Category Archives: Foster care

Amish Kid forced on Chemo: What’s the Matter Here? and Why the cannabis community should care!

Court Sides With Ohio Hospital on Amish Girl Care

August 28, 2013 (AP)
By JOHN SEEWER Associated Press

An appeals court has sided with a hospital that wants to force a 10-year-old Amish girl to resume chemotherapy after her parents decided to stop the treatments.

The court ruled that a county judge must reconsider his decision that blocked Akron Children’s Hospital‘s attempt to give an attorney who’s also a registered nurse limited guardianship over Sarah Hershberger and the power to make medical decisions for her.

The hospital believes Sarah’s leukemia is very treatable but says she will die without chemotherapy.

The judge in Medina County in northeast Ohio had ruled in July that Sarah’s parents had the right to make medical decisions for her.

The appeals court ruling issued Tuesday said the judge failed to consider whether appointing a guardian would be in the girl’s best interest. It also disagreed with the judge’s decision that said he could only transfer guardianship if the parents were found unfit.

The family’s attorney, John Oberholtzer, said Wednesday that the ruling essentially ordered the judge to disregard the rights of the parents.

Andy Hershberger, the girl’s father, said the family agreed to begin two years of treatments for Sarah last spring but stopped a second round of chemotherapy in June because it was making her extremely sick.

“It put her down for two days. She was not like her normal self,” he said. “We just thought we cannot do this to her.”

Sarah begged her parents to stop the chemotherapy and they agreed after a great deal of prayer, Hershberger said. The family, members of an insular Amish community, shuns many facets of modern life and is deeply religious. They live on a farm and operate a produce stand near the village of Spencer in Medina County, about 35 miles southwest of Cleveland.

“Our belief is, to a certain extent, we can use modern medicine, but at some times we have to stop it and do something else,” Hershberger said in a telephone interview.

They opted to consult with a wellness center and treat Sarah with natural medicines, such as herbs and vitamins, and see another doctor who is monitoring their daughter, Hershberger said.

“We see her every day. We watch her really close,” her father said. “She runs, plays. She crawls up ladders. She’s got a lot of energy, more than she had when she was doing chemo.”

Hershberger said they have not ruled out returning to Akron Children’s Hospital if Sarah’s health worsens. “We told them if it gets to the point that we cannot do anything for her, we would come back,” he said.

After the appeals court decision, the hospital said in a statement Wednesday that its goal is to ensure that the girl receives the most appropriate care based on scientific evidence and added that the allegation has never been about “parental unfitness.”

It said neither the hospital nor anyone else is requesting legal or physical custody of the child; instead, the hospital said, this case “involves a disagreement between providers and parents over what course of treatment is best for their child.”

Robert McGregor, the hospital’s chief medical officer, said last week that it is morally and legally obligated to make sure the girl receives proper care.

He said the girl’s illness — lymphoblastic lymphoma — is an aggressive form of non-Hodgkin lymphoma, but there is a five-year survival rate of 85 percent if she continues treatment.

Some of the girl’s tumors had gone away after the first round of chemotherapy, but she isn’t yet in remission, the hospital said.

“We really have to advocate for what we believe is in the best interest of the child,” McGregor said last week.

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retrieved from http://abcnews.go.com/US/wireStory/court-sides-ohio-hospital-amish-girl-care-20094478 on 09/03/2013 17:00 MDT~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Now, Why should the cannabis world care?

We as cannabis activists and as religious rights activists need to care about this case…. If this Amish family cannot follow the laws of their own religion regarding medical treatment, then we as cannabis activists need to side with the parents… this is no different than a parent making ia choice to treat the child with cannabis. their choice happens to be prayer. THEY HAVE THAT RIGHT IN MY OPINION.

Forget my opinion! These parents 1st amendment right is being trampled….

Congress shall make no law respecting an establishment of religion, or prohibiting the free exercise thereof; or abridging the freedom of speech, or of the press; or the right of the people peaceably to assemble, and to petition the Government for a redress of grievances.

I wonder if the state of Ohio remembers this little bit of freedom we are all taught to love.

if we sit by and let it be trampled, our cannabis kids are next… and we are already seeing examples of it… In our own backyards with horrifying results.Did the parents choose out of fear to begin chemo? yes they broke their own traditions and took her to start chemo of their own free will… when it was making her so sick and the parents and child wanted to return to their beliefs is when the fight started. now, like some cannabis kids… she is in foster care… no fair!

I was a kid with cancer in the foster care system… had to go before the judge about chemo…. the facility i was in said i was having a suicide attempt by refusing chemotherapy.  i am so glad Judge Regina Walters sided with my choice to decline chemotherapy.

If doctors were perfect, they wouldn’t practice medicine on people they expect to have patience to the point of calling them that as if it was a magic term that made us willing to wait an eternity to be graced by their practicing.

Now, back to this child…. imagine this poor Amish kid not yet old enough to choose if she wishes to join the religion or not (the rite of Rumspringa )
and who knows little outside of the people her parents have allowed around previously…. All of the sudden she is plunged into the evils of foster care? i feel so sorry for her… and all she wants to do is make the same choice i did… to eat the best foods she can, be nurtured by those around her and pray.

When it is a situation that is life and death. Why should the government have so much of a say. The individual with the cancer or illness should be the one to decide how to go about fighting for their life. It is family, friends and the creator ‘s place to guide that individual through the fight.

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Toddler Killed By Foster Mom, After Being Taken From Peaceful Birth Parents For Their Cannabis Use

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In Round Rock, Texas, the daughter of two peaceful young parents, was kidnapped by the state, after they admitted to someone that they smoke a small amount of cannabis at night. Sadly, the parents never got their daughter back, as her foster mother inflicted blunt force trauma to the toddler’s brain, putting her into a coma. Two days later the toddler, Alexandria Hill, died.

cps

Photo: Screenshot from YouTube

By Cassius Methyl
Intellihub.com

August 5, 2013

Because the state demands that people don’t smoke cannabis, the authorities will go as far as to kidnap your child to enforce this, and put him or her in a new, very likely more dangerous home. The bottom line is, there is almost no chance of a child ever possibly getting hurt because of his/her parents smoking cannabis.

Alcohol is legal, and parents can drink, therefore this kidnapping because of cannabis is absolutely dysfunctional, ridiculous, tyrannical, and in this case, fatal. This is a story of the state, at one of its most disgustingly dysfunctional and forceful points. It is abundantly clear that Alexandria Hill’s parents were average young people, in no way dangerous whatsoever. Joshua Hill, the father of Alexandria Hill, the 2 yr old girl who was killed, said “We never hurt our daughter. She was never sick, she was never in the hospital, and she never had any issues until she went into state ‘care’.”

Once she was forcibly placed in foster care last November, she began displaying bruises and injuries often, and appeared to live in unsanitary conditions. Alexandria’s father says “She would come to visitation with bruises on her, and mold and mildew in her bag. It got to a point where I actually told CPS that they would have to have me arrested, because I wouldn’t let her go back.”

The parents of Alexandria had her sent to a new home after the experience with the bruises and unsanitary living conditions, and this new home was the place where she received the fatal injuries. In January, for the second time, CPS made a mistake transferring her to this home, and that mistake was fatal.

They placed Alexandria in a home with 54 yr old Sherill Small, and she later either hit Alexandria in the head and killed her, or somehow inflicted a blow to her head, maybe dropped her , or threw her. Now this girl is dead, because the state can kidnap with impunity. Why should we ever allow the government to forcibly kidnap people’s children, for victimless crimes?

Why should we, the citizens, let them keep arresting people, hurting people, and letting people die for the controls they wish to impose on us? We have had enough of the dysfunctional, fake services they pretend to provide for us while they incessantly molest our lives from birth to death. Things seemed to be going alright according to Alexandria’s parents, when she was placed in the care of Sherill Small in Rockdale, Texas, at first.

The parents were about a month away from being reunited with their child, but then, Sherill beat the toddler’s head with a blunt object, or somehow inflicted severe force which resulted in blunt force trauma to the brain. The child sadly ended up in a coma, and she died 2 days later at the hospital. Sherill claims the child hit her head on a carpet when she was playing, but an investigation showed that the blunt force trauma means she was struck hard with something, and falling on carpet could never do that damage.

Sherill Small was arrested at her home for murder, yet revenge is not ‘justice’, as the ‘justice’ system would lead you to believe. This time, the dysfunctional and out of control, parasitic state has ended the life of a toddler. Punishing this psychotic old woman will not bring back the life of this girl. The only true justice that can be done, is to ensure that this doesn’t happen to anyone else, and the only way to achieve that, is to severely cut and limit the power of the state and federal governments. Our dogs will not be shot by police, our children will not be kidnapped by their parents and left to die in worse conditions, all of this would be okay, if only the citizens would demand that the government not arrest people for victimless crimes.

This is all a result of the citizens sitting back and watching TV, doing nothing, while these people continue to expand their own powers. The politicians and the people who control them like puppets, the corporations, and the police state they use to their advantage, are destroying us. It is time for the citizens to stand up, and have a peaceful revolution, clearing out the tyranny, taking people out of office, revoking laws.

We need to invoke the restoration of our true law, the Constitution, which doesnot allow the police to arrest people for victimless crimes, and kidnap children. Some very charismatic and corrupt politicians have manipulated our people over the years, convinced them that somehow the Constitution doesn’t guarantee basic rights, or that our safety is incompatible with freedom. They molested the loopholes in Constitutional Law until this was the result. It is now simply time to restore the true law- no more arresting people for victimless crimes.

We do need to solidify our rights that aren’t clearly outlined enough in the Constitution too, but it is a reasonable goal for freedom for today, to want to restore this true law. This is a reasonable philosophical solution to the problems we face today as a society. If you cannot see how much better off we would be without the government doing what they do, you need to learn about the crimes this government has committed. It is time to demand these people step down, and NO ONE restrict our rights to grow cannabis or smoke it.

This miracle plant that can be used to build homes, make paper and textiles, treat cancer and several other illnesses. Of course, it can even be smoked recreationally, being less harmful than almost any other recreational drug. You should know all of this, but knowing is only one step- now it is time to sway public opinion to a critical mass, and truly make the change happen. Go tell people about this, build up the support for freedom, the abolishment of all these government agencies, the revocation of laws, and the restoration of true constitutional law.

Please share this with as many people as possible, so we can simply gain our rights back, just so we can live in peace. This tyranny is getting bad- the scariest thing is how complacent and unaware many people are, of the crimes, dysfunctionality, and true nature of this government.

Writer Bio:

CassiusCassius Methyl is a journalist writing for Intellihub.com and a liberty activist who plays every instrument and vocals for an experimental metal-truth movement project called “Core of a Virus”. Find his music on Facebook. 

For media inquires, interviews, questions or suggestions for this author, email: cassius@intellihub.com or telephone: (347) 759-6075.

retrieved from: http://intellihub.com/2013/08/05/toddler-killed-by-foster-mom-after-being-taken-from-peaceful-birth-parents-for-their-cannabis-use/ on 09/03/2013 at 17:14 MDT

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and another

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UPDATE: Medical Marijuana Advocate Goes Public After Children Are Taken, Placed Into Foster Care

POSTED BY  ON MON, APR 29, 2013 AT 4:06 PM

UPDATE: April 30, 2013

The Boise Police Department released information regarding the April 24 incident involving Josh and Lindsey Rinehart, which resulted in the placement of the Rinehart’s children into the custody of the State of Idaho.

According to law enforcement, they were contacted by a local school official who said that an 11-year-old child had become ill, requiring medical treatment from a school nurse. Police said the child had eaten a substance which was identified as marijuana. Police said the marijuana had come from a home on the 2900 block of W. Malad Street. The child who became ill did not live at the residence but is acquainted with the Rinheart’s children.

Police said they went to the residence and found children, being cared for a babysitter while the parents were away. Police said they discovered drug paraphernalia and “a quantity of a substance that appeared to be marijuana in locations inside the house accessible to the children.” Patrol officers contacted narcotics investigators who secured a search warrant signed by a judge. Police added that their investigation has not yet resulted in criminal charges.

Detectives made the decision to contact Idaho Department of Health and Welfare officials who deemed that the children were in “imminent danger,” thereby putting the children into protective custody.

Police said typically they did not release information on cases that remain under investigation, but the suspects “in this case have chosen to identify themselves and the department believes it is in the public interest to clarify that evidence in a criminal investigation led officers to the Malad Street home.”

ORIGINAL POST:

Marijuana advocate Russ Belville, center left, is flanked by Lindsey Rinehart, center, and her husband Josh, center right.

  • ANDREW CRISP
  • Marijuana advocate Russ Belville, center left, is flanked by Lindsey Rinehart, center, and her husband Josh, center right.

Josh and Lindsey Rinehart believe the Idaho Department of Health and Welfare and the Boise Police Department erred in their decision to place their the Rinehart’s two sons in foster care, citing “imminent danger” because of the presence of marijuana found in the house.

“We’re taking issue with the ‘imminent danger’ charge,” Lindsey Rinehart said on the steps of the Idaho State Capitol. “I am a multiple sclerosis patient. The reason I had cannabis in my household is I’m a multiple sclerosis patient.”

Lindsey uses marijuana, she said, for medicinal purposes to treat her illness, which can cause violent muscle spasms. Boise Weekly readers may remember Rinehart from her testimony at the Idaho State Capitol regarding medical marijuana. As director of Compassionate Idaho,Rinehart has helped spearhead a petition drive to legalize marijuana in Idaho.

While the couple were on vacation April 23, she told Boise Weekly, Health and Welfare and Boise Police entered their home, confiscated marijuana found there, and ultimately placed her 5-year-old and 10-year-old boys in protective custody.

“We had just gotten cell service, and right when we entered Donnelly my cell phone kicked on and somebody had said the cops are at your house. And I knew,” she said.

The Rinhearts told media that on April 30 they will have supervised visitation with their children, and have begun the process of working with the Idaho Department of Health and Welfare to have their children returned to them. She said criminal charges have not yet been filed against her, but she anticipates they may be.

“Right now all I’ve heard is that they could be pending. There’s no warrant. I don’t know—it’s kind of this constant anxiety attack of when they’re going to come,” she said.

Tags: ,

retrieved from: http://www.boiseweekly.com/CityDesk/archives/2013/04/29/medical-marijuana-advocate-goes-public-after-children-are-taken-placed-into-foster-care on 09/03/2013 at 17:24 MDT

I could go on and on… what is wrong that these children are being ripped from their families? We have such bigger problems.

2013-01-12 0651 dark-angel edit 7 august edit

 

Hannah Hurnard’s “Hind’s Feet on High Places” audiobook video series

hind'a feet on high places

playlist on youtube: http://www.youtube.com/playlist?list=PLwc43UiVjiudD0DhoUELBfeHOamG_Hvtj

A set of videos in Tribute to the writing of Hannah Hurnard, “Hind’s Feet on High Places” to Art of Breezy Kiefair i just put music and art to a book that has been a favorite since childhood… my mother used to read me that book…. call it a tribute to her and an introduction of the book to an audience that may otherwise remain unaware of it. I recommend it for anyone with anxiety or PTSD

Preface to the allegory

The Preface chapter  to Art of Breezy Kiefair and the Music of Piotr Ilyich Tchaikovsky.

Preface to the allegory

https://plus.google.com/photos/108039434993096331483/photo/5856776704305425106

info on the book: “Hinds’ Feet on High Places” From Wikipedia, the free encyclopedia

Hinds’ Feet on High Places

Hinds’ Feet on High Places
Author(s) Hannah Hurnard
Country United Kingdom
Language English
Genre(s) Christian
Publisher Christian Literature Crusade
Publication date 1955
Media type Print (Hardback &Paperback)
Pages 158 pp.
ISBN ISBN 0 86065 192 4

Hinds’ Feet on High Places is an allegorical novel by English author Hannah HurnardHinds’ Feet was written in 1955 and has become a very successful work of Christian fiction, seeing new editions published as recently as July, 2005.

Plot introduction[edit]

It is the story of a young woman named Much Afraid, and her journey away from her Fearing family and into the High Places of the Shepherd, guided by her two companions Sorrow and Suffering. It is an allegory of a Christian devotional life from salvation through maturity. It aims to show how a Christian is transformed from unbeliever to immature believer to mature believer, who walks daily with God as easily on the High Places of Joy in the spirit as in the daily life of mundane and often humiliating tasks that may cause Christians to lose perspective.

The book takes its title from Habakkuk 3:19, “The Lord God is my strength, and he will make my feet like hinds’ feet, and he will make me to walk upon mine high places.”

The story begins in the Valley of Humiliation with Much Afraid, being beset by the unwanted advances of her cousin, Craven Fear, who wishes to marry her. The Family of Fearings seems to have some strong similarities to the Addams Family. Much Afraid is ugly from all outward appearances, walking on club feet, sporting gnarled, deformed hands, and speaking from a crooked mouth that seems to have been made so by a stroke or the like.

The Good Shepherd is tender and gentle with Much Afraid, especially in the beginning. However, His many sudden departures may strike the reader as bizarre, given the human penchant to expect kindly souls to never do everything that may be interpreted as rude or as hurtful in any way. Yet, though the Shepherd leaves in a moment, He returns the same way at the first furtive cry of the forlorn little protagonist. “Come, Shepherd, for I am much afraid!”

When Much Afraid intimates that she would love to be able to dance upon the high places as do the surefooted deer, the Shepherd commends her for this desire. In order to accomplish this, he offers to “plant the seed of love” into her heart. At first sight of the long, black hawthorne-looking seed, she shrieks in fear. Soon, she relents, and after the initial intense pain, she senses that something is indeed different in her, though she still looks the same, for now.

Just when the reader thinks that Much Afraid is about to reach the High Places, the path turns downward towards a seemingly endless desert. There is incident with an extremely high cliff that must be ascended by a steep, slippery and very narrow zig-zagging track, with the help of her two companions, Sorrow and Suffering. Then days are spent in a forest that is shrouded in a thick cloud of fog. During this time Much Afraid is sequestered with her two friends in a log cabin. The climax is an unexpected twist that comes as Much Afraid despairs of ever reaching the High Places.

Allusions/references to other works[edit|edit source]

The book bears some stylistic similarities to John Bunyan‘s The Pilgrim’s Progress. The name of the protagonist, Much-Afraid, also appears first in Bunyan’s work.

References[edit]

Bosman, Ellen. “Hind’s Feet on High Places” in Masterplots II: Christian Literature. Pasadena, CA: Salem Press, 2007: 779-782. Bezzina, Christopher Felix. ‘Journey to the High Places. Hannah Hurnard’s Spirituality and the Song of Songs.’http://www.amazon.com/Journey-High-Places-Hurnards-Spirituality/dp/1620320983

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Shall We Call it Wail Oil or Phoenix Tears?

Its the bitter watches of the night and I wake. I ask myself what it is that has rousted me this day from my slumber. Its not near my body clock’s time of 4am…. There is a wailing in my mind and I must ask myself “whose pain is this?” for I know it is not mine. My body is aching with the storm on the peak, but I’d just found my center and there was no wail with in me like this to speak.

So trying not to wake the other in my bed, I sit quietly and listen to see what it is this wailing voice has come to seek. Its victims so many victims… victims of war, hungry ghosts of a corrupt system, victims of the human butchers and legal poison vendors, victims of industry and victims of hard work, being eaten alive by cancer and bodily disorder of so many shapes and forms it makes me shudder in vibration with this wail. And within me I hold an answer for so many a gift from above that I try to spread without regard to a patient station in life….. It is a wail of responsibility. It is a wail of the profiteer’s victims. It is the wail of prohibitions ugly head……

I light a candle to guard my heart from a wailing so deep in the thick of the night and I still listen to the voice in my mind reminding me of their plight. I sit a while with the lamb in my breath asking that higher than I to step in and take this wail up with my smoke to the sky. I ask for the means to bless those wailing with even a few grams of healing and hope cause I believe in doing what my creator said. And I know that this life and this path I have chosen for myself has never been easy but its not about self.

I give honor to the earth. I burn sacred sage of the earth and cleanse the darkness from my mind until light only remains. I light incense and honor the air. More candles glow and I honor the firey spirit of the soul and I soak in salted and perfumed waters and try to scrub away the victimization of these beautiful souls. Lambs breath fills my pipe and lungs and mind and I try to send a shining beacon of the creators light to these wailing in my mind and in the dark and in their own lives and pain… Dressed for the day I inhale organic tobacco and ponder quietly.

Then another presence comes upon my mind…. and I am taken back though the years and back in time. To a place and time where my body was not constantly sore…. Its boulder its Ginsberg its 1994. Its a little bookish Jewish dude who howled for his time and who brought me to his feet to sit for a time… You see he was my own personal poet willy wonka who saw a bit of my poetry and brought me on up to the Naropa factory to sit at his feet for the anniversary of his beloved school. It was Allen Ginsberg day in Boulder and I was with the master and yet a child myself….. I remember how he opened my eyes and smoked a blended herbal cigarette with me in an intermission…..

What dreams I have of you tonight Allen Ginsberg as you dreamed of Walt Whitman…. with sick people wailing in the night and my soul howling at the moon of my own inner madness.

I wonder where you are tonight while I feel so small and so responsible. I imagine you my zen master in your own nirvana or perhaps your here again in another body and another life… But from wherever you are I seem to hear your voice reminding me of the power of my pen and of the ideals to which you and I both try to keep. You wanted freedom of the plant and so do I. I’m trying to be a willy wonka for others where you were willy wonks for I… and so my musings and prayers and light intercessions complete I turn to what I can do for those wailing from where I am and put actions to the light that I keep.

And so I begin to wail for these folks online saying with my writers voice and my mighty pen:

I begin with this blessing: Virtual early Sunday morning tokes to all of the Rastafarian sacramental strain lambs breath. For me this strain quiets fears and calms my mind. It clears my mind and puts me in a space where i can enter my creators holy throne room with gratitude and peace instead of chaos and turmoil. It makes me still enough to hear the still small voice of my soul. It points me to currents and springs of strength and reminds me of the good i do. All of this i have for me i extend to you virtually and in energy and prayer.

Note***** There are two sacramental strains to the Rastafarian religion. One is called Lamb’s bread (I have never had the pleasure of smoking this strain) and it is said to have cola’s so large that the buds are sliced up like slices of bread. This is said to be more for dancing and rejoicing before the Lamb. Lamb’s breath is characterized by smaller dense highly resinous buds that are mellow, mind clearing and good for quiet contemplation.

I am still looking for new raw material sources to meet demand. I will pay $100 a pound for quality trim. I know a lot of you usually process your own trim but who cant use an extra few dollars around the holidays that the transaction goes to save lives? Call 719 480 0238. you must be in Colorado. I need bulk i need it quick.

I will travel anywhere in the state and negotiate on price for the right weight of the right stuff. I need trim that bad. I am trying to get people served as quickly as possible while longer term sources Relationships are in the works. Call 719 480 0238. A portion of any and all trim purchased goes to provide free phoenix tears to those in need that is why i need good prices. To put goodies into financially challenged cancer and severe illness folks hands. Lets get those free folks their Christmas presents and the paid folks what they deserve. It will make you feel good to give some people tears of joy.

The rest of you who cannot help with actions you may offer you energy to the task. Never underestimate the power of prayer in intercession for someone else. If we focus good vibes on those free peeps and paid peeps their lives can improve exponentially by far more than me just getting Their oil delivered to them. I invite you to join me in that intention…. No, i challenge you to.

Where is the heart that used to beat in this state for the less fortunate? Have you all gone mad with greed? I am willing to pay a fair price so i can give meds away for free. Will no one support me in that cause? Are you all so rich you can laugh at thousands of dollars? Are you all so unmoved by the plight of the less fortunate? Is there no one who believes in me filling hands where mine once needed filled? No one thinks its good to repay kindness by paying
it forward to others?

I just gotta get these people taken care of. For some it means hope to try for another year. There is a couple who lives on the street. One partner has bone cancer and has all but given up. When my oil is there they live as good as they can and enjoy what life they have. Without the oil bone cancer boy gives up. They cant pay and i don’t care. I wanna give them both some hope and quality of life.

There is a writer whom many respect respect within our community whose belly aches him to no end and he cant sleep among other serious issues that are more private. He works hard for our cause but cant afford oil. He is the very picture of a starving writer and artist with a good soul and I wanna get him some rest and comfort so he can continue to serve us all so well.

There is an awesome bud-tend who works for far less than he is worth. The shop he works for sells oil yet it is out of his price range. A grain of rice a day would stop him from needing a diabetic needle yet his pancreas is far overworked. I wanna be sure he can keep giving patients the strains they need with the brain in his head. I have never left his shop with anything other than a strain to treat exactly the conditions I am concerned about that day mostly due to his knowledge that keeps a wide variety of strains for a wide variety of ailments on the shelves and getting into the right hands.

There are Numerous ladies and gents with tumors praying to avoid chemo and folks hoping not to need their noses scraped off their faces Who cant pay and need mercy. How can anyone deny the value of what i”m trying to accomplish? will no one sell me the raw materials i need to enrich these lives. I have shared but the tip of the iceberg.

Someone calls these folks I’m trying to help jewels in my crown. I bristle at the suggestion. I don’t care about jewels in my crown. If the creator blesses me as such that is incidental. I give because i know need better than most and to repay the kindnesses done for me by good people when i had nothing.

I do it because someone needs to and far too many are far too concerned with profit. I do it because these are victims of a corrupt system each and everyone in one way or another.

And i do it because it is in my nature to do it. And to make my murdered son proud of me from where he sits waiting on me in the afterlife and to make his wait have meaning. Help me make these sick people’s wait have meaning too.

So if you have some trim and a heart call me at 719 480 0238 And lets bless some people together. If you have a heart and no trim please just keep these good folks in your thoughts and prayers or however you communicate with the universe offer some strength in the direction of one or more of these people. Don’t direct it at me please. The sick need your love and light far more than i do.

I ask again! Where is the heart that used to beat in this state for the less fortunate? Have you all gone mad with greed? I am willing to pay a fair price so i can give meds away for free. Will no one support me in that cause? Are you all so rich you can laugh at thousands of dollars? Are you all so unmoved by the plight of the less fortunate? Is there no one who believes in me filling hands where mine once needed filled? No one thinks its good to repay kindness by paying it forward to others?

And so I move from being woke in the night, to prayer, to action trying to get some help to those who need it most. Won’t you please help me? I want to buy raw materials to make them medicine. That’s all.

Some Raw Materials images purchased after this post:

This is some sugar out of one of our big bags of trim

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virtual tokes from my bag to your bowl.....some bud from an oil making bag of raw materials that came from an awesome friend — in Denver, CO.

virtual tokes from my bag to your bowl…..
some bud from an oil making bag of raw materials that came from an awesome friend — in Denver, CO.

You Can't see my pain with your eyes. The only thing that relieves my pain is Cannabis! You could never imagine the pain I suffer, yet you deny me my freedom.

You Can’t see my pain with your eyes. The only thing that relieves my pain is Cannabis! You could never imagine the pain I suffer, yet you deny me my freedom.

Familial Mediterranean Fever ~ a Rare genetic disease

I do not look like I have a single drop of Mediterranean blood in me, so why do i care about this rare genetic disorder? Because the color of skin is only skin deep. Because despite the pale appearance of my exterior,  I have the genetic ancestor from that part of the world who handed me this recessive trait. Because I have this disease and have to live with it…

Breezy Kiefair struggling to gain weight post flare

Breezy Kiefair struggling to gain weight post flare

I care because I need to repost the links as many times as possible in hopes that those related to me by blood will heed my warning and look for signs of the disorder in the kids…. I have made no secret of the fact that I am far estranged from my biological family, so I turn to electronic means to spread the word.

There is no cure, but the treatment does help….. There is no cure, but knowledge that there is indeed something wrong and that I am not a hypochondriac is soothing to the mind…. There is no cure, but it sure as hell does explain a lot about both myself and my blood relatives… BOTH my parents had to have the recessive gene in order for me to have this disorder. Both my parent’s sets of siblings may also be carriers of these recessive traits….  ALL of my blood siblings (half or full blooded) are POTENTIAL carriers of the defect…. Therefore, ALL of my blood nieces and nephews are potential victims of the disease as well as their children. It is my hope that those in my family will stumble upon this post and then value the family’s future generations enough to spread this information to where it may be of use (i emailed it directly to those whose email addresses I possess in my bloodline)
the below information was retrieved from: http://ghr.nlm.nih.gov/condition/familial-mediterranean-fever

What is familial Mediterranean fever?

Familial Mediterranean fever is an inherited condition characterized by recurrent episodes of painful inflammation in the abdomen, chest, or joints. These episodes are often accompanied by fever and sometimes a rash. The first episode usually occurs in childhood or the teenage years, but in some cases, the initial attack occurs much later in life. Typically, episodes last 12 to 72 hours and can vary in severity. The length of time between attacks is also variable. Without treatment to help prevent attacks and complications, a buildup of certain protein deposits (amyloidosis) in the body’s organs and tissues may occur, which can lead to kidney failure.

How common is familial Mediterranean fever?

Familial Mediterranean fever primarily affects populations originating in the Mediterranean region, particularly people of Armenian, Arabic, Turkish, and Jewish ancestry. The disorder affects from 1 in 250 people to 1 in 1,000 people in these populations. It is less common in other populations.

What genes are related to familial Mediterranean fever?

Mutations in the MEFV gene cause familial Mediterranean fever. The MEFV gene provides instructions for making a protein called pyrin (also known as marenostrin), which is found in white blood cells. This protein is involved in the immune system, helping to regulate the process of inflammation. Inflammation occurs when the immune system sends signaling molecules and white blood cells to a site of injury or disease to fight microbial invaders and facilitate tissue repair. When this has been accomplished, the body stops the inflammatory response to prevent damage to its own cells and tissues.

Mutations in the MEFV gene reduce the activity of the pyrin protein, which disrupts control of the inflammation process. An inappropriate or prolonged inflammatory response can result, usually accompanied by fever and pain in the abdomen, chest, or joints.

Normal variations in the SAA1 gene may modify the course of familial Mediterranean fever. Some evidence suggests that a particular version of the SAA1 gene (called the alpha variant) may increase the risk of amyloidosis among people with familial Mediterranean fever.

Read more about the MEFV and SAA1 genes.

How do people inherit familial Mediterranean fever?

Familial Mediterranean fever is almost always inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.

In rare cases, this condition appears to be inherited in an autosomal dominant pattern, in which one copy of the altered gene in each cell is sufficient to cause the disorder and affected individuals often inherit the mutation from one affected parent. However, there are other possible explanations of this apparent pattern. A gene mutation that occurs frequently in a population may result in a disorder with autosomal recessive inheritance appearing in multiple generations in a family, a pattern that mimics autosomal dominant inheritance. If one parent has familial Mediterranean fever (with two mutations in the MEFV gene) and the other parent is an unaffected carrier (with one mutation in the MEFV gene), it may appear as if the affected child inherited the disorder only from the affected parent. This appearance of autosomal dominant inheritance when the pattern is actually autosomal recessive is called pseudodominance.

Where can I find information about diagnosis or management of familial Mediterranean fever?

These resources address the diagnosis or management of familial Mediterranean fever and may include treatment providers.

You might also find information on the diagnosis or management of familial Mediterranean fever inEducational resources and Patient support.

To locate a healthcare provider, see How can I find a genetics professional in my area? in the Handbook.

Where can I find additional information about familial Mediterranean fever?

You may find the following resources about familial Mediterranean fever helpful. These materials are written for the general public.

You may also be interested in these resources, which are designed for healthcare professionals and researchers.

What other names do people use for familial Mediterranean fever?

  • Benign paroxysmal peritonitis
  • Familial paroxysmal polyserositis
  • FMF
  • Hereditary Periodic Fever Syndromes
  • Mediterranean Fever, Familial
  • MEF
  • Periodic Disease
  • Periodic peritonitis
  • Recurrent polyserositis
  • Reimann periodic disease
  • Siegal-Cattan-Mamou disease
  • Wolff Periodic Disease

For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.

What if I still have specific questions about familial Mediterranean fever?

Where can I find general information about genetic conditions?

What glossary definitions help with understanding familial Mediterranean fever?

amyloidosis ; autosomal ; autosomal dominant ; autosomal recessive ; benign ; carrier ; cell ; complication ;familial ; fever ; gene ; immune system ; inflammation ; inheritance ; injury ; joint ; kidney ; molecule ;mutation ; population ; protein ; pseudodominance ; recessive ; sign ; symptom ; syndrome ; teenage ;tissue ; white blood cells

You may find definitions for these and many other terms in the Genetics Home Reference Glossary.

See also Understanding Medical Terminology.

References (13 links)

The resources on this site should not be used as a substitute for professional medical care or advice. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. See How can I find a genetics professional in my area? in the Handbook.

Reviewed: September 2008
Published: October 23, 2012

please also read: 

http://emedicine.medscape.com/article/330284-overview#showall

 
and here is some more information retrieved from: http://en.wikipedia.org/wiki/Familial_Mediterranean_fever

Familial Mediterranean fever

From Wikipedia, the free encyclopedia

Familial Mediterranean fever (FMF) is a hereditary inflammatory disorder[1]:149. FMF is an autoinflammatory disease caused by mutations in MEFV, a gene which encodes a 781–amino acid protein denoted pyrin.[2]

The disorder has been given various names including familial paroxysmal polyserositis, periodic peritonitis, recurrent polyserositis, benign paroxysmal peritonitis, periodic disease or periodic fever, Reimann periodic disease or Reimann’s syndrome, Siegal-Cattan-Mamou disease, and Wolff periodic disease.[3][4][5] Note that “periodic fever” can also refer to any of thePeriodic fever syndromes.

Epidemiology

FMF affects groups of people originating from around the Mediterranean Sea (hence its name). It is prominently present in the Armenian people, Sephardi Jews (and, to a much lesser extent, Ashkenazi Jews), CypriotsTurks and Arabs.[6]

[edit]Signs and symptoms

[edit]Attacks

There are seven types of attacks. Ninety percent of all patients have their first attacks before they are 18 years old. All develop over 2–4 hours and last anywhere from 6 hours to 4 days. Most attacks involve fever.[6]

  1. Abdominal attacks, featuring abdominal pain, affect the whole abdomen with all signs of peritonitis (inflammation of abdominal lining), and acute abdominal pain likeappendicitis. They occur in 95% of all patients and may lead to unnecessary laparotomy. Incomplete attacks, with local tenderness and normal blood tests, have been reported.
  2. Joint attacks mainly occur in large joints, especially in the legs. Usually, only one joint is affected. Seventy-five percent of all FMF patients experience joint attacks.
  3. Chest attacks include pleuritis (inflammation of the pleura) and pericarditis (inflammation of the pericardium). Pleuritis occurs in 40% of patients, and makes it difficult to breathe or lie flat, but pericarditis is rare.
  4. Scrotal attacks due to inflammation of the tunica vaginalis occurs in up to 5% and may be mistaken for acute scrotum (i.e. testicular torsion).
  5. Myalgia (rare in isolation)
  6. Erysipeloid (a skin reaction on the legs, rare in isolation)
  7. Fever without any of the other symptoms listed above (25%)

[edit]Complications

AA-amyloidosis with renal failure is a complication and may develop without overt crises. AA amyloid protein is produced in very large quantities during attacks, and at a low rate between them, and accumulates mainly in the kidney, as well as the heartspleengastrointestinal tract and thyroid.[6]

There appears to be an increase in the risk for developing particular vasculitis-related diseases (e.g. Henoch-Schönlein purpura), spondylarthropathy, prolonged arthritis of certain joints and protracted myalgia.[6]

[edit]Diagnosis

The diagnosis is clinically made on the basis of the history of typical attacks, especially in patients from the ethnic groups in which FMF is more highly prevalent. An acute phase response is present during attacks, with high C-reactive protein levels, an elevated white blood cell count and other markers of inflammation. In patients with a long history of attacks, monitoring the renal function is of importance in predicting chronic renal failure.[6]

A genetic test is also available to detect mutations in the MEFV gene. Sequencing of exons 2, 3, 5, and 10 of this gene detects an estimated 97% of all known mutations.[6]

A specific and highly sensitive test for FMF is the “Metaraminol Provocative Test (MPT),” whereby a single 10 mg infusion of Metaraminol is administered to the patient. A positive diagnosis is made if the patient presents with a typical, albeit milder, FMF attack within 48 hours. As MPT is more sensitive than specific, it does not identify all cases of FMF. Although a positive MPT can be very useful.[7][8]

[edit]Pathophysiology

Virtually all cases are due to a mutation in the MEFV gene on the sixteenth chromosome, which codes for a protein called pyrin or marenostrin. Various mutations of this gene lead to FMF, although some mutations cause a more severe picture than others. Mutations occur mainly in exons 2, 3, 5 and 10.[6]

The function of pyrin has not been completely elucidated, but it appears to be a suppressor of the activation of caspase 1, the enzyme that stimulates production of interleukin 1β, a cytokine central to the process of inflammation. In other words an ineffective pyrin doesn’t inhibit inflammation normally, resulting in inflammatory episodes of membranes at differing sites. It is not conclusively known what exactly sets off the attacks, and why overproduction of IL-1 would lead to particular symptoms in particular organs (e.g. joints or the peritoneal cavity).[6]

[edit]Genetics

Familial Mediterranean fever has an autosomal recessive pattern of inheritance.

The MEFV gene is located on the short arm of chromosome 16 (16p13). The disorder inherits in an autosomal recessive fashion. Therefore, two asymptomatic carrier parents have a 25% chance of a child with the disorder, a 50% chance of a child who is an asymptomatic carrier and a 25% chance of a child who does not carry the disorder. FMF patients who have children with a carrier or another FMF patient have a 50% and 100% chance, respectively, of having a child with FMF.[9][10]

There is one known case of an affected patient with only one parent who is a carrier. This is caused by a unique mutation on thesixteenth chromosome.

[edit]Treatment

Attacks are self-limiting, and require analgesia and NSAIDs (such as diclofenac).[6]

Colchicine, a drug otherwise mainly used in gout, decreases attack frequency in FMF patients. The exact way in which colchicine suppresses attacks is unclear. While this agent is not without side effects (such as abdominal pain and muscle pains), it may markedly improve quality of life in patients. The dosage is typically 1–2 mg a day. Development of amyloidosis is delayed with colchicine treatment. Interferon is being studied as a therapeutic modality.[6] Some advise discontinuation of colchicine before and during pregnancy, but the data are inconsistent, and others feel it is safe to take colchicine during pregnancy.[11]

Approximately 5-10% of FMF cases are resistant to colchicine therapy alone. In these cases, adding anakinra to the daily colchicine regimen has been successful.[12]

[edit]History

New York allergist, Dr Sheppard Siegal, first described the attacks of peritonitis in 1945; he termed this “benign paroxysmal peritonitis”, as the disease course was essentially benign.[13] Dr Hobart Reimann, working in the American University in Beirut, described a more complete picture which he termed “periodic disease”.[14][15]

In 1972, colchicine was discovered to prevent attacks.[16]

The link to the MEFV gene was discovered in 1997 by two different groups, each working independently – the French FMF Consortium,[9] and the International FMF Consortium.[10]

[edit]See also

[edit]References

  1. ^ James, William; Berger, Timothy; Elston, Dirk (2005). Andrews’ Diseases of the Skin: Clinical Dermatology. (10th ed.). Saunders. ISBN 0-7216-2921-0.
  2. ^ Chae JJ, Wood G, Richard K et al. (September 2008). “The familial Mediterranean fever protein, pyrin, is cleaved by caspase-1 and activates NF-kappaB through its N-terminal fragment”Blood 112 (5): 1794–1803. doi:10.1182/blood-2008-01-134932PMC 2518886PMID 18577712.
  3. ^ Dugdale III, David C; Jatin Vyas (2010-09-15). “Familial Mediterranean fever – PubMed Health”PubMed Health. National Centre for Biotechnology Information. Retrieved 2011-04-24.
  4. ^ Enersen, Ole Daniel. “Whonamedit – Siegal-Cattan-Mamou syndrome”Whonamedit? A dictionary of medical eponyms. Archived from the original on 2001-04-24. Retrieved 2011-04-24.
  5. ^ “Familial Mediterranean fever – Genetics Home Reference”Genetics Home Reference. U.S. National Library of Medicine. 2011-04-14. Archived from the original on 2011-04-24. Retrieved 2011-04-24.
  6. a b c d e f g h i j Livneh A, Langevitz P (2000). “Diagnostic and treatment concerns in familial Mediterranean fever”. Baillieres Best Pract Res Clin Rheumatol 14 (3): 477–498.doi:10.1053/berh.2000.0089PMID 10985982.
  7. ^ Barakat MH, El-Khawad AO, Gumaa KA, El-Sobki NI, Fenech FF (1984). “Metaraminol provocative test: a specific diagnostic test for familial Mediterranean fever”. Lancet 1(8378): 656–7. PMID 6142351.
  8. ^ Huppertz HI, Michels H (1988). “[The metaraminol provocation test in the diagnosis of familial Mediterranean fever]”. Monatsschr Kinderheilkd 136 (5): 243–5. PMID 3405225.
  9. a b The French FMF Consortium (1997). “A candidate gene for familial Mediterranean fever”. Nat. Genet. 17 (1): 25–31. doi:10.1038/ng0997-25PMID 9288094.
  10. a b The International FMF Consortium (1997). “Ancient missense mutations in a new member of the RoRet gene family are likely to cause familial Mediterranean fever”. Cell 90(4): 797–807. doi:10.1016/S0092-8674(00)80539-5PMID 9288758.
  11. ^ Michael O, Goldman RD, Koren G (August 2003). “Safety of colchicine therapy during pregnancy”Can Fam Physician 49: 967–9. PMC 2214270PMID 12943352.
  12. ^ Calligaris L, Marchetti F, Tommasini A, Ventura A (2008). “The efficacy of anakinra in an adolescent with colchicine-resistant familial Mediterranean fever”European Journal of Pediatrics 167 (6): 695–696. doi:10.1007/s00431-007-0547-3PMC 2292480PMID 17588171.
  13. ^ Siegal S (1945). “Benign paroxysmal peritonitis”. Ann Intern Med 23 (2): 234–47. PMID 18124924.
  14. ^ Reiman HA (1948). “Periodic disease. Probable syndrome including periodic fever, benign paroxysmal peritonitis, cyclic neutropenia and intermittent arthralgia”. J Am Med Assoc 136 (4): 239–44. PMID 18920089.
  15. ^ synd/2503 at Who Named It?
  16. ^ Goldfinger, S.E. (1972-12-21). “Colchicine for familial Mediterranean fever”. New England Journal of Medicine 287 (25): 1302. doi:10.1056/NEJM197212212872514.PMID 4636899.

[edit]External links

Breezy Says:

The treatment for any persons afflicted with the disease is a gout medication called colchicine. You can read up on the medication here:
In addition to the Colchicine, I recommend a regimen of ingesting Phoenix Tears Oil (hash oil made from the cannabis plant) by mouth in concert with smoking the plant to treat pain and juicing the fan leaves to decrease intestinal symptoms and increase appetite.

–Auto signature below–
Respectfully,
Breedheen O’Rilley Keefer
AKA Breezy Kiefair

links about breezy
blog

the more in depth, needs editing, 31 page version to help you understand why i sit at my machine fighting the machine day in and day out.
~ Do all that you can to cultivate peace within yourself, that it might
shine out from you, and plant the seed of peace in other spirits, for them
to cultivate.~{Remember… it is when we choose act on the issues that are in front of
our faces, when we choose to get involved instead of looking the other way
as our fellow man struggles, when we choose to take those small simple
little actions, working on righting little wrongs in our everyday lives that
really make change happen, those seemingly small actions are what really
make the world a better place and are a catalyst for greater social change.}
~Both quotes by Breedheen “Bree” O’Rilley Keefer~

The LIterary LIneage of Breezy Kiefair

Preface:
My lineage is made up of many things, most of all experience, the experience of the ugly side of humanity. I was born to parents who cared little for me. They handed me off to one seemingly well meaning relative to the next, until there were none left to take me. None were left in my own bloodline who had any use for me. So I was passed on to friends of the family, and then to friends of friends of the family, until I landed in foster care, the worst fate of all. In my experienced opinion, the worst fate that can befall a child is to be raised solely by society. I learned to read when I was 3 years old, no thanks to my parents, only to my brothers and sister. I followed them around, with book in hand, begging them to read to me. It was the same book each time, a Chip ‘n Dale and Donald Duck Little Golden book with the cover torn off. I knew the letters on the pages had meaning. I could recognize the letters when written, and I knew that once they were strung together they made words. But I just couldn’t make out what those words were. I reasoned that if I could hear the those words enough times, I could unlock their code, and I did.

The Literary Linage of Breezy Kiefair
One magical day, after hearing a book a million times,
and knew the words of it by heart as I knew my ABC’s
the letters suddenly transformed before me,
and somehow, magically I could read!
From that moment on, I began to devour books to escape
from my childhood which was unfolding grimly before me.

I was subject to all kinds of abuse

Physical abuse (I was beaten to within an inch of my life more times than I care to count!)
Pedophilia, manipulation, penetration, endless mind fucks – (that hurt more than fists)

My emotions
were toyed with
and twisted with tautological terror,
until I had been taken down a peg one too many times and all that was left was a trifle!
I was a child given over to society to raise,
yet the only civility I found was in books – books I devoured with an insatiable appetite.
Learning my ABC’s served me well.
The author mattered not, whether it was fiction or nonfiction was irrelevant,
all that mattered was having a book before my face

so I didn’t have to deal with the ugliness of man.

I read of Archaeology and Alice in Wonderland
of Bibles and Biology, of castles and clichés,
of dictionaries and dinosaurs, of epochs and ecology,
of fiction and fact, of Greek Gods and Gatsby,
of hobbits and Howl, of idiocy and intelligence,
of journalism and jurisprudence, of knowledge and knights, of Kafka and Kerouac,
of love (which I dreamed about experiencing, but didn’t really understand)
of mysteries and molecules,
of narcotics (I got a very different education as an adult known as being street-wise)
and National Geographic
I read of oblivion and observance, oppression and orators, orchestras and overtures, of outer space, owls and the orient!
I read of pagans and pageants,
painters (and the whole field of visual arts, with which I began to experiment)
and paleontology, palindromes and pantomimes,
papacy and paperbacks, parables and parchment,
Paris and particle accelerators, passion and pacifism,
patents and plagiarism, patriotism and patronization
peace and the parvenu people
the power of pens, pencils, petitions and philosophy,
of pixies and plagues, planets and the profound,
pleasure and plots, plumage and posterity,
poetry and prose (I began to experiment with these almost immediately)
politics and pollution,
posthumous publishing, prayer and pride
primates, princes and princesses, pirates and probability,
persecution and protest, pseudonyms and the psychedelic,
psychiatry (foster care gave me an intimate enough knowledge of this) and pogroms,
and of publication (which I became mildly obsessed with attaining)
I read of queens and questions (all varieties…
the quaint, and the quixotic, the quality and the quarrelsome, all the quiet queries of man)
I read of races and racism, of radar and the radical,
realism and reverence, redemption and redundancy,
relativity and remorse, resilience and responsibility.
Revolutionary as well as routine ideas entered me through books.
Slowly I began to realize the sadism of the name
so salaciously supplied by those who sired me,
and words that symbolized “Me” began to seem sardonic in sound,
so I simply sacrificed it, and my new signification saved my sanity.
Outside the tales, my talents and tested “genius” withering in the wind.
All I am was continuously trampled on an left in tatters,
teaching me the inescapable cruelty of time.
Until I grew to be a teenager full of temerity teetering tumultuously.
My tenacity (and my nose in any book available) the only things
tenderly holding me back from terminating my own terrible tale
in tall tenement housing and government dorms.
Ubiquitous ugliness, ulterior ultimatums, umbrage un-abbreviated,
and umpteen unchangeable underhanded unjustifiable uproots,
let me know I was undesirable, un-lovable and would remain forever unknown,
despite my dreams
I was valedictorian – very nearly
(my GPA was the highest,
but the powers that be chose
to give the honor
to those among them
who had attended the school the full 4 years)
I valiantly struggled for my honor, but all in vain
so after graduation I voyaged.
wanderlust then took my feet, and I was on my way
wanting to wade into all that wonder I had found within the worlds
not wanting to wallow in the waste that my life had been thus far,
wanting so desperately to prove myself worthy of any literary lineage.
Much later, with Xanadu unattained,
I settled into xerothermic xyloid adulthood and obscurity.
YY chromosome grew within me,
yet as a young yearling he perished,
ever yoking sorrow wit me
a year later I fell ill, my youth gone,
illness making me old before my time,
yet I carry on, for a reason known to Yahweh.

I am no Zealot
(though I continue writing zealously)
My writing is the zeitgeist of my own soul.
My zenith my come if ever I am included in part of
someone elses literary lineage.
perhaps then I will finally be worthy of having a literary lineage.
written by Breezy Kiefair at Naropa
November 10, 2007

poem post resurrected from: https://www.greenpassion.org/index.php?/topic/19229-poem-the-literary-linage-of-breezy-kiefair/

Who We are, How We Came to Be, Why we Give back

Article I wrote that was published in Cannabis Health news Magazine February 2010

need proof that it was published (i know many of you do…http://cannabishealthnewsmagazine.com/PDF/CHNM_Feb2010_small.pdf )

The below piece is to be published in the next issue of Cannabis Health News Magazine whose editor is Jason Lauve. Jason was acquitted of all charges by a jury on August 6, 2009. He has been a tireless advocate for Medical Marijuana patients in Colorado before this date and since.
Kiefair Keepsakes…. How we came to be, Why we give back

Copyrighted material All Rights Reserved see message at the bottom of essay

I tell you this story, not for myself, but for those in similar situations without the strength or ability to speak.

The government of the United States and the State of Colorado (as well as other states) are all saving a ton of money due to the growth in the medical marijuana industry and so are the dispensaries and caregivers. As a patient caught in the middle, I decided that I may have a unique perspective on this issue and have decided to throw my two cents in on the topic.

If you listen to the news, it seems to be the government officials vs. the dispensary owners. here in Colorado. This should not be the case. The patients needs should be at the heart of this discussion, particularly the needs of low income medical marijuana patients on Social Security Disability and Social Security Income (SSD/SSI)

I posted much of the content you will read here all over the internet in an effort to help myself and others in my position. I sat in the online forums begging:

“Is there someone, anyone out there who hears my plea and wants to help me actually do something other than sit in online forums and complaining about the problem and hope someone does something”

I was heartbroken to find little positive response and a lot of negative/cruel responses by persons who clearly are recreational users and not medical users. The treatment of women in some of these cannabis forum rooms was often appalling. I finally decided to stop beating a dead horse and set up a store front to help me get the funds I need for my own medicine, food and other needs and to donate 10% of our profits to provide medical marijuana for free to low income patients in need. Currently we have only one dispensary signed on with us, GreenBelly Co-op LLC in Eldorado Springs, Co.

We encourage other dispensaries and caregivers to join with us in this effort. The funds to be donated will be held in trust and dispensed when/where they are needed according to the needs and location of the patient in question. A patient from your area would contact me, then I would contact you to confirm you have the stock necessary for the patient and to confirm availability of time, I would then deposit money for their medication into a paypal account owned by your dispensary. The patient could then come in and pick up their necessary medicine. I require no investment on your part. Patients would report on the quality of your medicine and I would then write their reviews and forward their recommendations (no names attached) on the net. Everybody wins. People who wish to provide money for the trust can purchase anything in my online gift-store or my personal catalog. 10% of my profits go to this fund. Hopefully a larger and larger percentage of profits will got to the trust when my personal finances allow me.

When I began to write the essay that I posted in the online forums, I decided that my joining the Medical Marijuana Registry was my Christmas Present to the American Taxpayer for the year 2009. And posted the title as “My Personal Christmas Gift to the American Taxpayer.”

Now, you may imagine me as the stereotype of a “stoner” that has been created by the media. Let me correct you
First of all, I am a female over 25 and under 40 with severe and debilitating Fibromyalgia, the kind that forces doctors to shake their heads and prescribe one ineffective man made medicine on top of another while I waste away and my quality of life diminishes. The onset of my symptoms began almost instantly after my birth in Canon City, CO and I have been fragile ever since. I’ve even been told by a doctor or two that may well have one of the worst Fibromyalgia cases on record. I was a ward of the State of Colorado until I ran away when I was 16 due to horrid abusive conditions within the state foster care program and completed my high school in another state.

My sole health insurance is provided to me is under medicare/medicaid. This is because I am completely disabled and the doctors do not allow me to work, or even to attend school. I assure you that this is only for the time being… I am getting stronger all the time!

In 1994, I was awarded Ginsberg Scholarship up at Naropa during the 20th anniversary festival. I dreamed for years of attending, but my health prevented it. I finally got stubborn and bullied my doctors into letting me go. I was accepted into and attended Naropa University for two semesters in 2007-2008 school year in an effort to get a degree that would give me access to jobs more suited to my bodies abilities, and was pulled out by my doctors both times. Naropa wanted me there, I wanted to be there, but government programs required I be enrolled a certain amount of credit hours (beyond the abilities of my body) in order to keep my funding. I attempted a semester at Grand Canyon University online in Fall 2008 to the same effect. Now I have many thousands of dollars in student loans I can’t pay because I attempted to get a degree so I could get a job my body could handle.

I was forced to be on government programs like Social Security Disability and Social Security Income (SSD/SSI) at a young age. I was in middle school when I was put on SSD/SSI for the first time while I was a ward of the State of Colorado.

Let me clarify, the first time I was put on disability, I was a minor and the State decided as my sole legal guardian to place me on disability. The state “adopted me” in a sense.My name was changed legally and my parents rights to me as a child were formally, legally and permanently terminated. None of it was not my choice (except the name change after years of foster care), it was not discussed with me, I was a child. My medical care as a child was much as it is now, with the exception of the fact that kids get a bit more coverage. Being on the program at a young age, I did not accumulate much in the way of work money in my SSI account, although I did attempt to work several times. Unfortunately every time, an employer or doctor would get tired of me being sick and put a stop to it one way or another. That is why my monthly amounts from SSI/SSD are so low, not because I am disabled, but because I couldn’t work to pay into the system like the people who receive these benefits only when they reach retirement after a full life of paying in. Also did you know the government actually Penalized people for getting married if you are both on disability? They treat you as one person and give you one person’s pay! For love, and for spiritual reasons I decided that was a risk I would just have take. So, I married my love who happened to be on disability also anyway.

Now I ask the members of the Government of the Great State of Colorado, if you had an adult child who was sick and suffering would you leave them to languish in pain and poverty just because it was no longer your legal responsibility? Of course you wouldn’t. You would do whatever was in your power to make your child as comfortable as possible.

As an adult child, I now boldly but humbly step up to my adopted parent, the Government of the State of Colorado, and ask, “Guardian Colorado, do you it intend to focus on the dispensaries who are the money in this discussion, or do you intend to focus on your citizens whose LIVES are being saved by this plant? You discuss care giving so much in this debate, but the treatment of patients on the part of many in this debate has proven differently. I know you have hearts, please use them as you consider these policies. This shouldn’t be a partisan issue. This should be a people issue.

Before I was placed on the Colorado Medical Marijuana Registry in June 2009, I would have to visit a doctors office several times a month, sometimes several times a week, sometimes with several appointments booked the same day with specialists and tests, painful and difficult physical therapy that seemed to harm more than hurt, etc., and there were to many trips to the emergency room to count.

I went to the ER out of sheer desperation, I went just so I could get comfortable enough to have a bit of sleep after a week or more of lingering in a painful place that seemed to be located in deep within the realm of a narcotic distorted pain haze, a no-where-land that seemed to be somewhere between life and death. The doctors in the emergency room and elsewhere often treated me as though I was an addict, and not a pain patient, AND I WAS MISERABLE!

Since I was approved for the medical marijuana registry I haven’t needed near the amount of services from the medicaid/medicare program. In fact, I’ve had to see a doctor twice since June 3, 2009 when the doctor signed my forms.

Once to have 14 teeth pulled, a little bit of dental work made necessary by a combination of years of no dental benefits unless my teeth couldn’t be saved and needed to be pulled, being on narcotics for almost a decade, and dealing with severe nausea/vomiting/malnutrition.

The other doctor visit (and medications that followed) were for a bad cold that I caught at the dentists office. I haven’t seen a doctor at all otherwise, although I do call my family doctor to check in and let her know I am doing well.

Before I was on the MMJ registry, I was on so many medications (20 plus medications taken at various intervals though the day) that I felt like I was taking a pill every 2 minutes…. Number of traditional prescriptions I take daily now – ZERO.

Now the government was paying for all those medications I was on before through medicare/medicaid, plus all the doctor visits to get, maintain, and change dosing on those prescriptions right? Some of those medications by themselves cost the government thousands of dollars a month! Many could not have refills on them by law and required a doctor visit every time I needed more.

I always felt guilty about my personal burden on the American Taxpayers. But now I don’t have to feel guilty cause I have given a present to the American Taxpayer. I got on the MMJ registry. Now I do not go to the mainstream doctor unless I need antibiotics. I am off all prescriptions. I had tobacco quit (been trying for 20 years to quit) until I was without medicine too long and got stressed out, but I plan to quit again.

I and am well enough to manage a website as well as volunteer and be an advocate for others in need. I have regularly traded my services in clerical/computer work either from home or in the GreenBelly Coop LLC office for medications when I am strapped for cash. All of these things would have been impossible for me nine short months ago when I was all but bedridden and and in so much pain I had to keep myself from overdosing.

The government is saving many thousands of dollars a month on me alone, and yet I have to struggle to obtain this money saver for the American taxpayer. That much cut in government spending on the part of an individual… I should get a medal or something. Now think how many individuals are saving the government this money in the State of Colorado alone…. Let alone the other 13 states and the District of Columbia! We all need medals or medicine at the very least!

How many others are there like me? Meanwhile, the price of my medicine increases as the MMJ movement grows. My family and I have been stuck having to make really hard decisions like, do we pawn our wedding and engagement rings to get my medicine? Or do we pawn them and buy some food? Or do we keep the rings for sentimental reasons, lay here and just starve and have seizures from pain and lack of medicine/food.

I ended up pawning all the rings, having already sold else of value to the pawn store and bought both medicine and food. The money I received for my treasured bands did not buy nearly enough of either medicine or food. We promised ourselves we would get them back, but I ended up crying my eyes out when I realized I just can’t afford to get them out of hock. The deadline to get them back passed weeks ago. I live in a Winnebago and have been in real danger of starving to death at times. Now don’t get me wrong, my life has been profoundly changed by this medicine, and any hardship I may have to endure is truly worth the benefits of this plant. I will not compromise and go back to the narcotics and other prescriptions just because I can get them paid for or for any other reason. I would rather be in pain when I am without my medical marijuana than take a morphine and get sicker.

Sometimes family members and the community can make it very hard to be a low income medical marijuana patient too. I have heard many stories of people not living with family/friends any longer because they are shunned for their medicinal use. I’ve experienced this shunning first hand myself. The stereotype of the “typical” marijuana user is further damaging these people with no where else to turn!

This herb is profoundly changing lives! It is healing people, body, mind, and soul. Yet its legal users get treated as if they are using it for recreation. I believe recreational use is a VALID use of the plant, further I feel it be legalized and would be an important source of revenue for America if it were to be legal once again. However, that is not why I personally NEED this plant.

This plant allows me to eat, to sleep, to get out of my bed, to manage my pain enough to have a job, to be involved with life instead of living in a nightmare world just praying for the end to come soon. If you happen to be a Fibromyalgia patient praying for the end, you can be praying for a long time as this is not a terminal disease.

The Mayo clinic website (see footnote 1) describes symptoms of Fibromyalgia as including

Signs and symptoms of fibromyalgia can vary, depending on the weather, stress, physical activity or even the time of day.
Widespread pain and tender points
The pain associated with fibromyalgia is described as a constant dull ache, typically arising from muscles. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
Fibromyalgia is characterized by additional pain when firm pressure is applied to specific areas of your body, called tender points. Tender point locations include:

Back of the head, Between shoulder blades, Top of shoulders, Front sides of neck, Upper chest,Outer elbows, Upper hips, Sides of hips, Inner knees

Fatigue and sleep disturbances
People with fibromyalgia often awaken tired, even though they seem to get plenty of sleep. Experts believe that these people rarely reach the deep restorative stage of sleep. Sleep disorders that have been linked to fibromyalgia include restless legs syndrome and sleep apnea.
Co-existing conditions
Many people who have fibromyalgia also may have:

Chronic fatigue syndrome
Depression
Endometriosis
Headaches
Irritable bowel syndrome (IBS)
Lupus
Osteoarthritis
Post-traumatic stress disorder
Restless legs syndrome
Rheumatoid arthritis

And a whole host of other conditions not on the Mayo clinic list.

Moder Western medicine can’t even agree on the causes/mechanisms of this disease because they don’t understand it.

It has been suggested that this is a psychological disease only, a psychosis created when a hypocondriac hears about fibromyalgia. The advocates of this theory say that the symptoms of this diesease are all in the patient’s head. I do not personally believe in this theory, but even if this disease is all in my head, the medical marijuana still helps.

Other sources on Fibromyalgia suspect that this disease has been around for all time, a genetic disease with a trigger, and its symptoms are found even in individuals of remote tribes of Africa and the Amazon who have no contact with the west. So why should I use new untested man-made medicine created by people who don’t understand my disease and possibly believe it doesn’t exist? Especially when that disease has been treated with herbs known to posses pain relieving qualities for many generations of humans?

Personally, my last completely “pain free” moment was around 3:30 PM on August 21, 2002. I know because I keep a detailed pain/medication journal in an effort to regulate my condition. I am confident that If I had the proper medicine, I would have pain free moments again. This herb doesn’t just treat pain sensations, it helps correct causes. Perhaps with the right regimen, daily pain could be a thing of the past for me.

This disease itself may not kill you, but it can certainly make you wish for death. There are near epidemic levels of Fibromyalgia patients and pain patients in general who are hurting so bad they are suicidal, or worse succeed in taking their own life. I have a brother who died as a result of a doctor who wasn’t paying enough attention with his pen and prescription pad. After years of pain and suffering following a head injury, my brother died of a drug interaction prescribed by his doctor.

Dispensaries are necessary, but not without a social conscience
Now the other side of the coin. It is no secret that the people who own dispensaries are making money on patients like me too.

We need these dispensaries for a variety of reasons.
1)What would a patient do if their caregiver had a bad crop and was without medicine? If that paitent was restricted from seeing other caregivers they would have no where to get their medicine but the street.
2) Our caregivers are restricted to a number of plants they can grow for you, thus if you become tolerant to the genetics of one strain of medicine quickly and need to change the genetics of you medication often, it may be difficult for your caregiver to have/maintain the variety you need.
3) Competition strengthens customer service and prevents patients from being in a form of bondage by their caregiver. If we restrict patients from going to other dispensaries, how are they to know if the medicine they are receiving is the best quality available for them. If we restrict the number of persons a dispensary can serve to a tiny number and prevent patients from seeing other medical marijuana providers, and in addition the number of times a year they can change their caregiver, then patients must settle for whatever medicine a particular caregiver is giving them whether it is effective or not.

We need a program to help low income patients get their medicine!
If you are low income and can’t afford your “mainstream pharmacy” medicine, you can go to various organizations and they will help you to buy your medicine, sometimes even on a regular basis if they are necessary and not covered by insurance, but that doesn’t include medical marijuana.

If you are brave enough to speak up and ask for help getting your medicine at these organizations, you will probably find the door closed firmly in your face. You may also find that other services from the organization become difficult or impossible to obtain as well. This is out and out discrimination in my opinion. If your medicine is MMJ no one is willing to help you unless you happen to be lucky enough to find a care giver who actually gives a care if you have medicine or not! I just put my medical costs on a new food stamp application mailed 1/13/09 to Boulder County. We shall see what happens.

“So what,” you say? Well let’s look at this… The high price can force a person in my position to go back to buying their medicine off the street where it is less expensive, but also less potent, less safe.

1)You never know what has been added to you herb to increase the genetically weak herbs potency artificially with other street drugs or various substances to make it seem as though there is more weight to the medicine.

2)It is much more dangerous to obtain, and the process of obtaining it can be a risk to your health in many ways. Long periods in the cold and encounters with strange germs can put a person right back in their sick bed or the hospital.

3) The money spent on street grade medication often goes back to fund gang and criminal activity. This is something that most medical marijuana patients do not want to support and got on the registry to stop supporting. I personally counted avoiding purchasing on the street as one of the largest pluses to getting on the registry, and yet I see people like me being forced back there.

4) The price of cannabis on the street directly influences the costs of Medical Grade in the Dispensaries. In this respect, Cannabis is a commodity like any other, and as such is subject to price fluctuation when artificially influenced. It doesn’t really have anything to do with how much it costs to grow it and transport it to the patient. It has to do with how much it costs on the street.

What is to be done if you have no medicine? Where can you go?

There are few funds or organizations willing to help people like me get my medicine when I can’t afford it, and you have to really dig in your need to find them. When I did find them, they could only help once or not at all due to the demand. Many patients do not have the strength for this search when they are lacking appropriate medication. It took me months of daily web crawling to dig any up organizations up. Now people who wish to help provide medicine to people in this position can buy something for themselves or someone else, something they may have bought anyway and someone gets medicine.

If someone who has medicine/money wants to help a person in my position, likewise there is no way for a person who wants to help to donate money to people in a position similar to mine. Right now low income persons only relief seems to be individuals/churches/caregivers being kind. So I created this gift company, and here we are.

One church I know of is greenfaith ministry. The Reverend of greenfaith ministry is also known as the 420 Reverend. I have had contact with Reverend Brandon Baker from this organization who is a great man. He drove over 50 miles to get me some medicine for free. Unfortunately he is one man and the demand is high. Rev. B Baker is quoted as saying, “Tell the (Denver City my edit) counsel a majority amount of local churches support un-regulated access for all needy mmj patients, give them my name and number if they say they want to meet with any of the spiritual mmj community church leaders!”

Meds for free? What about Caregivers and Growers needs?
Now, I have no problem with the idea of paying for my medications… The person who grows it provides a service that a dollar amount really can’t be placed on and should be compensated, and so should everyone involved in getting the medicine to me. That is only fair. But I want know the money I spend helps others like me or at very least the movement in general. I also don’t need to be paying 50+% of my income to stay barely comfortable. I’d like to be able to pay a reasonable percentage of my income and have all the medicine my body requires. I know that may seem a little unrealistic, but a girl in pain can dream. lol

Here in Colorado it is the wild wild west right now. If I happen to have to go somewhere other than my primary caregiver, my $ will probably end up in a growing bank account of some green gold rush eyed caregiver who could really care less if I have effective medication or not. In fact, it seems like the only green anyone cares about is dollar bill green and the green of greed. Yet the right to visit a dispensary other than your caregiver is a necessary one. What happens if your caregiver loses a grow? What do you do if you need a different strain of medicine than what is available that day? What if they are out of the product that helps the most? Would you refuse to let me go to W@(m@rt if W@lgr33ns was out of my prescription?

So the government ignores the money it saves, and many (not all) of the dispensaries in the area seem to have little social conscience about the price a person like me can pay to have their medicine.

A Big social Problem, and Yet We aren’t the Issue, money is.
When your total family income is at or below poverty levels, you can absolutely be forced back on the streets to get your medicine. My medical condition requires a minimum of 1/8 oz of smoke-able every 2 days to just to keep me off narcotics and other prescriptions that do more harm than good, not crying, not having seizures caused by pain, and not be stuck in bed.

This dosing by no means keeps me comfortable it is important to note.
I have NEVER had the pleasure of having enough medicine on hand to decide on what a good “comfortable” dosing schedule would be, even though I do have a compassionate caregiver. I just don’t want to put my poor caregiver out of business taking care of my needs.

What I am trying to say is that there is something fundamentally very wrong with the fact that there are so many people who are to poor to even know what the appropriate dosage of medication for their amount of pain, yet the government is saving a bunch of cash and the Medical Marijuana industry is getting the “lion’s share” of the rest of their income.
It is frustrating to feel like you and others are falling through the cracks even further. Many in my position were barely hanging on before the economic downturn, and now see no light at the end of the tunnel. SSI/SSD keeps you far below the poverty line if you have been unable to work enough many living on $1000 a month or less for their whole family.

It is frustrating to see others get wealthy off of you and others while your tier of society starves. Sometimes I feel invisible, and I know for a fact I am not the only one out there feeling this.
Why do the out of state interests get a louder voice than ours?
I was born in the State of Colorado. My family has lived in this state for 4 generations (or more.) My grandmother owned and operated the Historic Stirrup Ranch near Canon City, Co. for many years. I love Colorado, but I live in an RV and am so desperate to be in a place where I can have food and medicine that I am willing to move to any state with a registry because the climate here is so difficult for patients right now.
I have a plan so that if I were able to obtain some land, I could be self sufficient (NO MORE SSI/SSD and I could actually contribute to charities instead of needing help from them!) and never have to worry about being hungry or without my necessary medicine. In time, many others could be helped with food and medicine grown on the land. I could be fulfilling needs rather than begging to have my needs filled.

Kiefair Keepsakes, stepping stone to a dream

My dream is to be able to get some land and set up an initial grow op in earth ships (a growing movement of building practices with an all environmentally friendly building/management philosophy.) This initial grow op would end up growing into a Nonprofit Medical Marijuana retreat/community/caregiver for patients like me to be able to get their medicine and/or live in a more affordable and kind setting, using their personal talents and abilities to benefit the community. I want to focus on what a “disabled person” can do, not their limitations. I want to create a place where it is safe to be sick on a daily basis with no fear of hunger, lack of medication, or fear of the loss of a job/home due to illness.

While I have the heart and the ability to do this work (given time and medication), I unfortunately have no capital for such a venture and am praying the universe will see fit to make it happen.
I have researched many aspects of this and it is very feasible, however getting investment in such a venture is not my forte. This kind of setting would be great tool for a “for profit” dispensary to use. It would be publicity, demonstrate social conscience, and you could also offer my nonprofit medications cheap to their own low income patients. inquire further at kiefair.keepsakes@gmail.com

I just wanna say Thanks to all the people out there helping to make it possible for people who need this medicine to have it. Whatever you celebrate this or any season, may it be meaningful and may Blessings come to you all!

footnote 1 Retrieved from the Mayo clinic website 1/12/2009
http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=symptoms

Copyright 2009,2o10 by Breezy Keefer, owner Kiefair Keepsakes All Rights Reserved
Please copy and redistribute with attribution of source!

hey, vote me up on miss high times please!!! 10 is high, 1 is low

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