his pancreas is far overworked. I wanna be sure he can keep giving patients the strains they need with the brain in his head. I have never left his shop with anything other than a strain to treat exactly the conditions I am concerned about that day mostly due to his knowledge that keeps a wide variety of strains for a wide variety of ailments on the shelves and getting into the right hands.

There are Numerous ladies and gents with tumors praying to avoid chemo and folks hoping not to need their noses scraped off their faces Who cant pay and need mercy. How can anyone deny the value of what i”m trying to accomplish? will no one sell me the raw materials i need to enrich these lives. I have shared but the tip of the iceberg.

Someone calls these folks I’m trying to help jewels in my crown. I bristle at the suggestion. I don’t care about jewels in my crown. If the creator blesses me as such that is incidental. I give because i know need better than most and to repay the kindnesses done for me by good people when i had nothing.

I do it because someone needs to and far too many are far too concerned with profit. I do it because these are victims of a corrupt system each and everyone in one way or another.

And i do it because it is in my nature to do it. And to make my murdered son proud of me from where he sits waiting on me in the afterlife and to make his wait have meaning. Help me make these sick people’s wait have meaning too.

So if you have some trim and a heart call me at 719 480 0238 And lets bless some people together. If you have a heart and no trim please just keep these good folks in your thoughts and prayers or however you communicate with the universe offer some strength in the direction of one or more of these people. Don’t direct it at me please. The sick need your love and light far more than i do.

I ask again! Where is the heart that used to beat in this state for the less fortunate? Have you all gone mad with greed? I am willing to pay a fair price so i can give meds away for free. Will no one support me in that cause? Are you all so rich you can laugh at thousands of dollars? Are you all so unmoved by the plight of the less fortunate? Is there no one who believes in me filling hands where mine once needed filled? No one thinks its good to repay kindness by paying it forward to others?

And so I move from being woke in the night, to prayer, to action trying to get some help to those who need it most. Won’t you please help me? I want to buy raw materials to make them medicine. That’s all.

Some Raw Materials images purchased after this post:

This is some sugar out of one of our big bags of trim

GEDSC DIGITAL CAMERA

virtual tokes from my bag to your bowl.....some bud from an oil making bag of raw materials that came from an awesome friend — in Denver, CO.

virtual tokes from my bag to your bowl…..
some bud from an oil making bag of raw materials that came from an awesome friend — in Denver, CO.

You Can't see my pain with your eyes. The only thing that relieves my pain is Cannabis! You could never imagine the pain I suffer, yet you deny me my freedom.

You Can’t see my pain with your eyes. The only thing that relieves my pain is Cannabis! You could never imagine the pain I suffer, yet you deny me my freedom.

Familial Mediterranean Fever ~ a Rare genetic disease

I do not look like I have a single drop of Mediterranean blood in me, so why do i care about this rare genetic disorder? Because the color of skin is only skin deep. Because despite the pale appearance of my exterior,  I have the genetic ancestor from that part of the world who handed me this recessive trait. Because I have this disease and have to live with it…

Breezy Kiefair struggling to gain weight post flare

Breezy Kiefair struggling to gain weight post flare

I care because I need to repost the links as many times as possible in hopes that those related to me by blood will heed my warning and look for signs of the disorder in the kids…. I have made no secret of the fact that I am far estranged from my biological family, so I turn to electronic means to spread the word.

There is no cure, but the treatment does help….. There is no cure, but knowledge that there is indeed something wrong and that I am not a hypochondriac is soothing to the mind…. There is no cure, but it sure as hell does explain a lot about both myself and my blood relatives… BOTH my parents had to have the recessive gene in order for me to have this disorder. Both my parent’s sets of siblings may also be carriers of these recessive traits….  ALL of my blood siblings (half or full blooded) are POTENTIAL carriers of the defect…. Therefore, ALL of my blood nieces and nephews are potential victims of the disease as well as their children. It is my hope that those in my family will stumble upon this post and then value the family’s future generations enough to spread this information to where it may be of use (i emailed it directly to those whose email addresses I possess in my bloodline)
the below information was retrieved from: http://ghr.nlm.nih.gov/condition/familial-mediterranean-fever

What is familial Mediterranean fever?

Familial Mediterranean fever is an inherited condition characterized by recurrent episodes of painful inflammation in the abdomen, chest, or joints. These episodes are often accompanied by fever and sometimes a rash. The first episode usually occurs in childhood or the teenage years, but in some cases, the initial attack occurs much later in life. Typically, episodes last 12 to 72 hours and can vary in severity. The length of time between attacks is also variable. Without treatment to help prevent attacks and complications, a buildup of certain protein deposits (amyloidosis) in the body’s organs and tissues may occur, which can lead to kidney failure.

How common is familial Mediterranean fever?

Familial Mediterranean fever primarily affects populations originating in the Mediterranean region, particularly people of Armenian, Arabic, Turkish, and Jewish ancestry. The disorder affects from 1 in 250 people to 1 in 1,000 people in these populations. It is less common in other populations.

What genes are related to familial Mediterranean fever?

Mutations in the MEFV gene cause familial Mediterranean fever. The MEFV gene provides instructions for making a protein called pyrin (also known as marenostrin), which is found in white blood cells. This protein is involved in the immune system, helping to regulate the process of inflammation. Inflammation occurs when the immune system sends signaling molecules and white blood cells to a site of injury or disease to fight microbial invaders and facilitate tissue repair. When this has been accomplished, the body stops the inflammatory response to prevent damage to its own cells and tissues.

Mutations in the MEFV gene reduce the activity of the pyrin protein, which disrupts control of the inflammation process. An inappropriate or prolonged inflammatory response can result, usually accompanied by fever and pain in the abdomen, chest, or joints.

Normal variations in the SAA1 gene may modify the course of familial Mediterranean fever. Some evidence suggests that a particular version of the SAA1 gene (called the alpha variant) may increase the risk of amyloidosis among people with familial Mediterranean fever.

Read more about the MEFV and SAA1 genes.

How do people inherit familial Mediterranean fever?

Familial Mediterranean fever is almost always inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.

In rare cases, this condition appears to be inherited in an autosomal dominant pattern, in which one copy of the altered gene in each cell is sufficient to cause the disorder and affected individuals often inherit the mutation from one affected parent. However, there are other possible explanations of this apparent pattern. A gene mutation that occurs frequently in a population may result in a disorder with autosomal recessive inheritance appearing in multiple generations in a family, a pattern that mimics autosomal dominant inheritance. If one parent has familial Mediterranean fever (with two mutations in the MEFV gene) and the other parent is an unaffected carrier (with one mutation in the MEFV gene), it may appear as if the affected child inherited the disorder only from the affected parent. This appearance of autosomal dominant inheritance when the pattern is actually autosomal recessive is called pseudodominance.

Where can I find information about diagnosis or management of familial Mediterranean fever?

These resources address the diagnosis or management of familial Mediterranean fever and may include treatment providers.

You might also find information on the diagnosis or management of familial Mediterranean fever inEducational resources and Patient support.

To locate a healthcare provider, see How can I find a genetics professional in my area? in the Handbook.

Where can I find additional information about familial Mediterranean fever?

You may find the following resources about familial Mediterranean fever helpful. These materials are written for the general public.

You may also be interested in these resources, which are designed for healthcare professionals and researchers.

What other names do people use for familial Mediterranean fever?

  • Benign paroxysmal peritonitis
  • Familial paroxysmal polyserositis
  • FMF
  • Hereditary Periodic Fever Syndromes
  • Mediterranean Fever, Familial
  • MEF
  • Periodic Disease
  • Periodic peritonitis
  • Recurrent polyserositis
  • Reimann periodic disease
  • Siegal-Cattan-Mamou disease
  • Wolff Periodic Disease

For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.

What if I still have specific questions about familial Mediterranean fever?

Where can I find general information about genetic conditions?

What glossary definitions help with understanding familial Mediterranean fever?

amyloidosis ; autosomal ; autosomal dominant ; autosomal recessive ; benign ; carrier ; cell ; complication ;familial ; fever ; gene ; immune system ; inflammation ; inheritance ; injury ; joint ; kidney ; molecule ;mutation ; population ; protein ; pseudodominance ; recessive ; sign ; symptom ; syndrome ; teenage ;tissue ; white blood cells

You may find definitions for these and many other terms in the Genetics Home Reference Glossary.

See also Understanding Medical Terminology.

References (13 links)

The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. See How can I find a genetics professional in my area? in the Handbook.

Reviewed: September 2008
Published: October 23, 2012

please also read: 

http://emedicine.medscape.com/article/330284-overview#showall

 
and here is some more information retrieved from: http://en.wikipedia.org/wiki/Familial_Mediterranean_fever

Familial Mediterranean fever

From Wikipedia, the free encyclopedia

Familial Mediterranean fever (FMF) is a hereditary inflammatory disorder[1]:149. FMF is an autoinflammatory disease caused by mutations in MEFV, a gene which encodes a 781–amino acid protein denoted pyrin.[2]

The disorder has been given various names including familial paroxysmal polyserositis, periodic peritonitis, recurrent polyserositis, benign paroxysmal peritonitis, periodic disease or periodic fever, Reimann periodic disease or Reimann’s syndrome, Siegal-Cattan-Mamou disease, and Wolff periodic disease.[3][4][5] Note that “periodic fever” can also refer to any of thePeriodic fever syndromes.

Epidemiology

FMF affects groups of people originating from around the Mediterranean Sea (hence its name). It is prominently present in the Armenian people, Sephardi Jews (and, to a much lesser extent, Ashkenazi Jews), CypriotsTurks and Arabs.[6]

[edit]Signs and symptoms

[edit]Attacks

There are seven types of attacks. Ninety percent of all patients have their first attacks before they are 18 years old. All develop over 2–4 hours and last anywhere from 6 hours to 4 days. Most attacks involve fever.[6]

  1. Abdominal attacks, featuring abdominal pain, affect the whole abdomen with all signs of peritonitis (inflammation of abdominal lining), and acute abdominal pain likeappendicitis. They occur in 95% of all patients and may lead to unnecessary laparotomy. Incomplete attacks, with local tenderness and normal blood tests, have been reported.
  2. Joint attacks mainly occur in large joints, especially in the legs. Usually, only one joint is affected. Seventy-five percent of all FMF patients experience joint attacks.
  3. Chest attacks include pleuritis (inflammation of the pleura) and pericarditis (inflammation of the pericardium). Pleuritis occurs in 40% of patients, and makes it difficult to breathe or lie flat, but pericarditis is rare.
  4. Scrotal attacks due to inflammation of the tunica vaginalis occurs in up to 5% and may be mistaken for acute scrotum (i.e. testicular torsion).
  5. Myalgia (rare in isolation)
  6. Erysipeloid (a skin reaction on the legs, rare in isolation)
  7. Fever without any of the other symptoms listed above (25%)

[edit]Complications

AA-amyloidosis with renal failure is a complication and may develop without overt crises. AA amyloid protein is produced in very large quantities during attacks, and at a low rate between them, and accumulates mainly in the kidney, as well as the heartspleengastrointestinal tract and thyroid.[6]

There appears to be an increase in the risk for developing particular vasculitis-related diseases (e.g. Henoch-Schönlein purpura), spondylarthropathy, prolonged arthritis of certain joints and protracted myalgia.[6]

[edit]Diagnosis

The diagnosis is clinically made on the basis of the history of typical attacks, especially in patients from the ethnic groups in which FMF is more highly prevalent. An acute phase response is present during attacks, with high C-reactive protein levels, an elevated white blood cell count and other markers of inflammation. In patients with a long history of attacks, monitoring the renal function is of importance in predicting chronic renal failure.[6]

A genetic test is also available to detect mutations in the MEFV gene. Sequencing of exons 2, 3, 5, and 10 of this gene detects an estimated 97% of all known mutations.[6]

A specific and highly sensitive test for FMF is the “Metaraminol Provocative Test (MPT),” whereby a single 10 mg infusion of Metaraminol is administered to the patient. A positive diagnosis is made if the patient presents with a typical, albeit milder, FMF attack within 48 hours. As MPT is more sensitive than specific, it does not identify all cases of FMF. Although a positive MPT can be very useful.[7][8]

[edit]Pathophysiology

Virtually all cases are due to a mutation in the MEFV gene on the sixteenth chromosome, which codes for a protein called pyrin or marenostrin. Various mutations of this gene lead to FMF, although some mutations cause a more severe picture than others. Mutations occur mainly in exons 2, 3, 5 and 10.[6]

The function of pyrin has not been completely elucidated, but it appears to be a suppressor of the activation of caspase 1, the enzyme that stimulates production of interleukin 1β, a cytokine central to the process of inflammation. In other words an ineffective pyrin doesn’t inhibit inflammation normally, resulting in inflammatory episodes of membranes at differing sites. It is not conclusively known what exactly sets off the attacks, and why overproduction of IL-1 would lead to particular symptoms in particular organs (e.g. joints or the peritoneal cavity).[6]

[edit]Genetics

Familial Mediterranean fever has an autosomal recessive pattern of inheritance.

The MEFV gene is located on the short arm of chromosome 16 (16p13). The disorder inherits in an autosomal recessive fashion. Therefore, two asymptomatic carrier parents have a 25% chance of a child with the disorder, a 50% chance of a child who is an asymptomatic carrier and a 25% chance of a child who does not carry the disorder. FMF patients who have children with a carrier or another FMF patient have a 50% and 100% chance, respectively, of having a child with FMF.[9][10]

There is one known case of an affected patient with only one parent who is a carrier. This is caused by a unique mutation on thesixteenth chromosome.

[edit]Treatment

Attacks are self-limiting, and require analgesia and NSAIDs (such as diclofenac).[6]

Colchicine, a drug otherwise mainly used in gout, decreases attack frequency in FMF patients. The exact way in which colchicine suppresses attacks is unclear. While this agent is not without side effects (such as abdominal pain and muscle pains), it may markedly improve quality of life in patients. The dosage is typically 1–2 mg a day. Development of amyloidosis is delayed with colchicine treatment. Interferon is being studied as a therapeutic modality.[6] Some advise discontinuation of colchicine before and during pregnancy, but the data are inconsistent, and others feel it is safe to take colchicine during pregnancy.[11]

Approximately 5-10% of FMF cases are resistant to colchicine therapy alone. In these cases, adding anakinra to the daily colchicine regimen has been successful.[12]

[edit]History

New York allergist, Dr Sheppard Siegal, first described the attacks of peritonitis in 1945; he termed this “benign paroxysmal peritonitis”, as the disease course was essentially benign.[13] Dr Hobart Reimann, working in the American University in Beirut, described a more complete picture which he termed “periodic disease”.[14][15]

In 1972, colchicine was discovered to prevent attacks.[16]

The link to the MEFV gene was discovered in 1997 by two different groups, each working independently – the French FMF Consortium,[9] and the International FMF Consortium.[10]

[edit]See also

[edit]References

  1. ^ James, William; Berger, Timothy; Elston, Dirk (2005). Andrews’ Diseases of the Skin: Clinical Dermatology. (10th ed.). Saunders. ISBN 0-7216-2921-0.
  2. ^ Chae JJ, Wood G, Richard K et al. (September 2008). “The familial Mediterranean fever protein, pyrin, is cleaved by caspase-1 and activates NF-kappaB through its N-terminal fragment”Blood 112 (5): 1794–1803. doi:10.1182/blood-2008-01-134932PMC 2518886PMID 18577712.
  3. ^ Dugdale III, David C; Jatin Vyas (2010-09-15). “Familial Mediterranean fever – PubMed Health”PubMed Health. National Centre for Biotechnology Information. Retrieved 2011-04-24.
  4. ^ Enersen, Ole Daniel. “Whonamedit – Siegal-Cattan-Mamou syndrome”Whonamedit? A dictionary of medical eponyms. Archived from the original on 2001-04-24. Retrieved 2011-04-24.
  5. ^ “Familial Mediterranean fever – Genetics Home Reference”Genetics Home Reference. U.S. National Library of Medicine. 2011-04-14. Archived from the original on 2011-04-24. Retrieved 2011-04-24.
  6. a b c d e f g h i j Livneh A, Langevitz P (2000). “Diagnostic and treatment concerns in familial Mediterranean fever”. Baillieres Best Pract Res Clin Rheumatol 14 (3): 477–498.doi:10.1053/berh.2000.0089PMID 10985982.
  7. ^ Barakat MH, El-Khawad AO, Gumaa KA, El-Sobki NI, Fenech FF (1984). “Metaraminol provocative test: a specific diagnostic test for familial Mediterranean fever”. Lancet 1(8378): 656–7. PMID 6142351.
  8. ^ Huppertz HI, Michels H (1988). “[The metaraminol provocation test in the diagnosis of familial Mediterranean fever]”. Monatsschr Kinderheilkd 136 (5): 243–5. PMID 3405225.
  9. a b The French FMF Consortium (1997). “A candidate gene for familial Mediterranean fever”. Nat. Genet. 17 (1): 25–31. doi:10.1038/ng0997-25PMID 9288094.
  10. a b The International FMF Consortium (1997). “Ancient missense mutations in a new member of the RoRet gene family are likely to cause familial Mediterranean fever”. Cell 90(4): 797–807. doi:10.1016/S0092-8674(00)80539-5PMID 9288758.
  11. ^ Michael O, Goldman RD, Koren G (August 2003). “Safety of colchicine therapy during pregnancy”Can Fam Physician 49: 967–9. PMC 2214270PMID 12943352.
  12. ^ Calligaris L, Marchetti F, Tommasini A, Ventura A (2008). “The efficacy of anakinra in an adolescent with colchicine-resistant familial Mediterranean fever”European Journal of Pediatrics 167 (6): 695–696. doi:10.1007/s00431-007-0547-3PMC 2292480PMID 17588171.
  13. ^ Siegal S (1945). “Benign paroxysmal peritonitis”. Ann Intern Med 23 (2): 234–47. PMID 18124924.
  14. ^ Reiman HA (1948). “Periodic disease. Probable syndrome including periodic fever, benign paroxysmal peritonitis, cyclic neutropenia and intermittent arthralgia”. J Am Med Assoc 136 (4): 239–44. PMID 18920089.
  15. ^ synd/2503 at Who Named It?
  16. ^ Goldfinger, S.E. (1972-12-21). “Colchicine for familial Mediterranean fever”. New England Journal of Medicine 287 (25): 1302. doi:10.1056/NEJM197212212872514.PMID 4636899.

[edit]External links

Breezy Says:

The treatment for any persons afflicted with the disease is a gout medication called colchicine. You can read up on the medication here:
In addition to the Colchicine, I recommend a regimen of ingesting Phoenix Tears Oil (hash oil made from the cannabis plant) by mouth in concert with smoking the plant to treat pain and juicing the fan leaves to decrease intestinal symptoms and increase appetite.

–Auto signature below–
Respectfully,
Breedheen O’Rilley Keefer
AKA Breezy Kiefair

links about breezy
blog

the more in depth, needs editing, 31 page version to help you understand why i sit at my machine fighting the machine day in and day out.
~ Do all that you can to cultivate peace within yourself, that it might
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~

Naphtha is not good for you!

watch for updates on this link.

Naphtha Solvent is NOT GOOD FOR YOU!

Please do not confuse naphtha poisoning for added potency when using it as a solvent to make Phoenix Tears!

June 20, 2012 status message from facebook.com

A friend of mine was donated some phoenix tears oil from an understandably unnamed source. She could not take it to a lab for testing and was afraid to use it. She put a sample into my hands. So, on Monday I tested it. I have a high tolerance and was in a lot of pain, so I took a larger than a grain of rice dab. From the moment it touched my tongue, it burned. It was naphtha! I knew it, but it was far too late. Soon, My nervous system was soon on fire. Then the crazy symptoms came. I got to a point of pain and insanity that was torture for myself and all around me. The crazy lasted for days… the pain is still there. If you have mental health issues on any level, avoid naphtha extracted products like the plague! Its not worth it. It causes cancer too.

also available on youtube here:  http://www.youtube.com/watch?v=yOut8TuqB18

_______________________________________________________________________________________

naphtha is so toxic, the Department of Defense (DoD) uses is as a template for how they classify “dangerous” chemicals…. you’re using naphtha to make your Rick Simpson – Phoenix Tears therapy? your’re inviting so much attention from the government it is stupid. They track each and every purchase of that substance btw.

_________________________________________________________________________________________

http://www.collectioncare.org/MSDS/naphthamsds.pdf

Material Safety Data Sheet
Naphtha
SECTION 1. PRODUCT AND COMPANY IDENTIFICATION
Product name : Naphtha
Synonyms : Light Naphtha, Japan Open Spec Bonded Naphtha, SNG Naphtha, Light Cat
Naphtha, Sweet Virgin Naphtha (SVN), Debutanized Naphtha, Atmospheric
Naphtha (DAN), HCU Light Naphtha, Light CR Gasoline, Full Range Cracked
Naphtha, Full Range Hydrocracked Naphtha, Full Range Reformed Naphtha,
Light Chemical Treated Naphtha, Light Cracked Naphtha, Light Hydrocracked
Naphtha, Light Hydrotreated Naphtha, Aviation Alkylate Naphtha, 888100004450
MSDS Number : 888100004450 Version : 2.12
Product Use Description : Fuel Component, Refinery Intermediate Stream
Company : For: Tesoro Refining & Marketing Co.
19100 Ridgewood Parkway, San Antonio, TX 78259
Tesoro Call Center : (877) 783-7676 Chemtrec
(Emergency Contact)
: (800) 424-9300
SECTION 2. HAZARDS IDENTIFICATION
Emergency Overview
Regulatory status : This material is considered hazardous by the Occupational Safety and Health
Administration (OSHA) Hazard Communication Standard (29 CFR 1910.1200).
Signal Word : DANGER
Hazard Summary : Extremely flammable. Irritating to eyes and respiratory system. Affects central
nervous system. Harmful or fatal if swallowed. Aspiration Hazard.
Potential Health Effects
Eyes : High vapor concentration or contact may cause irritation and discomfort.
Skin : Brief contact may cause slight irritation. Skin irritation leading to dermatitis may
occur upon prolonged or repeated contact. Can be absorbed through skin.
Ingestion : Aspiration hazard if liquid is inhaled into lungs, particularly from vomiting after
ingestion. Aspiration may result in chemical pneumonia, severe lung damage,
respiratory failure and even death.
Inhalation : Vapors or mists from this material can irritate the nose, throat, and lungs, and
can cause signs and symptoms of central nervous system depression,
depending on the concentration and duration of exposure. Inhalation of high
concentrations may cause central nervous system depression such as dizziness,
Specific Hazard
Reactivity
Health
NFPA: Flammability
1 0
3
FLAMMABILITY
PHYSICAL
HEALTH
3
0
1
HMIS III:
0 = Insignificant, 1 = Slight, 2 = Moderate,
3 = High, 4 = ExtremeMATERIAL SAFETY DATA SHEET NAPHTHA Page 2 of 14
2 / 14
drowsiness, headache, and similar narcotic symptoms, but no long-term effects.
Chronic Exposure : Long-term exposure may cause effects to specific organs, such as to the liver,
kidneys, blood, nervous system, and skin. Contains benzene, which can cause
blood disease, including anemia and leukemia.
Target Organs : Skin, Central nervous system, Liver, Kidney, Blood
SECTION 3. COMPOSITION/INFORMATION ON INGREDIENTS
Component CAS-No. Weight %
Naphtha; Low boiling point naphtha 8030-30-6 100%
N-hexane 110-54-3 25 – 35%
Xylene 1330-20-7 25 – 35%
Toluene 108-88-3 15 – 20%
Cyclohexane 110-82-7 15 – 20%
Pentane 109-66-0 15 – 20%
Heptane [and isomers] 142-82-5 12.5 – 15%
Ethylbenzene 100-41-4 5 – 7%
Benzene 71-43-2 3 – 5%
1,2,4-Trimethylbenzene 95-63-6 2 – 3%
Sulfur 7704-34-9 0 – 1.5%
SECTION 4. FIRST AID MEASURES
General advice : Remove from exposure, lie down. In the case of accident or if you feel unwell,
seek medical advice immediately (show the label where possible). When
symptoms persist or in all cases of doubt, seek medical advice. Never give
anything by mouth to an unconscious person. Take off all contaminated clothing
immediately and thoroughly wash material from skin.
Inhalation : If inhaled, remove to fresh air. If not breathing, give artificial respiration. If
breathing is difficult, give oxygen. Seek medical attention immediately.
Skin contact : In case of contact, immediately flush skin with plenty of water. Take off
contaminated clothing and shoes immediately. Wash contaminated clothing
before re-use. Contaminated leather, particularly footwear, must be discarded.
Note that contaminated clothing may be a fire hazard. Seek medical advice if
symptoms persist or develop.
Eye contact : Remove contact lenses. In the case of contact with eyes, rinse immediately with
plenty of water and seek medical advice.
Ingestion : If swallowed Do NOT induce vomiting. Never give anything by mouth to an
unconscious person. Seek medical attention immediately. MATERIAL SAFETY DATA SHEET NAPHTHA Page 3 of 14
3 / 14
Notes to physician : Symptoms: Dizziness, Discomfort, Headache, Nausea, Kidney disorders, Liver
disorders.
SECTION 5. FIRE-FIGHTING MEASURES
Form : Liquid
Flash point -typical : -21.7 °C (-7.1 °F)
Auto Ignition temperature : 225 °C (437 °F)
Lower explosive limit : 1.2 %(V)
Upper explosive limit : 6.9 % (V)
Suitable extinguishing media : Use water spray, alcohol-resistant foam, dry chemical or carbon dioxide. Do not
use a solid water stream as it may scatter and spread fire.
Specific hazards during fire
fighting
: SMALL FIRES: Any extinguisher suitable for Class B fires, dry chemical, CO2,
water spray, fire fighting foam, or Halon.
LARGE FIRES: Water spray, fog or fire fighting foam. Water may be ineffective for
fighting the fire, but may be used to cool fire-exposed containers.
Special protective equipment
for fire-fighters
: Fire fighters should wear positive pressure self-contained breathing apparatus
(SCBA) and full turnout gear. Firefighters’ protective clothing will provide limited
protection.
Further information : Isolate area around container involved in fire. Cool tanks, shells, and containers
exposed to fire and excessive heat with water. For massive fires the use of
unmanned hose holders or monitor nozzles may be advantageous to further
minimize personnel exposure. Major fires may require withdrawal, allowing the
tank to burn. Large storage tank fires typically require specially trained personnel
and equipment to extinguish the fire, often including the need for properly applied
fire fighting foam. Exposure to decomposition products may be a hazard to health.
Use extinguishing measures that are appropriate to local circumstances and the
surrounding environment. Use water spray to cool unopened containers. Fire
residues and contaminated fire extinguishing water must be disposed of in
accordance with local regulations.
SECTION 6. ACCIDENTAL RELEASE MEASURES
Personal precautions : Evacuate personnel to safe areas. Ventilate the area. Remove all sources of
ignition. Response and clean-up crews must be properly trained and must utilize
proper protective equipment (see Section 8).
Environmental precautions : Should not be released into the environment. Avoid subsoil penetration. If the
product contaminates rivers and lakes or drains, inform respective authorities.
Methods for cleaning up : Contain and collect spillage with non-combustible absorbent material, (e.g. sand,
earth, diatomaceous earth, vermiculite) and place in container for disposal
according to local / national regulations.
SECTION 7. HANDLING AND STORAGE
Handling : Keep away from fire, sparks and heated surfaces. No smoking near areas where
material is stored or handled. The product should only be stored and handled in MATERIAL SAFETY DATA SHEET NAPHTHA Page 4 of 14
4 / 14
areas with intrinsically safe electrical classification.
Advice on protection against
fire and explosion
: Hydrocarbon liquids including this product can act as a non-conductive flammable
liquid (or static accumulators), and may form ignitable vapor-air mixtures in storage
tanks or other containers. Precautions to prevent static-initated fire or explosion
during transfer, storage or handling, include but are not limited to these examples:
(1) Ground and bond containers during product transfers. Grounding and
bonding may not be adequate protection to prevent ignition or explosion of
hydrocarbon liquids and vapors that are static accumulators.
(2) Special slow load procedures for “switch loading” must be followed to
avoid the static ignition hazard that can exist when higher flash point
material (such as fuel oil or diesel) is loaded into tanks previously
containing low flash point products (such gasoline or naphtha).
(3) Storage tank level floats must be effectively bonded.
For more information on precautions to prevent static-initated fire or explosion, see
NFPA 77, Recommended Practice on Static Electricity (2007), and API
Recommended Practice 2003, Protection Against Ignitions Arising Out of Static,
Lightning, and Stray Currents (2008).
Dust explosion class : Not applicable
Requirements for storage
areas and containers
: Keep away from flame, sparks, excessive temperatures and open flame. Use
approved containers. Keep containers closed and clearly labeled. Empty or
partially full product containers or vessels may contain explosive vapors. Do not
pressurize, cut, heat, weld or expose containers to sources of ignition. Store in a
well-ventilated area. The storage area should comply with NFPA 30 “Flammable
and Combustible Liquid Code”. The cleaning of tanks previously containing this
product should follow API Recommended Practice (RP) 2013 “Cleaning Mobile
Tanks In Flammable and Combustible Liquid Service” and API RP 2015 “Cleaning
Petroleum Storage Tanks”.
Advice on common storage : Keep away from food, drink and animal feed. Incompatible with oxidizing agents.
Incompatible with acids.
Other data : No decomposition if stored and applied as directed.
SECTION 8. EXPOSURE CONTROLS / PERSONAL PROTECTION
Exposure Guidelines
List Components CAS-No. Type: Value
OSHA Benzene – 29 CFR 1910.1028 71-43-2 TWA 1 ppm
71-43-2 STEL 5 ppm
71-43-2 OSHA_AL 0.5 ppm
OSHA Z1 Naphtha; Low boiling point naphtha 8030-30-6 PEL 100 ppm 400 mg/m3
Xylene 1330-20-7 PEL 100 ppm 435 mg/m3
N-hexane 110-54-3 PEL 500 ppm 1,800 mg/m3
Cyclohexane 110-82-7 PEL 300 ppm 1,050 mg/m3
Heptane [and isomers] 142-82-5 PEL 500 ppm 2,000 mg/m3
Ethylbenzene 100-41-4 PEL 100 ppm 435 mg/m3
ACGIH Naphtha; Low boiling point naphtha 8030-30-6 TWA 400 ppm MATERIAL SAFETY DATA SHEET NAPHTHA Page 5 of 14
5 / 14
Xylene 1330-20-7 TWA 100 ppm
1330-20-7 STEL 150 ppm
N-hexane 110-54-3 TWA 50 ppm
Toluene 108-88-3 TWA 50 ppm
Cyclohexane 110-82-7 TWA 100 ppm
Pentane 109-66-0 TWA 600 ppm
Heptane [and isomers] 142-82-5 TWA 400 ppm
142-82-5 STEL 500 ppm
Ethylbenzene 100-41-4 TWA 100 ppm
100-41-4 STEL 125 ppm
Benzene 71-43-2 TWA 0.5 ppm
71-43-2 STEL 2.5 ppm
Engineering measures : Use adequate ventilation to keep gas and vapor concentrations of this product
below occupational exposure and flammability limits, particularly in confined
spaces. Use only intrinsically safe electrical equipment approved for use in
classified areas.
Eye protection : Safety glasses or goggles are recommended where there is a possibility of
splashing or spraying. Ensure that eyewash stations and safety showers are close
to the workstation location.
Hand protection : Gloves constructed of nitrile or neoprene are recommended. Consult manufacturer
specifications for further information.
Skin and body protection : If needed to prevent skin contact, chemical protective clothing such as of DuPont
TyChem®, Saranex or equivalent recommended based on degree of exposure.
The resistance of specific material may vary from product to product as well as
with degree of exposure.
Respiratory protection : A NIOSH/ MSHA-approved air-purifying respirator with organic vapor cartridges or
canister may be permissible under certain circumstances where airborne
concentrations are or may be expected to exceed exposure limits or for odor or
irritation. Protection provided by air-purifying respirators is limited. Refer to OSHA
29 CFR 1910.134, ANSI Z88.2-1992, NIOSH Respirator Decision Logic, and the
manufacturer for additional guidance on respiratory protection selection. Use a
NIOSH/ MSHA-approved positive-pressure supplied-air respirator if there is a
potential for uncontrolled release, exposure levels are not known, in oxygendeficient atmospheres, or any other circumstance where an air-purifying respirator
may not provide adequate protection.
Work / Hygiene practices : Emergency eye wash capability should be available in the near proximity to
operations presenting a potential splash exposure. Use good personal hygiene
practices. Avoid repeated and/or prolonged skin exposure. Wash hands before
eating, drinking, smoking, or using toilet facilities. Do not use as a cleaning solvent
on the skin. Do not use solvents or harsh abrasive skin cleaners for washing this
product from exposed skin areas. Waterless hand cleaners are effective.
Promptly remove contaminated clothing and launder before reuse. Use care when
laundering to prevent the formation of flammable vapors which could ignite via
washer or dryer. Consider the need to discard contaminated leather shoes and
gloves. MATERIAL SAFETY DATA SHEET NAPHTHA Page 6 of 14
6 / 14
SECTION 9. PHYSICAL AND CHEMICAL PROPERTIES
Form : Liquid
Appearance : Colorless to light yellow
Odor : Characteristic hydrocarbon-like
Flash point – typical : -21.7 °C (-7.1 °F)
Auto Ignition temperature : 225 °C (437 °F)
Thermal decomposition : Heating can release hazardous gases, No decomposition if stored and applied as
directed.
Lower explosive limit : 1.2 % (V)
Upper explosive limit : 6.9 % (V)
pH : Not applicable
Specific gravity : 0.77 (H20=1)
Boiling point : 26.7 – 148.9 °C(80.1 – 300.0 °F)
Vapor Pressure : 758 – 896 hPa
at 20 °C (68 °F)
Vapor Density (Air = 1) : 3.5
Water solubility : Negligible
Viscosity, kinematic : Not determined
Percent Volatiles : 100 %
Work / Hygiene practices Emergency eye wash capability should be available in the near proximity to
operations presenting a potential splash exposure. Use good personal hygiene
practices. Avoid repeated and/or prolonged skin exposure. Wash hands before
eating, drinking, smoking, or using toilet facilities. Do not use as a cleaning
solvent on the skin. Do not use solvents or harsh abrasive skin cleaners for
washing this product from exposed skin areas. Waterless hand cleaners are
effective. Promptly remove contaminated clothing and launder before reuse. Use
care when laundering to prevent the formation of flammable vapors which could
ignite via washer or dryer. Consider the need to discard contaminated leather
shoes and gloves.
SECTION 10. STABILITY AND REACTIVITY
Conditions to avoid : Avoid high temperatures, open flames, sparks, welding, smoking and other
ignition sources.
Materials to avoid : Strong acids and strong bases. Oxidizing agents.
Hazardous decomposition
products
: Carbon monoxide, carbon dioxide and noncombusted hydrocarbons (smoke).
Thermal decomposition : Heating can release hazardous gases. No decomposition if stored and applied as
directed.
Hazardous reactions : Vapors may form explosive mixture with air. Hazardous polymerization does not
occur. Note: Stable under recommended storage conditions. MATERIAL SAFETY DATA SHEET NAPHTHA Page 7 of 14
7 / 14
SECTION 11. TOXICOLOGICAL INFORMATION
Carcinogenicity
NTP : Benzene (CAS-No.: 71-43-2)
IARC : Ethylbenzene (CAS-No.: 100-41-4)
Benzene (CAS-No.: 71-43-2)
OSHA : Benzene (CAS-No.: 71-43-2)
CA Prop 65 : WARNING! This product contains a chemical known to the State of California to
cause cancer.
Ethylbenzene (CAS-No.: 100-41-4)
Benzene (CAS-No.: 71-43-2)
: WARNING! This product contains a chemical known to the State of California to
cause birth defects or other reproductive harm.
Toluene (CAS-No.: 108-88-3)
Benzene (CAS-No.: 71-43-2)
Skin irritation : Repeated or prolonged contact with the preparation may cause removal of natural
fat from the skin resulting in desiccation of the skin.
The product may be absorbed through the skin.
Eye irritation : The liquid splashed in the eyes may cause irritation and reversible damage.
Strong lachrymation can make it difficult to escape
Further information : This product contains benzene. Human health studies indicate that prolonged
and/or repeated overexposure to benzene may cause damage to the blood-forming
system (particularly bone marrow), and serious blood disorders such as aplastic
anemia and leukemia. Benzene is listed as a human carcinogen by the NTP, IARC,
OSHA and ACGIH. Acute toxicity of benzene results primarily from depression of
the central nervous system (CNS). Inhalation of concentrations over 50 ppm can
produce headache, lassitude, weariness, dizziness, drowsiness, or excitation.
Exposure to very high levels can result in unconsciousness and death.
Symptoms of overexposure may be headache, dizziness, tiredness, nausea and
vomiting.
Ingestion may cause gastrointestinal disturbances, including irritation, nausea,
vomiting and diarrhea, and central nervous (brain) effects similar to alcohol
intoxication. In severe cases, tremors, convulsions, loss of consciousness, coma,
respiratory arrest and death may occur.
Component:MATERIAL SAFETY DATA SHEET NAPHTHA Page 8 of 14
8 / 14
N-hexane 110-54-3 Acute oral toxicity: LD50 rat
Dose: 25,000 mg/kg
Acute dermal toxicity: LD50 rabbit
Dose: 2,001 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 171.6 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Skin irritation
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Teratogenicity: N11.00418960
Xylene 1330-20-7 Acute oral toxicity: LD50 rat
Dose: 2,840 mg/kg
Acute dermal toxicity: LD50 rabbit
Dose: ca. 4,500 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 6,350 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Mild skin irritation
Repeated or prolonged exposure may cause skin irritation and dermatitis, due to
degreasing properties of the product.
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Toluene 108-88-3 Acute oral toxicity: LD50 rat
Dose: 636 mg/kg
Acute dermal toxicity: LD50 rabbit
Dose: 12,124 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 49 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Mild skin irritation
Prolonged skin contact may defat the skin and produce dermatitis.
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Cyclohexane 110-82-7 Acute dermal toxicity: LD50 rabbit
Dose: 2,001 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 14 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Skin irritation
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Pentane 109-66-0 Acute oral toxicity: LD50 rat
Dose: 2,001 mg/kg
Acute inhalation toxicity: LC50 rat MATERIAL SAFETY DATA SHEET NAPHTHA Page 9 of 14
9 / 14
Dose: 364 mg/l
Exposure time: 4 h
Skin irritation: Repeated or prolonged exposure may cause skin irritation and dermatitis,
due to degreasing properties of the product.
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Heptane [and isomers] 142-82-5 Acute oral toxicity: LD50 rat
Dose: 15,001 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 103 g/m3
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Skin irritation
Repeated or prolonged exposure may cause skin irritation and dermatitis, due to
degreasing properties of the product.
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
Ethylbenzene 100-41-4 Acute oral toxicity: LD50 rat
Dose: 3,500 mg/kg
Acute dermal toxicity: LD50 rabbit
Dose: 15,500 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 18 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Mild skin irritation
Eye irritation: Classification: Irritating to eyes.
Result: Risk of serious damage to eyes.
Benzene 71-43-2 Acute oral toxicity: LD50 rat
Dose: 930 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 44 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Mild skin irritation
Repeated or prolonged exposure may cause skin irritation and dermatitis, due to
degreasing properties of the product.
Eye irritation: Classification: Irritating to eyes.
Result: Risk of serious damage to eyes.
1,2,4-Trimethylbenzene 95-63-6 Acute inhalation toxicity: LC50 rat
Dose: 18 mg/l
Exposure time: 4 h
Skin irritation: Classification: Irritating to skin.
Result: Skin irritation
Eye irritation: Classification: Irritating to eyes.
Result: Eye irritationMATERIAL SAFETY DATA SHEET NAPHTHA Page 10 of 14
10 / 14
Sulfur 7704-34-9 Acute oral toxicity: LD50 rat
Dose: 5,001 mg/kg
Acute dermal toxicity: LD50 rabbit
Dose: 2,001 mg/kg
Acute inhalation toxicity: LC50 rat
Dose: 9.24 mg/l
Exposure time: 4 h
Eye irritation: Classification: Irritating to eyes.
Result: Mild eye irritation
SECTION 12. ECOLOGICAL INFORMATION
Additional ecological
information
: Keep out of sewers, drainage areas, and waterways. Report spills and releases, as
applicable, under Federal and State regulations.
Component:
N-hexane 110-54-3 Toxicity to fish:
LC50
Species: Pimephales promelas (fathead minnow)
Dose: 2.5 mg/l
Exposure time: 96 h
Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia magna (Water flea)
Dose: 2.1 mg/l
Exposure time: 48 h
Toluene 108-88-3 Toxicity to fish:
LC50
Species: Carassius auratus (goldfish)
Dose: 13 mg/l
Exposure time: 96 h
Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia magna (Water flea)
Dose: 11.5 mg/l
Exposure time: 48 h
Toxicity to algae:
IC50
Species: Selenastrum capricornutum (green algae)
Dose: 12 mg/l
Exposure time: 72 h
Cyclohexane 110-82-7 Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia magna (Water flea)
Dose: 3.78 mg/l
Exposure time: 48 h
Pentane 109-66-0 Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia magna (Water flea)
Dose: 9.74 mg/l
Exposure time: 48 h
Heptane [and isomers] 142-82-5 Toxicity to fish:
LC50
Species: Carassius auratus (goldfish)
Dose: 4 mg/l
Exposure time: 24 h MATERIAL SAFETY DATA SHEET NAPHTHA Page 11 of 14
11 / 14
Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia magna (Water flea)
Dose: 1.5 mg/l
Exposure time: 48 h
1,2,4-Trimethylbenzene 95-63-6 Toxicity to fish:
LC50
Species: Pimephales promelas (fathead minnow)
Dose: 7.72 mg/l
Exposure time: 96 h
Acute and prolonged toxicity for aquatic invertebrates:
EC50
Species: Daphnia
Dose: 3.6 mg/l
Exposure time: 48 h
Sulfur 7704-34-9 Acute and prolonged toxicity for aquatic invertebrates:
EC0
Species: Daphnia magna (Water flea)
Dose: > 10,000 mg/l
Exposure time: 24 h
SECTION 13. DISPOSAL CONSIDERATIONS
Disposal : Dispose of container and unused contents in accordance with federal, state and
local requirements.
SECTION 14. TRANSPORT INFORMATION
CFR
Proper shipping name : PETROLEUM DISTILLATES, N.O.S.
UN-No. : 1268
Class : 3
Packing group : II
Hazard inducer : (Naphtha; Low boiling point naphtha)
TDG
Proper shipping name : PETROLEUM DISTILLATES, N.O.S.
UN-No. : UN1268
Class : 3
Packing group : II
Hazard inducer : (Naphtha; Low boiling point naphtha)
IATA Cargo Transport
UN UN-No. : UN1268
Description of the goods : PETROLEUM DISTILLATES, N.O.S.
(Naphtha; Low boiling point naphtha)
Class : 3
Packaging group : II
ICAO-Labels : 3
Packing instruction (cargo
aircraft)
: 364
Packing instruction (cargo
aircraft)
: Y341 MATERIAL SAFETY DATA SHEET NAPHTHA Page 12 of 14
12 / 14
IATA Passenger Transport
UN UN-No. : UN1268
Description of the goods : PETROLEUM DISTILLATES, N.O.S.
(Naphtha; Low boiling point naphtha)
Class : 3
Packaging group : II
ICAO-Labels : 3
Packing instruction
(passenger aircraft)
: 353
Packing instruction
(passenger aircraft)
: Y341
IMDG-Code
UN-No. : UN 1268
Description of the goods : PETROLEUM DISTILLATES, N.O.S.
(Naphtha; Low boiling point naphtha)
Class : 3
Packaging group : II
IMDG-Labels : 3
EmS Number : F-E S-E
Marine pollutant : No
SECTION 15. REGULATORY INFORMATION
OSHA Hazards : Flammable liquid
Moderate skin irritant
Severe eye irritant
Carcinogen
Teratogen
TSCA Status : On TSCA Inventory
DSL Status : All components of this product are on the Canadian DSL list.
SARA 311/312 Hazards : Fire Hazard
Acute Health Hazard
Chronic Health Hazard
SARA III US. EPA Emergency Planning and Community Right-To-Know Act (EPCRA) SARA Title III Section 313 Toxic
Chemicals (40 CFR 372.65) – Supplier Notification Required
Components CAS-No.
1,2,4-Trimethylbenzene 95-63-6
Benzene 71-43-2
Ethylbenzene 100-41-4
Cyclohexane 110-82-7
Toluene 108-88-3
N-hexane 110-54-3
Xylene 1330-20-7
PENN RTK US. Pennsylvania Worker and Community Right-to-Know Law (34 Pa. Code Chap. 301-323) MATERIAL SAFETY DATA SHEET NAPHTHA Page 13 of 14
13 / 14
Components CAS-No.
Heptane [and isomers] 142-82-5
Ethylbenzene 100-41-4
Benzene 71-43-2
1,2,4-Trimethylbenzene 95-63-6
Sulfur 7704-34-9
Pentane 109-66-0
Naphtha; Low boiling point naphtha 8030-30-6
Xylene 1330-20-7
N-hexane 110-54-3
Toluene 108-88-3
Cyclohexane 110-82-7
MASS RTK US. Massachusetts Commonwealth’s Right-to-Know Law (Appendix A to 105 Code of Massachusetts Regulations
Section 670.000)
Components CAS-No.
Heptane [and isomers] 142-82-5
Ethylbenzene 100-41-4
Benzene 71-43-2
1,2,4-Trimethylbenzene 95-63-6
Sulfur 7704-34-9
Naphtha; Low boiling point naphtha 8030-30-6
Xylene 1330-20-7
N-hexane 110-54-3
Toluene 108-88-3
Cyclohexane 110-82-7
NJ RTK US. New Jersey Worker and Community Right-to-Know Act (New Jersey Statute Annotated Section 34:5A-5)
Components CAS-No.
Heptane [and isomers] 142-82-5
Ethylbenzene 100-41-4
Benzene 71-43-2
1,2,4-Trimethylbenzene 95-63-6
Sulfur 7704-34-9
Naphtha; Low boiling point naphtha 8030-30-6
Xylene 1330-20-7
N-hexane 110-54-3 MATERIAL SAFETY DATA SHEET NAPHTHA Page 14 of 14
14 / 14
Toluene 108-88-3
Cyclohexane 110-82-7
CERCLA SECTION 103 and SARA SECTION 304 (RELEASE
TO THE ENVIROMENT)
The CERCLA definition of hazardous substances contains a
“petroleum exclusion” clause which exempts crude oil. Fractions of
crude oil, and products (both finished and intermediate) from the
crude oil refining process and any indigenous components of such
from the CERCLA Section 103 reporting requirements. However,
other federal reporting requirements, including SARA Section 304,
as well as the Clean Water Act may still apply.
California Prop. 65 : WARNING! This product contains a chemical known to the State of California to
cause cancer.
Ethylbenzene 100-41-4
Benzene 71-43-2
WARNING! This product contains a chemical known to the State of California to
cause birth defects or other reproductive harm.
Toluene 108-88-3
Benzene 71-43-2
SECTION 16. OTHER INFORMATION
Further information
The information provided in this Safety Data Sheet is correct to the best of our knowledge, information and belief at
the date of its publication. The information given is designed only as guidance for safe handling, use, processing,
storage, transportation, disposal and release and is not to be considered a warranty or quality specification. The
information relates only to the specific material designated and may not be valid for such material used in
combination with any other materials or in any process, unless specified in the text.
Template
Prepared by
: GWU mbH
Birlenbacher Str. 18
D-57078 Siegen
Germany
Telephone: +49-(0)271-88072-0
Revision Date : 01/27/2011
79, 80, 81, 83, 165, 264, 318, 1017, 1018, 1019, 1020, 1021, 1027, 1032, 1055, 1136, 1716

http://biotech.law.lsu.edu/blaw/dodd/corres/pdf/60505h_0189/60505h.pdf
DEPARTMENT OF DEFENSE
HAZARDOUS CHEMICAL
WARNING LABELING SYSTEM
OFFICE OF THE
ASSISTANT SECRETARY OF DEFENSE
(FORCE MANAGEMENT AND PERSONNEL)
JUNE 1989.
.
June 1989
Department of Defense Hazardous Chemical Warning
Labeling System

J. Anderson

Assistant Secretary of Defense Force Management and Personnel

.
FOREWORD
,.,
This Handbook is issued under the authority of, and in accordance with, DoD Instruction 6050.5, ‘Hazardous Material Information System, ” January 25, 1978. This Handbook, the “Department of Defense Hazardous Chemical Warning Labeling System, establishes a standard label format and uniform labeling system throughout DoD for identifying hazardous materials used by DoD personnel.
In addition, this publication provides an additional training resource to help DoD comply with the training and worker information requirements of the Occupational Safety and Health Administration’ s Hazard Communication Standard (29 C. F. Il. 1910.1200) .
This publication applies to the Office of the Secretary of Defense, the Military Departments, the Joint Staff, the unified
and Specified Commandsr and the Defense Agencies. It is effective immediately.

Forward recommended changes to this Handbook through appropriate
channels to:
Director, Safety and Occupational Health Policy
OASD (FM&P), ODASD (FSE&S)
RCIOITI 3A272, The Pentagon
Washington, D.C. 20301-4000
DoD Components may obtain copies of this Handbook through their
own publications channels. Other Federal Agencies and the public
may obtain copies from the U.S. Department of Commerce, National
4 Technical Information Service, 5285 Port Royal Road, Springfield,

________________________________________________________________________________________________________________________________________________________________________________________

more links on naptha:

http://search.google.dot.gov/dot /DOTSearchProcess.asp?q=naptha&g oB=&ie=&site=DOT_Pages&output=xm l_no_dtd&client=DOT_Pages&lr=&pr oxystylesheet=DOT_Pages&oe=

http://en.wikipedia.org/wiki/Petroleum_naphtha

________________________________________________________________________________

reference : http://cameochemicals.noaa.gov/chemical/12319

naphtha

Reactivity Alerts

  • Highly Flammable
Air & Water Reactions
Highly flammable. Insoluble in water.
Fire Hazard
Excerpt from GUIDE 128 [Flammable Liquids (Non-Polar / Water-Immiscible)]:HIGHLY FLAMMABLE: Will be easily ignited by heat, sparks or flames. Vapors may form explosive mixtures with air. Vapors may travel to source of ignition and flash back. Most vapors are heavier than air. They will spread along ground and collect in low or confined areas (sewers, basements, tanks). Vapor explosion hazard indoors, outdoors or in sewers. Runoff to sewer may create fire or explosion hazard. Containers may explode when heated. Many liquids are lighter than water. Substance may be transported hot. If molten aluminum is involved, refer to GUIDE 169. (ERG, 2008)
Inhalation of concentrated vapor may cause intoxication. Liquid is not very irritating to skin or eyes but may get into lungs by aspiration. (USCG, 1999)
Reactivity Profile
PETROLEUM NAPHTHA, [FLAMMABLE LIQUID LABEL] may be incompatible with strong oxidizing agents like nitric acid. Charring may occur followed by ignition of unreacted material and other nearby combustibles. In other settings, mostly unreactive. Not affected by aqueous solutions of acids, alkalis, most oxidizing agents, and most reducing agents. When heated sufficiently or when ignited in the presence of air, oxygen or strong oxidizing agents, burns exothermically to produce mostly carbon dioxide and water.
Belongs to the Following Reactive Group(s)

Response Recommendations

Firefighting
Fire Extinguishing Agents Not to Be Used: Water may be ineffective.Fire Extinguishing Agents: Foam, carbon dioxide, or dry chemical (USCG, 1999)
Non-Fire Response
Keep sparks, flames, and other sources of ignition away. Keep material out of water sources and sewers. Build dikes to contain flow as necessary. (AAR, 2003)
Skin: Wear appropriate personal protective clothing to prevent skin contact.Eyes: Wear appropriate eye protection to prevent eye contact.Wash skin: The worker should immediately wash the skin when it becomes contaminated.Remove: Work clothing that becomes wet or significantly contaminated should be removed and replaced.Change: No recommendation is made specifying the need for the worker to change clothing after the work shift. (NIOSH, 2003)
Eye: If this chemical contacts the eyes, immediately wash the eyes with large amounts of water, occasionally lifting the lower and upper lids. Get medical attention immediately. Contact lenses should not be worn when working with this chemical.Skin: If this chemical contacts the skin, promptly wash the contaminated skin with soap and water. If this chemical penetrates the clothing promptly remove the clothing and wash the skin with soap and water. Get medical attention promptly.Breathing: If a person breathes large amounts of this chemical, move the exposed person to fresh air at once. If breathing has stopped, perform mouth-to-mouth resuscitation. Keep the affected person warm and at rest. Get medical attention as soon as possible.Swallow: If this chemical has been swallowed, get medical attention immediately. (NIOSH, 1997)

Physical Properties

Molecular Formula: data unavailable
Flash Point: 20 ° F (approx.) (USCG, 1999)
Lower Explosive Limit (LEL): 0.9 % (USCG, 1999)
Upper Explosive Limit (UEL): 6 % (USCG, 1999)
Autoignition Temperature: 450 ° F (USCG, 1999)
Melting Point: data unavailable
Vapor Pressure: data unavailable
Vapor Density (Relative to Air): data unavailable
Specific Gravity: 0.74 at 68.0 ° F (USCG, 1999)
Boiling Point: 207 ° F at 760.0 mm Hg (USCG, 1999)
Molecular Weight: 110 (NIOSH, 2003)
Water Solubility: Insoluble (NIOSH, 2003)
IDLH: 1000 ppm (NIOSH, 2003)

AEGLs (Acute Exposure Guideline Levels)

No AEGL information available.

ERPGs (Emergency Response Planning Guidelines)

No ERPG information available.

PACs (Protective Action Criteria)

Chemical PAC-1 PAC-2 PAC-3
Petroleum spirits; (VM & P Naphtha, Ligroine, Paint solvent) (8032-32-4) 75 ppm 400 ppm 400 ppm LEL = 9000 ppm

_________________________________________________________________________________________

did you know that naptha is the key component in pavement sealer?
read all about it from the Federal Aviation Administration. now why would you put this stuff in your medicine?

http://www.faa.gov/airports/engineering/engineering_briefs/media/EB_68draft.pdf

______________________________________________________________________________________________________________________

http://www.tricomcoatings.com/MSDS/Files/T0077.pdf

http://www.osha.gov/SLTC/healthguidelines/naphtha-coaltar/recognition.html

Breezy’s Broken Butt Bone… Need some things to heal

I’ve been walking around on a broken pelvis for at least 7-10 days trying to get a ride to the hospital. On April 9, 2012 the pain became so extreme that I finally told a little white lie that i fell in the tub and called an ambulance. I told another little white lie to avoid discussing the cannabis issue with a “luck of the draw doctor”…. I whitewashed the fact that I am chronically ill and said I am on no medications (cannabis is a food wink wink). That made my life a lot easier.

Usually I am 100% honest when I go to see a doctor. I felt bad being deceptive, but I just didn’t have it in me to debate with the doctor, and I was terrified I would be refused pain medication or treatment if I dared to mention the herb that I use as a religious sacrament. I say that it made my life easier to “sweep the cannabis issue under the rug” but morally, I was (and am) conflicted about it. So often I speak about how we should show our pot pride, but the sad truth is, this time I didn’t have any fight in me. This time, the pain was too bad to educate along the way. I’m not proud of my choice to not share the whole truth with that er doctor last night at the Hospital, but I am sharing the truth of how it made me feel to minimize the treatment that works for my ongoing health issues.

When they finally released me from the hospital, I paid for a cab home with money I didn’t really have. I borrowed it from one of my roommates who couldn’t really spare it either but was tired of watching me suffer. We dunno when the injury really happened, but most likely I hurt it trying to be superwoman in the move and then the break grew and grew over the month of March until I could no longer bear the pain. We moved because of stalkers. No need to get into details.

The thing is, I MINIMIZED this injury in the beginning thinking it was just a part of my normal every day pain…. And so did everyone else I was imploring for help… Have I become a bit jaded, well sure I have. Am I fighting that impulse? yes I am. Thanks for the love guys, I need it.

People have been asking what they can do to help me heal…

1. Due to stalkers, I need to be able to set up a post office box to be able to receive packages.  It is not that I do not trust my friends, it is that I am trying to protect myself from the stalkers that caused the move. The move caused the injury. My stubbornness made that injury more severe. A post office box will run $32 for 6 months. I retrieved this information from the USPS site https://www.usps.com/manage/get-a-po-box.htm

2. I currently sleep on a futon mattress on the floor. I don’t really care what kind of bed i end up with, but I do need a bed that is more comfortable than what I have. Bedrest and pain control is about all that can be done until the fracture heals of its own accord. Pillows are also a welcome blessing as I struggle to find comfort.

3. I have phoenix Tears oil aka edible hash oil for sale or trade to Colorado Medical Marijuana Patients. I personally have become tolerant to the strains we made the oil from. This batch was made from medical grade trim and sweetleaf. In return, I need flowers or concentrates to smoke, cannabis infused foods (medibles) to munch, or salves to massage into the pain in my ass. For more information on the edible/topical hash oil I make, please visit this post and watch a diabetic ulcer disappear! I will do product reviews BY REQUEST of any medication I receive

4. Financial support to pay for cab rides to follow up doctor visits, vitamins to help the bone knit back together,  purchase medication and provide food. Cannabis is an expensive medication not covered by any insurance. While I do grow my own, I am no where near harvest and will be needing medication to mitigate the pain. My food stamp benefits were recently terminated as well.

Low priority needs include:

5. Grow lights, nutrients and assorted growing supplies

6. Meditation aids such as incense, classical or relaxing music, or anything else you think might enhance my calm and help me heal faster.

I feel guilty for asking. Those who have been following my posts know that there are others out there that need help badly. One long time activist needs a vaporizer now that she is home from the hospital for a collapsed lung. Meanwhile, on the other side of the country, a family struggles to stay together and provide shelter, food, medications, etc for themselves and their infant son. The good news is, my friend with the collapsed lung is out of the hospital, and the family was given a donation that provided them a few nights in a hotel.

You can read more about the past chronic pain journey here. It needs to be edited, but I just have so many projects and not enough time.

I will keep this post updated as my needs change. I thank you in advance even if all you can do is hope/wish/pray/send energy towards my speedy recovery.

If you can help out financially, please click here to visit the wepay site that has been set up to accept monetary support. You can also email me at btokeefer@gmail.com if you would like to send something or trade.

Have a Blessed day!

Update Friday, April 13, 2012

I find myself unable to sleep more than an hour or so at a time.  I feel guilty asking for anything for myself, especially when there is so much wrong in the world! There are daddies worried about their daughters cause they just found out someone touched them wrong. Homeless parents wondering how long their precious child will have to sit in a dirty diaper. Severe pain patients going through opiate withdrawals because they tested positive for using cannabis to control the pain and are now cut off from their pain doctor…. don’t pain doctors realize they can kill someone like that? “Recovered” addicts are off to the races with their old flames and oh so much more that I dare not even go any further listing…. wow… I’m hoping the creator helps out  a lot of people today.

As for me, I am grateful that I DO HAVE medication today. We desperately need a liquid diet to assist in weight gain. I cannot seem to process solid food right now.  My biggest need is a bed.  My discharge instructions dictate bedrest and pain control. Well, if I must be on bedrest in order to heal, then i gotta have a bed I am capable of sleeping in… playing princess and the pea with a futon on the floor every night is not conducive to sleep in this amount of pain.  If my pelvis were not broken, the futon would be fine….

I remain very frustrated with mainstream medicine. The night I went to the er, i ended up with bruises on my arms from the way that stupid emt handled me while strapping me to the backboard. I screamed nearly the whole way to the hospital the other night… Sheesh… why bother asking me what position is most comfortable/uncomfortable if you are just gonna put me in the position I told you was least comfortable any way…. ofcourse, it could be argued that I got the bruises struggling against the restraints on the backboard, but why was I struggling? cause he made sure I was uncomfortable. I understand they were worried I had a broken spine, but logic dictates that if the patient is calm and polite, then a change of position makes it worse and causes her to become irate and scream, them perhaps you shouldn’t put her in that position!

He is the only one who grabbed me by the arm. Man do I wish I had the camera rolling. I just wasnt up for that in my condition.

My discharge instructions say that pain control and bed rest are all that can be done for me. Well, if they want me on bedrest, i gotta have a bed I am capable of  resting in… playing princess and the pea with a futon on the floor every night is not conducive to sleep in this amount of pain. If my pelvis were not broken, the futon mattress lying on the floor would be fine. Not ideal for a fibromyalgia patient, but it was ok before. My Fibromyalgia pressure points make it very difficult to stay still when I am in pain. After a seizure last night (too much pain) I began to worry if perhaps I should have been placed in a device to prevent me from moving my pelvis.  I Have NOT made a follow up doctor’s appointment cause I dunno how i would get there…. the doc they referred me too is way far away

I’ve had an extraordinarily emotional week. In addition to trying to deal with anxiety responses due to severe pain, I had a visit from my estranged biological mother who is anti cannabis and my biological sister whom I love, but always causes enough stress to escalate my illness. I said it best when they were about to arrive in a facebook status message.

I’m about to offer hospitality for the night to my estranged mother… what a strange experience…She REALLY HATES WEED still… There is a hell of a thunderstorm out there and then you get a call and hear that mom and sister need a room for the night and a meal… you think I’m gonna turn her away? heck no…. porch light is on bio mama & sis… my fridge is yours..

My poor mother’s cousin who was more like a brother to her had passed away. She had just picked my sister up from jail (charges were dismissed thank the creator!) and was in a bad place emotionally. I guess seeing me for the first time since she threw me out of her house for my weed was just too much stimuli for her. She began to threaten suicide. I did what I could to ease her suffering. The last thing I said to her was, “Please don’t kill yourself mom. I love you.”

There have been many other emotional disruptions this week ranging from stalker stimuli to good friends alienated because they didnt understand how to deal with me in this much pain, and I tend to be angry and communicate poorly when I am in pain I cannot treat.

I’d like to remind everyone that physical pain can make an individual look, feel, and behave like a person consumed with negative emotions or energy. It helps if the individual can understand that what they are feeling is an effect of their pain/illness…. this can help prevent getting lost in negative emotion land. Sometimes people like this lash out at people who care about them for little or no reason and then feel bad about it…. This is frustrating for all involved. Persons with negativity due to pain may also turn their “negativity” inward in an effort to prevent the negative emotion/energy from spreading. this can cause a”self negativity loop” that tends to feed into the underlying problem of pain by lowering the patient’s self esteem. Friends/Family members should do all they can to help the patient feel loved and valued to help diffuse this cycle. Positive reinforcement and love can combat negativity no matter the source.

I’ve also been frustrated this week with the number of people seeking free oil… No one should EVER have to beg for their medicine… it doesn’t matter if you can afford your medication or not. You still need it. It doesn’t matter what your “tolerance” (read what dosage you medically need.) It is really, really sick that so many either have to beg for compassion or do without their MEDICINE.. I take my turns being without like most all other fiercely dedicated activists. Most won’t tell you when they are out of medicine. I hear from my friends/audience all the time about how they suffer without medication. It breaks my heart. What is worse is when people have need of free oil because they have been victimized by someone who was supposed to help them in exchange for their money. When these people get their bank accounts emptied and their illnesses remain untreated due mostly to ineptitude and greed, its just wrong on a very deep level. I am happy to help these people out as my own finances allow. It is still frustrating to hear they have been taken advantage of by the folks at the link before they got to me.

I’m frustrated with bureaucratic nonsense in the cannabis as a treatment option in general. My “Colorado Red Card’s” time is running out quickly and I cannot afford to renew. My current medicinal cannabis license came out before they started printing “home-bound patient” on the cards so I can’t even get a delivery from my caregiver due to state red tape. It does not matter to the state that I have been clinically “home bound” since long before I got on the registry.  I am not upset at my caregiver, just frustrated that those in power think someone with a broken pelvis should be able to walk in and buy their meds a day after they are diagnosed. The emergency room doctor sent me home with just 24 percocet. I cannot get to a follow up appointment with another doctor due to lack of transportation. I guess they expect me to just lay in bed in agony for 4-6 weeks or until I have to call the ambulance again? I am honestly wondering why I even made the first emergency room trip at this point. Still, the knowledge gained that there is a real injury instead of assuming it was just an escalation of my every day pain is valuable.

Despite all the frustrations, there were some rays of hope this week.

I’ve done a lot of complaining in this post. I’d like to leave you on a positive note. Here are some cool things that happened this week.

1. On Wednesday, We changed Fat Freddy’s the bandage in the morning. Lo and behold, all the scaling has gone! We are now continuing treatment only as scar reduction! It has been so amazing to watch this horrible wound heal up and begin to disappear. Latest pics are at the bottom of the link we’ve all been sharing.

2. I wrote a little parody to “Where have all the flowers gone” as it applies to cannabis prohibition.

3. My friend with the collapsed lung was able to  get a vaporizer donated to her! She is now home from the hospital and awaiting delivery of her vaporizer!

4. Even the homeless family I have been blogging about got a donation for a few nights in a hotel room. They are still in dire need.  I pray you pray with me and help them out.

5. I used my convalescence to do some new pieces of artwork. The one that most applies to this situation is below. You can view the other pieces on my facebook like page.

6. I was able to ease suffering of others with oil

How can endocannabinoids be illegal when every human body makes them?

I will keep this post updated as my needs change. I thank you in advance even if all you can do is hope/wish/pray/send energy towards my speedy recovery.

If you can help out financially, please click here to visit the wepay site that has been set up to accept monetary support. You can also email me at btokeefer@gmail.com if you would like to send something or trade.

Have a Blessed day!

UPDATE April, 24, 2011

I am overwhelmed with the response to this post. One of my friends went to their local charity and dollar store and made me up a healing box that weighed 1/4 of what I do! A religious studies major from my Alma Mater, Naropa University, made a cash donation of $10. We were able to find a bed on craigslist for free…. the man even delivered the bed to me and helped set it up. I couldn’t have asked for a nicer bed to heal in! Shortly after that, another cannabis activist mailed me a benjamin and told me to get medication and to sleep…… Others are still sending things. I really am ok to heal now. My biggest worry right now is finding trim to make my next batch of mercy for others… If anything is sent that I cannot use, be it money or goods, I will redistribute it to those needing it. THANK YOU ONE AND ALL!

Meanwhile, I am doing all I can to get phoenix tears oil into the hands of those who need it the most while my bone heals.

Have a blessed day!

UPDATE 5/5/2012

my fracture is healed… thanks for the help from the hemp eazenow on to me bruises from the rent a cops at the hospital! they said they could see the fracture clearly and that it had knitted together well! I put the hemp eaze on my hip every night along with soaks and nutritional supplements… nearly zero pharmacological intervention (other than the diagnosis and initial pain control) for this broken bone! Thanks to Darcy and Bill of Hemp Eaze  and everyone else for answering the call!

here is information on the products i used:

Hemp-EaZe™ THERAPY CREAM

Hemp-EaZe™ THERAPY CREAM

Click To Enlarge
  • Item #: 333
  • Manufacturer: Tierra Sol Farm
Hemp-EaZe™ THERAPY CREAM Hemp Root Therapy is a 9 medicinal herb formula. 100% Organic. Hemp-EaZe is formulated to relieve muscular and bone aches, reduce swelling and ease pain. Our triple-strength proprietary blend includes; Hemp Root, Comfrey, Burdock, Lavender, Lobelia, Hyssop, Feverfew, Myrrh Gum, Sage, and California Bay. Hemp-EaZe rejuvenates circulation, promotes cellular growth, and encourages deep tissue healing. It’s a 2 oz. jar but, A little goes a long way. Our therapy cream spreads nice and thin, so it’s very economical. Great for Arthritis, sprains, joint pain, as well as, breaking down bruising, mending wounds, and relieving the discomfort of skin ailments, such as eczema and psoriasis. * The natural bees wax in the cream will begin to softened if exposed to direct sunlight or heat. If this occurs, set jar in cool place or refrigerate until solidifies again. Softening will not harm product. We use raw bees wax for it’s antiseptic qualities. We get our bees wax locally, from bees who no doubt pollinated our own herbs that we grow for our formula. Tierra Sol Farm is a GREEN company. We grow organically, buy locally, and we’re reusing. We reuse boxes for shipping to help reduce waste. * Results May Vary

Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter

Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter

Click To Enlarge
  • Item #: 400
  • Manufacturer: Tierra Sol Farm
Hemp-EaZe Hemp Root And Honey Deep Healing Body Butter Introduced at the 20th Anniversary of The Seattle Hempfest! Hemp ROOT has been proven to be successful in reducing swelling and easing pain. Now recent studies have shown that components in the root have been successful at killing Staph. infection! The Deep Healing Body Butter is 100% Organic SOY-FREE treatment for; bruising, sore muscles, skin irritations, burns, scrapes, and cuts. With A touch of honey, enhances this cream as a double antiseptic, preventing infection, promoting tissue growth, rejuvenating the circulation and easing swelling. * We use raw honey for it’s antiseptic qualities. We get our honey locally, from bees who no doubt pollinated our own herbs that we grow for our formula. Tierra Sol Farm is a GREEN company. We grow organically, buy locally, and we’re reusing. We reuse boxes for shipping to help reduce waste. * Results May Vary

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